another family

Posted on: Mon, 08/13/2007 - 4:51am
ijkchen's picture
Joined: 07/30/2007 - 09:00


We have a newly diagnosed peanut allergy in the family; our toddler son. We're following the allergist's advice and avoiding all tree nuts, though I know he's had almond and plenty of sesame seeds and oil before.

Previously, we were fairly adventurous. We've flown quite a bit with our son, even took him to Taiwan for his first time last holiday. I suppose we've done every 'wrong' thing in the book prior to the diagnosis. Travel to Asia, eaten at numerous Chinese restaurants in the US, including plenty of buffets. We were rather carefree with him physically interacting with other children and he's licked/touched a great number of things I would otherwise not want him to, allergy or no.

For the record, all the above happened incident-free. It was contact with a good old American peanut butter sandwich that brought on a reaction.

At any rate, I found this site and here I am. In particular, my husband and I have started to investigate, track and analyze FAHF-2. We have access to the full academic papers, my father in law is a horticultural engineer by trade and we have resources in clinical Chinese medicine. Language and travel aren't barriers either so we've started our own personal investigation. To that end, when and if I get the opportunity, I plan to start documenting our experiences through a blog.

I saw that Corvallismom is a chemist as well and we travel to Corvallis very often. Maybe we could trade notes sometime or at least meet up with the kids during DaVinci Days, etc. Wouldn't surprise me if we know a professor or two in common.

As an aside, I cook a lot of Chinese and Japanese food and since the peanut butter ER visit we pretty much don't eat anything I haven't cooked. I know Chinese food has earned the reputation as 'forbidden' with regard to allergy but I cook Asian foods very often from scratch and easily avoid nuts and would gladly post a few things I make that are nut free since I've read so many people here miss having an Asian type of food.

Thank you for your time. I'll see you on the board.

Posted on: Mon, 08/13/2007 - 6:02am
niche's picture
Joined: 02/05/2007 - 09:00

Hi and welcome.
would be happy to hear any thing you find out in your research.
DD 1 ????

Posted on: Tue, 08/14/2007 - 5:44am
Sarahb's picture
Joined: 01/22/2007 - 09:00

Hello and welcome!
I would love recipes! [img][/img]
My son was loving eating with chop sticks and trying new things...

Posted on: Fri, 08/17/2007 - 2:53pm
cfkjc2's picture
Joined: 07/13/2007 - 09:00

Hey there, I am also a Taiwanese with a PA daughter. I have been looking around the site and have not posted many. There are days this site brings me comforts and good advices, but there are times - the opposite -
Would love to share more and hear more, will you share your blog site?

Posted on: Fri, 08/17/2007 - 5:03pm
Momcat's picture
Joined: 03/15/2005 - 09:00

I'd love to hear your recipes. I'm a big fan of asian cuisine and I am trying to teach myself to make sushi. I'd love to learn to make some Chinese favorites, too.
Mom to 8 yr old PA/TNA daughter and 4 yr old son who is allergic to eggs.

Posted on: Fri, 08/17/2007 - 11:20pm
Going Nuts's picture
Joined: 10/04/2001 - 09:00

I too look forward to reading your posts regarding research results. And let's not forget recipes - Asian food is what we miss most, much more than bakery goods, ice cream, etc.

Posted on: Sat, 08/18/2007 - 12:39am
April in KC's picture
Joined: 08/28/2006 - 09:00

Welcome and stick around! I hope FAHF-2 ends up being an option - keep us posted. Recipes would be great!

Posted on: Sat, 08/18/2007 - 6:12am
ijkchen's picture
Joined: 07/30/2007 - 09:00

I'll post up my journal in my signature once I get a chance. Right now we're gathering the papers, identifying who we rope into it. We have Chinese medicine docs - from mainland accredited university, plus we will involve our allergist and allergy clinic since it is also an allergy research clinic.
Right now I don't have much new info. We're going in for a consult with the Chinese docs, building a reference binder with all FAHF-2 info we can get our hands on and when family visiting us returns to Taiwan they're going to see if it's something they can buy somewhere and send to us. I just want to know more about it, see it first if I can. Then I'm going to run it by Dad to get the goods on what the ingredients are.
Moral of the story is I hope to have some actual data in 2-3 weeks.
cfkjc2 - I'm trying to build an online coalition of Asian American families dealing with food allergies so we can trade info on travel, surviving banquets and food product info not usually covered. I know we're not alone. Though I haven't scoured the blogs for info I know some of the families from Kimchi Mamas and Ricedaddies are dealing with this as well. If I get anything going I'll definitely shoot you a message. FYI - my husband is actually Taiwanese. I'm Japanese/white. I absolutely get what you mean about balancing info gathering while working around what would only serve to stoke the fires of panic. We all have our good and bad days.
By the way, our PA son has successfully had Lee Hou pineapple cake without a reaction. It was right before the peanut reaction so those are probably okay if you ever run across them. Do you know if hot bean paste is okay for PA kids? Or Shao Hsing wine? I haven't used them since the reaction to peanut butter but I don't think there's anything peanut related in either of those.
To all> I'm in the midst of setting up a new mixer, bread machine and ice cream maker. I'll get some lunch and dinner ideas going in the recipe area sometime soon. I hope I have some good news to report on a couple of gelato flavors: mango and green tea.
I loved the pictures of all of your kids. Seeing them play sports and having a normal life was extremely inspiring!

Posted on: Sat, 08/18/2007 - 12:45pm
hopechapel's picture
Joined: 12/11/2005 - 09:00

Welcome. My you are going to be an interesting and valuable member. What is your child allergic to?
If sesame than this is out and if you are strictly avoiding traces of shellfish - but I find sushi restaruants a safe haven. Only Ruby Foos and one other had peanut products. My four year old passionately loves sushi and we get it out. Please pass on the
FAHF-2 I forgot to ask me GP who does chinese medicine as well what she knows about it.
While you are at it look up camel's milk study in the Israeli medical journal. Taht is the one that still gets me. I am curious if they are doing the larger study yet.

Posted on: Sat, 08/18/2007 - 3:35pm
ijkchen's picture
Joined: 07/30/2007 - 09:00

He's never reacted to sesame or almonds so although we assume it's peanut only we're following tree nut elimination but I still use sesame oil.
Shellfish is possible but he's already had nori and wakame seaweed, which he loves. Both have iodine and that's what pink shellfish have as well and causes reactions in some.
The only known culprit is peanut butter. As for sushi, yeah. I make it more often than we go out. All the places around us are Korean owned. Like one of the Japanese American moms said on here somewhere, I would rely more on a Japanese owned place for taking my son out post-diagnosis.
Anyhow, busy is good. If I slow down long enough I'll want to print out a picture of Mr. Peanut and use it for target practice. See if I can wipe that smile off his face.

Posted on: Sun, 08/19/2007 - 5:20pm
cfkjc2's picture
Joined: 07/13/2007 - 09:00

Hey there,
This May when we traveled back to Taiwan for a 3-week visit, I did not know any better, she just be around quite a lot of risky food, but lucky, no reaction. She had had "red bean cakes" and she did well...although it might take some "analysis" next time before I will hand her another piece.
My family in Taiwan is still in shock and do not understand what this "peanut allergy" is all about


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