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Posted on: Thu, 09/08/2005 - 2:53am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Quote:Originally posted by AnnaMarie:
[b]Stuffguy, you are barking up the wrong tree. [/b]
[i]say it isn't so.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
Quote:[b] You might want to search out some of MommaBears posts regarding sending kids to school. Read what she's said about bans, and how schools can effectively deal with students with food allergies. (Just a thought.)
(Hint - look for threads with LOTS of pages of posts. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] )
[/b]
[i]say it isn't so. [/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Thu, 09/08/2005 - 2:55am
Anonymous's picture
Anonymous (not verified)

MB - are you asking permission? is that needed here? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
Erik, yes, you live a full life - with travelling and everything. And managed to find a gf that thought you were worth more then a peanut. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
And, I have to point out. I just noticed that I now have more posts than you. (MB, not much chance I'm taking over your spot. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] )
------------------
[b]***ALLERGY GODDESS***[/b]

Posted on: Thu, 09/08/2005 - 3:38am
MommaBear's picture
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Joined: 09/23/2002 - 09:00

[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum3/HTML/001018.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum3/HTML/001018.html[/url]

Posted on: Thu, 09/08/2005 - 6:33am
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by AnnaMarie:
[b]And, I have to point out. I just noticed that I now have more posts than you. [/b]
I'm changing internet providers so I'll be off-line most of this month, so you'll really pull ahead of me now [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

Posted on: Thu, 09/08/2005 - 8:20am
e-mom's picture
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Joined: 04/23/2000 - 09:00

Aaawwww now why did Stuffguy have to say such mean things to MB? [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
To answer this question: [b]Originally quoted by stuffguy: Quote:Three years. I've been away from here for over three years, and there still exists no decent transfer of information to the newbies. Folks from three years ago have changed their tunes and embraced reality, but they haven't passed it along to the new folks. Isn't that the point of having a forum like this?[/b]
Most likely because when we (and there have been many) have tried to explain to any newbie, they take it with a grain of salt. They are not going to truly understand until they go through the process themselves.
My son (and family [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] )is only dealing with one food allergy and it's actually been quite easy for us. My comfort zone is lax by many on this board. Erik and I have often said we somewhat mirror each other's comfort zone. So it's easy for me to be able to explain to anyone what [b]I[/b] have done to get to this point, however, everyone's situation is just so different based on numerous factors, i.e., age of person with allergy, severity of allergy, family's acceptance of handling the allergy, schools working with us to form a "safe" environment, this list could go on and on.
Make sense?

Posted on: Thu, 09/08/2005 - 8:28am
Gilli011's picture
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Joined: 12/05/2004 - 09:00

Erik,
I just want to say that as a relative newcomer to this allergy, (2 dds diagnosed in the last 7 months), and worried mom, I always find it comforting and reassuring to read your posts and hear that this allergy is not the end of the world. It's great to hear from adults who have delt with this their whole lives and lead full active lives....it reaffirms that my girls will be ok.
Thanks, Gilli

Posted on: Thu, 09/08/2005 - 9:35am
ajgauthier's picture
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Joined: 04/13/2005 - 09:00

