Another new person!

Posted on: Tue, 04/08/2003 - 3:26am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Hi,
I just wanted to introduce myself, share my story, and commiserate with others! My family consists of myself and my 2 children. Brodie is 7, and the picture of health. Eva is 3.5, and her story is a bit more bumpy. She was born in Perth,Australia (where we just moved from)5 weeks early, with a congenital diaphragmatic hernia, which is a tear in her diaphragm from her esophagus to her rib cage, and all her insides were inside her chest cavity. She was given less than 10% chance to live, had 7 surgeries (2 X diaphragmatic repairs, 4 X bowel resections, and 1 bowel perphoration), and spent the first three months of her life in the neonatal intensive care unit. Because of a low immune system, I didn't have her immunized until she was 6 months old. Right after her immunizations, I took my children on a train ride to a baby expo. On the train, Eva was hungry and I gave her a very small nibble of Brodie's peanutbutter sandwich. The rest, as they say, is history! She swelled up, broke into a rash, started screaming, etc. We wound up back in the hospital for 4 days on a drip. She was not only allergic to peanuts, but also egg whites, which was used in the immunizations. Way too much for her delicate system. The first two years of her life were quite rough, but she is a strong-spirited little girl. we've had a handful of accidental exposures to peanuts, the last one being a bit scary for me. Her reaction lasted 6 days - hives, even covering her tongue, lethargic, nauseous, and grumpy as all heck. Benedryll didn't help, so I brought her to the doctor who prescribed Zertec, which finally helped. Anyway, this is a long story! I did have a few questions that I wanted to throw out there -
1. What kind of reaction warrants an epi-pen? I feel quite scared not having one.
2. Does anyone know where to get other nuts, particularly almonds (and almond butter) that are not processed in a factory with peanuts? I'm not too trusting of the labeling on nuts, and as we just moved from Australia, I'm not very familiar with all the various brands. Thanks for letting me ramble on! I'd love to hear back from people.

------------------
Regards,
Tracey (Eva's Mum)

Posted on: Tue, 04/08/2003 - 3:45am
rj's picture
rj
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Joined: 01/19/2003 - 09:00

Hi, your little one has been thru alot. So has mom. I just wanted you to make sure your child is not allergic to any other nuts. Also, the cross contamination is a worry. My child is pna. But we stay away from all nuts on the Drs. orders. Hope this helps.rj

Posted on: Tue, 04/08/2003 - 3:51am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Quote:Originally posted by rj:
[b]HI just wanted you to make sure your child is not allergic to any other nuts.
No, she's not. I had her tested for all the others.
Also, the cross contamination is a worry. My child is pna. But we stay away from all nuts on the Drs. orders.
Yes, this is exactly what I'm worried about, which is why I wanted to know if any peanut free nut facilities exist. Maybe this is a business opportunity for me!
Hope this helps.rj[/b]
Yes, it does. Thank you!
------------------
Regards,
Tracey (Eva's Mum)

Posted on: Tue, 04/08/2003 - 3:56am
mchammond's picture
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Joined: 09/21/2000 - 09:00

It sounds like your little one has been through quite an ordeal. My ds is pn and loves almonds & pecans (tested to be sure no allergy). I purchase the hole nut still in the shell and shell myself.
Good luck

Posted on: Tue, 04/08/2003 - 3:59am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Quote:Originally posted by mchammond:
[b] I purchase the hole nut still in the shell and shell myself.
[/b]
Great idea! Never even thought of buying the nut in the shell. Oh, we certainly live in a processed, pre-packaged world!
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Regards,
Tracey (Eva's Mum)

Posted on: Tue, 04/08/2003 - 4:47am
river's picture
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Joined: 07/15/1999 - 09:00

Hi Tracey and welcome.
In answer to your question about using the epi-pen: that reactions you describe would more than suffice. Normally you'd give the epi-pen, call 911, (or whatever you have in Australia), and doctors at the hospital would take it from there. I'm really surprised at your doctor, who just gave you a prescription.
The problem with a peanut allergy is that you have no idea when it can turn deadly. Sometimes it's not even a breathing problem. Sometimes the body goes into shock. That's why you always follow the protocol I mentioned above.
It sounds like you need an qualified allergist or a more educated doctor. YOUR DAUGHTER NEEDS AN EPI-PEN.
Many peanut allergic people are also allergic to some or all tree nuts. Make sure you know for sure that she is not allergic, before feeding you daughter any nuts or nut products.
I hope this information helps you.

Posted on: Tue, 04/08/2003 - 5:22am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Quote:Originally posted by river:
[b]HYOUR DAUGHTER NEEDS AN EPI-PEN.
Thank you so much for clarifying this for me. I too thought it was a big oversight on behalf of my doctor here (we just moved to North Carolina from Australia)
Make sure you know for sure that she is not allergic, before feeding you daughter any nuts or nut products.
Yes, she's been tested, and it is definitely only peanuts, thank goodness.
I hope this information helps you.[/b]
It certainly does. I'm going to call my doctor right now and make an appt. or get a referral to an allergist. Thank you!
------------------
Regards,
Tracey (Eva's Mum)

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