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Posted on: Sat, 07/24/1999 - 9:34am
dhumphries's picture
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Joined: 02/02/1999 - 09:00

pHi Christine,/p
pI agree that I am lucky in that the teaching staff and kitchen staff have been extremely compassionate. I think one of my biggest allies has been the cook there. She is a member of the church there and a wonderful, christian woman. I was allowed to discuss the allergy with her, and she constantly tells me how she reads all the labels (they have eliminated obvious pnt products) because she has two grandchildren, and she would want someone to do this for them. I guess the point I was trying to make is, don't give up, there are still a few compassionate, caring individuals out there./p
pIn addition, my day care has five weeks of rotating menus which I am given. If I ever see a problem there (for instance, they once had brownies (no nuts) as a snack but I avoid chocolate)so I asked that he be given Nilla Wafers./p
pStay Safe, Deb/p
pBy the way, the Day care is:/p
pFirst Baptist Church Child Development Centerbr /
1305 Wildcat Dr.br /
Portland, Tx. 78374br /
Sue Bohn, Assistant Director/p
pPlease, anyone, drop them a line to let them know that their allergy awareness is appreciated./p

Posted on: Mon, 07/26/1999 - 1:28am
Sheila's picture
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Joined: 07/22/1999 - 09:00

pMaybe if you gather some info about peanut allergies and take it to the director, he or she will see how serious this is. Since my 2 year old had his reaction to peanut butter, the director of his day care has decided to eliminate all peanut products from the day care. She got on the internet and got all kinds of information and realized she did not want to take a chance on any other kids reacting like mine did. If they realize the potential problems it will cause them if they are the ones responsible for a deadly reaction, it might scare them into being more cautious and not serving the products at all./p

Posted on: Wed, 08/11/1999 - 1:00pm
LoriD's picture
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Joined: 08/11/1999 - 09:00

pHi Ginger,/p
pI'm a brand new member and you are my first post on a Discussion Board. It's amazing how you can learn to use a computer when your son's life is at stake!/p
pIf the folks in NJ ever decide to get together, I will travel north. I'm from Colts Neck, NJ. (central part)/p
pMy 19 month old son was just diagnosed with a peanut allergy also (8/7/99). I was considering sending him to daycare but after reading non-stop about this allergy since that date, I have decided not to. My son has had three reactions in the past month because people who have touched peanuts have touched/kissed him (hives, stuffed nose, watery eyes, itchy body, redness, sneezing). He had a scratch test and the allergist had to stop it after a minute because my baby was too itchy. Is that serious? How paranoid to I need to get? At what point in my son's reactions should I have used the epi-pen? /p
pGinger, I ask these questions on your site because you seem to be in a similar situation./p
pLori/p

Posted on: Thu, 08/12/1999 - 2:41am
CathyT's picture
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Joined: 07/11/1999 - 09:00

pHi LoriD! My son is 2 yrs and PA, and I myself am PA. We live in Lincroft, the town next to you. I know from the support boards that there is a central NJ support group, I have not attended./p

Posted on: Thu, 08/12/1999 - 6:13am
ElizabethsMom's picture
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Joined: 04/17/1999 - 09:00

pHi!/p
pWelcome to the community - here is a great tip I got off the Living With Peanut Allergy set of boards (there is a wonderful 504 school plan posted there by Kurt)..../p
pFor birthday parties at schools urge your class/school to institute one monthly party for all the birthday children. Ask that all families contribute a small amount of money to cover "safe" snacks - I assume purchased by the parent of the PA child or a trained teacher or room parent - and implement a rule that all treats given out must be non-food items such as stickers, special erasers etc (the Oriental Trading Company has tons of this stuff for significantly less than buying food for everyone.)/p
pThe practical side of this plan is that you only have one party each month, or nine parties per year, to manage vs. 20 - 30 AND the food is chosen and approved by you. The upside is that all the other kids in each class, and I'm sure there are others, with dietary restrictions due to diabetes, lactose intolerance etc. also win in this situation./p
pTry this as a starting point for managing your daughter's class in the hopes that her treat bags no longer include items that could hurt your son!/p
pWith regards to the attitudes of the staff at day-camp - have you tried sending home letters to all the children's parents informing them of the situation? I believe that a combination of two letters - one from the director and one from your allergist or pediatrician - will work best. I think most parents are eager to cooperate provided we approach them with a positive attitude./p
p------------------br /
Kristin/p