....oh my oh my oh my....
Very interesting insights and opinions! And honestly, I think every single one of them is valid.
Some of you may have seen my posts on here before, I am an adult PA/TNA who has grown up with the allergy since 18 months old. I grew up in a time when Carter was president and peanut oil was used in school cafeterias. I was the only person anyone knew with PA/TNA. I was the only person in my school. I was the only person in residence halls at my college (out of 2500 residents). I've had severe near-death reactions, I've had local contact reactions from leaning on a desk where someone else ate peanut butter, from using a phone a secretary used who was eating M&Ms, or airway reactions from my own sister who came into the car with a bag of roasted peanuts. I've had my share of accidental reactions, on either my end for having a too-lax comfort zone or from mis-information from labeling or friends parents.
That being said, some of what stuffguy has said resonates with me. Let me preface my comments though, with the notion that I do not have any PA kids, but if I did...my attitude might change. It's one thing to have the allergy yourself, learn all the lessons, and live almost carefree of it everyday than to have a child with PA who is out of your sight 6 hours of the day. My own comfort zone and the comfort zone of my PA child would be different. I do think that the "newer to PA" posters on here have a very tight comfort zone, and for a very good reason...THEY ARE LEARNING. That is what they are here for! :-) THAT is the reason why I post 'lessons learned' and try to contribute to the community. I guess the largest debate here is about "peanut free schools" I believe in "peanut free classrooms" and "peanut free tables". But for the whole school/cafeteria? well...I'm on the line there. I do understand that all some parents can afford is PB&J. I don't want to tackle that debate! (don't even get me started on airlines, buses, and trains) But, my ultimate point is about comfort zones. I think some on here have already pointed out that their comfort zone has changed over time...as stuffguy pointed out. It will continue to fluxuate as your child gets older and becomes more independent. Then, their own comfort zone will fluxuate. They may have a reaction, it happens. But yes, stuffguy, it is imperative that they know what it feels like and how to react correctly! Again, THAT IS WHY PEOPLE ARE HERE...it's a SUPPORT COMMUNITY...not a place to come in and say this, "To be blunt: You are ignorant, arrogant and naive. You have no idea what you're talking about, yet you place yourself in the position of making life and death decisions for your children based upon your own knowledge."
The "you are ignorant, arrogant, and naive" could be true for many newcomers, but, THAT IS WHY THEY ARE HERE...to learn about the allergy, to gain wisdom from us who have lived through it, who have older children and can give advice how to handle social situations, to swap new information on products and recalls.
I think as Adele pointed out (and also others), you cannot trust younger children to monitor their own allergy. You can preach to them til you are blue in the face, but not every child can really understand the severity of taking food from anyone but "mom and dad". For myself, I remember a reaction from when I was 4...from that point on...it really set in not to eat food from anyone but mom and dad. That took care of it. So...in a way...stuffguy does have a point about "over sheltering"...but that is not to say that I wouldn't "over shelter" a PA child if I had one myself.
So - to me, everyone's feelings and viewpoints are valid, and by expressing our viewpoints in a NON-CONFRONTATIONAL WAY (lol...I guess the caps was confrontational...anyhow) we can learn from each and support each other through the allergy.
Phew! carry on...
Adrienne
------------------
30-year old survivor of sever peanut/tree nut allergy

Posted on: Thu, 09/08/2005 - 9:54am
Anonymous's picture
Anonymous (not verified)

Quote:Originally posted by stuffguy:
[b]Three years. I've been away from here for over three years, and there still exists no decent transfer of information to the newbies. Folks from three years ago have changed their tunes and embraced reality, but they haven't passed it along to the new folks. Isn't that the point of having a forum like this?
[/b]
Obviously there has been a transfer of information - otherwise how would anyone have changed their tunes and embraced reality? (Whether it's been done in a *decent* manner is a matter of opinion, I guess. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] )
When a newbie comes here, do you expect we should tell her what she should or shouldn't do? We make suggestions. We answer questions. But no - we don't tell them they are wrong.
If you randomly selected 5 pa parents on this board (ignoring all us adults with) you would probably get at least 4 answers on how they deal with specific situations. But one question I would expect the same answer to is: Do you feel your child needs to be educated about their allergy to protect themselves? They would all answer yes to that. I believe they all do it too. Not all in the same way - but, it is a very long slow process.
There's a thread about how to teach your child about using their own epi-pen. People start teaching their children at an age when they would not be left alone - and therefore should never have to inject themselves. But, that's better then when I got my first ana-kit. It was a *here ya go - good luck*. These kids are taught - and practice - and teach others.
So, please, don't pop in every few years just to criticize that things aren't done the way you feel are right. At least stick around and be regular if you want to criticize. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]
And by the way - maybe you should thank some of these parents. Do you think companies like DARE and Chapman's have gone to all the expense and trouble of being peanut free, getting their product tested, and labeled as peanut free for you and me? I don't think so. It's done for the kids - at the demand and pleading of the pa parents. You and I - we get to enjoy the benefits of their hard work.
So, be nice. Say thank you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
*********
Again, I will say thank you to all the parents that have made my life so much easier.

Posted on: Thu, 09/08/2005 - 12:52pm
erik's picture
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Joined: 05/15/2001 - 09:00

Quote:Originally posted by Gilli011:
[b]Erik,
I just want to say that as a relative newcomer to this allergy, (2 dds diagnosed in the last 7 months), and worried mom, I always find it comforting and reassuring to read your posts and hear that this allergy is not the end of the world. It's great to hear from adults who have delt with this their whole lives and lead full active lives....it reaffirms that my girls will be ok.
Thanks, Gilli[/b]
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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