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Posted on: Mon, 06/09/2014 - 9:36am
mom1995's picture
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Joined: 11/09/2004 - 09:00

'ddvt' You have been on here one day..... To emply our home was not a safe place for our daughter is beyond your relm of knowledge. I slight no one for choosing to have a nut free home. It is a personal choice that no one should judge. But thank you for contirbution and for making my point that there are still adults out there that make the worng choices in life. In your case judging others.

Posted on: Mon, 06/09/2014 - 12:29pm
ddvt's picture
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Joined: 06/08/2014 - 08:41

With all due respect, I was totally not judging you for anything like that; I was actually responding to your seeming to have judged those of us who do have nut-free homes because you first used the words you used - "living in a bubble", etc.. I am sorry that I offended you.

Posted on: Wed, 06/11/2014 - 10:48pm
ramona mcdaris's picture
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Joined: 06/08/2014 - 08:18

Hello! And yes, it is overwhelming, saddening, maddening, and frightening to learn that your child has PA. We have known for only 10 months with ours and I gave him an Epipen on his 3rd birthday, and called 911, who said, "Sorry, we have no EMTs available now." I could not believe my ears, but this is a big city, so, apparently that sometimes happens. Still, I think it is awful and I had to run him by stroller to the ER after giving the Epipen. Well, hopefully that will not happen to you. For us it was one M&M that he found. So, I am frightened by your and your husband's attitude (not criticizing, just frightened) about not removing all traces of peanuts (forever) from your home, immediately. This means washing hands and brushing teeth BEFORE touching your son if you have recently eaten peanuts or food containing peanuts, elsewhere. (Yes, anaphylactic shock has occurred from couples' innocent kiss - just after one of the two had eaten peanuts). And your little guy is obviously too young to read your "labels." But mostly, you must adopt a more serious attitude about PA, NOT of panic, but of total distrust of ANY FOOD to the point of calling the manufacturing companies' Customer Relations person and asking if the food, although showing no peanuts on the label, was possibly in contact in any way with peanuts. This could be from shared equipment with other foods, or from using the same conveyor belt in transporting them. Some reps will try to assure you that "your health and safety are our primary concern, and we WASH THE EQUIPMENT THOROUGHLY BETWEEN BATCHES." Assure them each time you hear this that this is, unfortunately, not good enough. One almost microscopic particle of peanut protein left in a crevice of a machine or mixing bowl can kill your child in 30 minutes. Simple as that. So buy ONLY foods made in a SEPARATE facility from those made with peanuts. I bake my own bread and I called first to be sure the flour was not milled with PEANUT FLOUR in the same facility (before we got involved with PA, I did not know there even was peanut flour!). Hodgsen's is a good company brand for nut-free facility flour. But, ALWAYS CHECK FOR YOURSELF! Do not trust another individual who says, "We have always done fine with X-Brand." Obviously not every grain of flour, for example, will be cross-contaminated, but the one in a hundred that does could be just the one your son eats in his cupcake and shock WOULD likely ensue For a better understanding of this awful allergy, and especially as you are just beginning to learn about it, you and your husband might want to Google recent cases of death by peanut ingestion, even a tiny taste, especially in children. Doing anything you can to avoid anaphylaxis is not "living in a protective bubble." Rather, these deaths from peanut ingestion ARE the real world. Start by reading a couple or three of the articles found by Googling "Natalie Giorgi, 13-year-old Twin Dies" This was last summer, and there were several others deaths from same cause then, but this one will show you what you need to know. Her father was a doctor and she died in his arms after NOT EATING, but only biting into and spitting out a rice-krispie cookie laced with peanut butter. I am not trying to unduly frighten you; rather just trying to get you and your husband onboard the reality of peanut allergy's seriousness. YOU TWO must be your child's most fierce, relentless champions, because you will run head-on into folks, most often family members, who will NOT take this seriously, or else, are simply not aware enough of this fast-growing allergy to care right now. I am an RN and we did not even study allergies (except hay-fever types) in my nursing school. It is the past dozen years that have seen an alarming rise in the number of children diagnosed with peanut allergy. Good luck, and with the newly-adopted attitude that you will, to the best of YOUR ability, keep you child safe (this includes educating his baby-sitters, relatives, anyone at all who is in his presence), he will do fine. But you must be forever vigilant and read, read, read about this allergy, so you are at least armed with KNOWLEDGE of its potential harm, as well as knowing what you CAN do to make your child safe. Remember, unlike your sweet Aunt Mary might say, a TINY BIT of peanut is NOT O.K.! I know you will do fine, and as we did, occasionally show your little boy a peanut, both with and without skin, as well as peanut butter, to demonstrate what he is not to eat, and openly let it be known to him as well as his playmates and their caretakers that he CANNOT SHARE ONE BITE OF FOOD OR DRINK WITH ANY OF THEM--not even one M&M! Do this fairly often and he will not, at this age, be shocked by it, but will gradually realize that peanuts in any form can make him and some, but not all, other kids very sick. That is all he needs to be told for awhile. And we have signs posted on our front and back doors, as well as on our bathroom doors, "No Peanuts or Peanut Products Allowed in Our House--Severaly Allergy!" Your boy will grow up knowing this and will adapt to it and live a normal, happy life. Best of luck to you all

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