Posted on: Thu, 08/12/1999 - 7:54am
MaryLynn's picture
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Joined: 06/25/1999 - 09:00

pLori,br /
Did your son have anyother tests, specifically a RAST or a CAP-RAST? I don't know too much about the later, but my daughter has had 2 RAST in the past year and a half. If possible I would get a RAST, only to check out possible other allergins. Also, this way you have a base line for future tests. /p
pI am in the Princeton/New Brunswick area and have a great allergist who specailizes in food allergies. He has recently had to deal with us a lot more as my daughter is one of the unlucky ones who seems to get worse as she gets older (she'll be 5 in Sept. and was diagnosed at 3 1/2). /p
pAs to how paranoid should ou get, it will vary. Some days I am afraid to leave the house. Other times I have to double ceck that I have my pocket book with my Epi pen, I have had to go back because it was left at home. I think that a nice balance with caution and fun is the most important. As my allergist told me not too long ago, "She's a healthy child, let her enjoy being a child". I believe he raised a food allergic child, so I feel I shuold try to let her live as normal a life as possible./p
pHave a good smmer./p
pMaryLynn/p

Posted on: Thu, 08/12/1999 - 1:31pm
LoriD's picture
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Joined: 08/11/1999 - 09:00

pDear MaryLynn,/p
pThank you for your interest in my son. It seems as if PA can be very difficult to deal with for some people. I'm trying to figure out if I need to do all the things they do to keep my son safe? Do I really need to question chefs and worry about peanut dust for my son?/p
pRegarding your comments about the tests, I never heard of them but I will certainly ask my doctor to perform them and learn more about them. Christopher had a scratch test at three months because of infantile excema. He tested positive for wheat (1), tomatoes (2+), milk (2+), eggs (3+), peanut (3+) rye (1). I have also seen him have reactions from cherries, rasberry and barley. He has had no serious symptoms other than his excema flairing and itching. Except, OF COURSE, for peanut. /p
pLast week, he was given another skin test because I've seen him break out in a rash or hives from being kissed by people who have touched peanut butter. Most of the other food allergies stayed the same but the peanut broke out in a huge hive and half his back turned red and itchy within one minute of the test. My son was so uncomfortable (remember, he is a toddler) that the Dr. stopped the test. But he was diagnosed as highly allergic. /p
pHow serious is that? How extreme do I need to be to keep my son safe? Your comments are appreciated./p
pLoriD/p

Posted on: Thu, 08/12/1999 - 2:02pm
Anonymous's picture
Anonymous (not verified)

pDear LoriD,/p
pMy son had huge welts on sides, back and of course stratch test site for peanut on second time he had the tests ( at age 3 then age 6.) I will never let allergist do skin test for peanut again- exposes him to the allergen rather I'll get the CAP RAST test which is exposing some of his blood to the allergens and getting number score that places person in diferent catagories and I'll be yearly gettng these test to see if he is less allergic. With some foods he may outgrow allergy. (peanut is lifelong for him) The CAP RAST testing helps allergist know when it likely to be safe to do a food challenge on certain food and when to never do this. My son is +9 for peanut and for Egg other positives ranged +5 to +7 on the stratch test. The CAP RAST broke it down better with peanut and shellfish being 100(high is test measures) Egg was 31 but has dropped down to 20. The doctors have only identified 5 foods to a number figure represent approximately 95% or greater likelihood if reacting with ingestion of the food. EGG=6, Cows milk 32, peanut 15, fish 20.br /
Hope this helps explain CAP RASTS/p
pJanB/p
p------------------/p

Posted on: Thu, 08/12/1999 - 10:56pm
SteveW's picture
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Joined: 04/08/1999 - 09:00

pA CAP-RAST is more recent and better test. The regular RAST is not as effective in defining an allergy. The CAP-RAST can essentially tell if someone is allergic with a 95% confidence interval assuming the IgE levels exceed a certain threshold./p
pHere is a link with more info on the CAP-RAST./p
p [url="http://www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9338535form=6db=mDopt=b"]www.ncbi.nlm.nih.gov/htbin-post/Entrez/query?uid=9338535form=6db=mDopt=b[/url] /p
pThe RAST test does not predict severity of reaction. All things being equal, a level 5 has a higher probability of a severe reaction than a Level 3. A couple prime factors regarding severity are route of exposure (e.g. touch or ingestion), the amount of exposure, complicating medical conditions (e.g. asthma)./p

Posted on: Thu, 08/12/1999 - 11:35pm
LoriD's picture
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Joined: 08/11/1999 - 09:00

pDear JanB and SteveW:/p
pThank you, this is excellent information. I will read SteveW's links over the weekend to learn more. It is still a bit over my head but, from my novice point of view, I get the strong impression from both of you that I should proceed with extreme caution for future scratch tests for peanut and perhaps, DEMAND the CAP RAST. I will get educated on it./p
pJan B, (with the exception of peanut) I never took my son's other allergies that seriously. I still let my toddler polish off an entire slice of pizza with tomatoes, egg and cheese. If he has no other reaction except for excema flaring up, should I still consider eliminating all traces of milk and eggs (which seems to be the trend on FAN)? Why?/p
pYou folks are great. I'm glad I found you!!br /
LoriD/p

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