I'm a little confused here.. i seem to recall that kids in the duke study tend to be on the young side-- and even one post which passed info on from Dr. Burks that in general, the younger the better?
I emailed the research coordinator at Mt. Sinai to find out IF and when, being part of the same consortium as the Duke group, they might replicate Dr. Burks' desensitization resesarch.
THis is the email i got back from teh study coordinator:
"Thank you for your inquiry. We are part of the Consortium of Food Allergy Research. There is a website for the Consortium that you can follow the activities at [url="http://www.cofargroup.org."]www.cofargroup.org.[/url] Duke as well as Johns Hopkins, Arkansas, Denver National Jewish are all part of the consortium. There is currently an observational study for children less than 15 months of age. Any further research in the near future such as a peanut desensitization is not planned for children as young as your child."
I indicated that DS is 3 -- and so was quite suprised by the "not planned for children as young as your child" statement...
Ideas anyone?? do i have wrong factoids floating in my head or poor recall of whats been posted re: Melissa's experiences and the Duke study in general??
Cris
The information that I have received on this study from the University of Arkansas (and I assume all facilities are participating under the same protocol) is that it is for "children ~2-18 years of age diagnosed with a peanut allergy by a CAP RAST of 15 or greater or a CAP RAST of 7 or greater and have had clinical symptoms to peanut within the past 6 months."
Drew's mom is correct- that is the current protocol at Duke. You may have gotten that response as they are now getting ready to close phase one of the desensitization study to new subjects, but I believe they are still taking names for phase two (the one with the placebo group). They are also running the infant study. The oral immunotherapy study is for young children such as yours. If the other hospital lists only older subjects, perhaps they are only doing the sublingual therapy (also run at Duke) and not the powder/ oral immunotherapy.
That is my latests information- but you can contact the other sites directly to be sure- hope that helps
[This message has been edited by alliedhealth (edited February 09, 2007).]
thanks both of you for the info... i'm going to email the research coordinator again for clarification..
Perhaps it was the term "desentization"? I will use better descriptors this time..
thx!!!