Just wondering if their is anyone else out their like this? My son has a been tested for a few foods with the skin test. Everyone he has been tested for he has been allergic to. My mother in law has had many tests done from Duke University Hospital. She has suffered from severe asthma and allergies all her life. She was tested for 160 foods and tested positive to them all. At one point she was told to eat nothing but chicken, white rice and drink water. She has not been able to do that. What a life! This is pretty scary! I just hope my son doesnt have these same allergies. Just wondering does anyone know anyone like this? Heather
On Feb 5, 2002
Sorry I can't offer you anything but sympathy... our daughter's recent CAP RAST indicated that she is allergic to everything that she has ever been fed (that we bothered to test for, obviously). I mean really allergic, like CAP RAST II. We don't know what to do, since this included rice and apples, but tend to think that the results are accurate since the shrimp number was extremely small (never been given any) and the egg values have fallen (since we last tested a year ago). In doing our best to eliminate everything related to wheat and all soy, and dairy we have noticed an improvement in our duaghter.... when challenged with cheese, she definitely suffered symptoms. We may know more tomorrow after our appointment with our doctor, but one thing that I suspect after doing some research is "leaky gut syndrome." This can happen pretty frequently to celiacs, since the early damage to the intestinal wall may go unnoticed. Anyway, what happens in this case is that the IgA containing cells lining the intestinal wall become damaged from exposure to a food allergen (or a non-tolerated one) and are unable to properly "intercept" proteins from any foods after a while, meaning that most food proteins pass directly into the bloodstream. Ergo, with someone whose immune system is revved up anyway, they will make antibodies to everything they eat.
I'll try to post once we talk to our allergist.
On Feb 5, 2002
Shannon, Wow I have never heard of that.I am so sorry to hear about your daughter. Please let me know what her allergist says. I will keep ya'll in my prayers. Take Care, Heather
On Feb 7, 2002
Hi, We were there 7 years ago with our son. The allergist looked at us and said he can eat, 'potatoes, bananas, wheat, egg, and chicken' I wish you luck. If you think there is ever anything I can do for you call me! So he was put on a strict food avoidance diet to see if we could break the hive cycle. We left his office feeling daunted! Of those foods he turned out to be allergic to wheat. I would encourage you to keep a very good food diary with date, time, food/mood/reaction. Keep off all but a few foods that you think are ok. After four days try in foods you think would be lease offensive. Keep a good diary. Some reactions only happen after two days and the pattern is only found after weeks. Do food rotation when you build up enough foods. Only eat the food once every four days. There are alot of alternative foods out there. Check a local health food store for millet and other alternative flours, turkey franks (no nitrates). Look for alternatives. Have heart you will be able to get through this. We also looked for a good vitamin from the health food store(no dyes or junk). We also did cleansing (liver and others) when you get futher down the road. There are alot of alternative recipes out there. Write or e-mail me with more questions. Good Luck.
On Feb 13, 2002
Well, our appointment is tomorrow.
(Our original appointment got moved so that the allergist could do some additional "research and consult with some other people" about some questions we had...)
In the intervening week, we had an anaphylaxis episode that we suspect may have been to paprika, of all things, and our daughter seems to be breaking out into hives every time we feed her... its as though she is becoming sensitized to ANYTHING that we feed her very much of. We'd like to rotate foods, but the only complex carbohydrates on the table at this point are amaranth, arrowroot, cassava, quinoa, and potato, and most of them are not suitable for use by themselves if you use them for things like muffins and pancakes (that a preschooler will really eat).
It would almost be a relief for the allergist to put her on an elemental diet for a while. It seems like such an awful thing to say, but we are losing a lot of hope right now. We thought we had things under relatively good control (even with the six allergies we knew about) and in the last six weeks, we have had about seven reactions- one of them life-threatening. If they can't RAST for paprika we'll have to skin test in the hospital. That one we have to have an answer for- because anything that doesn't have pn in it has "spices" on the label. Ha! There goes the last few packaged food items.
On Feb 20, 2002
Well, we got very few answers. We had four pages of questions, but got very few answers. Frankly, we sort of expected as much. We were told that cross-reactivity is pretty rare... well, thanks, but we knew that already!! Statistically, our child is an anomoly to begin with, in case our allergist hadn't noticed this yet (multiple severe food allergies)!!! Grrrr.
Anyway, he wants us to reintroduce apple, dairy and rice (all of which she has CAP RAST results indicating class II level of antibodies to). He feels that nothing short of pretty gross clinical symptoms is enough to eliminate a food. With respect to that, he doesn't think that the class II wheat numbers are much of a problem.... even though we explained that our daughter vomits within about forty minutes of ingesting even small amounts of wheat (a few graham cracker crumbs, for example). I am vehemently opposed to taking the attitude that she will just have to live with it until she can tell us more specifically what her symptoms are. I also know what I have seen, and I am far from a hysterical mother- I spent over ten years of my life being trained to make detached observations of subjective phenomena when doing animal research, Dammit!!! I know about crossing that line. It IS possible to accurately report more subtle symptoms in a young child if you pay attention to a child you know well and don't "feed" them what you want to hear.... anyway, (hopping down off of my soapbox, insulted and disgusted as my newly bathed cat [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) that's beside the point. (But its still "doctor mom" to you, bud. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]) He could not explain to me how it is mechanistically possible to have antibody levels like that and have NO clinical symptoms. Can anyone else?? What are the antibodies doing then, is my question, if you see what I mean. He doesn't know for certain if cross-reactivity in one food family makes it more likely in others, but I suspect that this may be because there just aren't enough of these kids to know about that sort of thing very definitively.
He doesn't want to test corn, rye, or millet... no sense asking for trouble was his philosophy. We have done another RAST. For paprika (YAY!! No skin test!), buckwheat (another suspected problem), and sesame. He does not think that eczema flare-ups alone are indicative enough of a food specific problem to be paid much attention.
[img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img] and one more thing- I got read the riot act about NOT giving epinephrine during that last reaction to paprika (?) Hmmmm... well, I probably had that coming. Good thing that dd's natural supply of adrenaline kicked in a bit when we mentioned the "H" word (hospital) and loaded her into the car at light speed.
We have a follow up appointment with the allergist in a week.... hope the RASTs are back then. (Yeah, right [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] ) And we meet the "new" allergist in March. (He will take over the practice in June, so we need to get to know him.) He did his MD at Cedars-Sinai, so that's a good sign. He also had a few paprika allergic kids down in TX when he did a peds rotation at UT, so we are hopeful that he will be able to help us.
So many many questions, so few real answers.
Reintroducing wheat-related grains is a mistake, mark my words. So far so good with the apple, though... either she's symptom-free with them, or she just likes them too much to care. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]