Advice for the Parents.. One Man\'s rant..

Posted on: Mon, 05/20/2002 - 9:48am
stuffguy's picture
Joined: 05/20/2002 - 09:00

p[url=""] /p
pI finally wrote this down today, and figured I'd share it with you folks who are here gathering information. If you agree with me or not, it's still more information to aid you in your decisions. /p

Posted on: Mon, 05/20/2002 - 11:14am
n5vox's picture
Joined: 04/17/2001 - 09:00

You know - in a lot of ways what you said is true... I would love to know tho - if when you sit next to someone eating peanuts - are you unable to draw a deep breath and feel that tunnel closing? Do your eyes swell shut just from smelling a peanut butter sandwich? If the answer to those questions is yes and you still stand by your statement - then I congratulate you. If the answer is no or not seriously - then I wish that you would think hard before giving the "non PA" society more ammunition that can harm our efforts to keep our kids safe. I have always taught my son that the world will not be a peanut free place and that the allergy is his and not his neighbors, however, if I can keep my son from having an attack by keeping peanut butter out of his classroom - then I will do everything I can to see that happen. My philosophy is that my child is at school to learn - not to eat. We all have our opinions and I am not trying to rag on you for yours - I guess I really just wanted to find out how allergic you really are. Ingested, Contact, Inhaled? Just curious. Thanks. Amy

Posted on: Mon, 05/20/2002 - 11:57am
B G L's picture
Joined: 06/03/2001 - 09:00

Hi Stuffguy,
I just tried to access your site and came up with an unknown address. I'd really like to read your opinion about pa.
We have a son w/pa. He is touch and inhaled sensitve. He just stays away from unsafe foods and people who just "don't get it".
Well stuffguy I was finally able to read your post. I edited what I had written because it was a little harsh.
[img][/img] School must have been a terrible and frightening place for you. As parents and children with pa we are trying to create a semi-safe learning environment for our children and ourselves.
Example: WASAL testing in our state: Snacks are always given before testing so that students can concentrate on the test instead of their hunger. If the snack contained pa I'm sure YOU can imagine how this would affect his test scores. You probably were not given this kind of consideration when you were in school. (Thank God for 504 plans)
I guess I'm tring to understand how you came to the angry place you are in. You see Stuffguy, you are exactly why we are standing up for our kids. Why we calmly and with as much patients as we can, educate everyone to the severity of this allergy. Just as we as people have compassion for all people with special needs in our school system, mental, physical, emotional, learning and other dissablities, and make the accomodations nessessary for their safety and comfort, so we all need to consider pa and it's DEADLY ramifications with the same compassionate consideration.
Because I will practice this same consideration I know that my son won't go through life with the huge chip that you carry everyday. [img][/img]
[This message has been edited by B G L (edited May 21, 2002).]
[This message has been edited by B G L (edited May 21, 2002).]
[This message has been edited by B G L (edited May 21, 2002).]

Posted on: Mon, 05/20/2002 - 9:39pm
stuffguy's picture
Joined: 05/20/2002 - 09:00

Extent of my allergies? Well, it's a complicated thing, and doesn't seem to be based on anything in particular that I can figure out.
Obviously, contact with any of the soft tissues causes a rather severe reaction, regardless of the concentration.. Contact with normal skin isn't an issue, but of course, I got the dry-skin with it, so that might just be some good luck. Inhalation of PB odors is unpleasant enough that I don't hang around it till it's subsided.. I don't recall it doing me any harm, but I don't beleive that I've ever sat next to someone eating a peanut-butter sandwich..
It seems that I've gotten more sensitive to this as I've gotten older.
Just so you know, I'm not knocking anyone's efforts to keep their children safe. What is there more important in life than your kids? If they are sensitive enough that they have a reaction before the uncomfortable "leave this area now" feeling, then I'm truly sorry. That will make life now and forever difficult. Avoiding locations with peanuts gets harder as an adult (notice the number of bars and restaurants that serve peanuts, and encourage shell tossing?).
The above ranting was just my own little take on the subject, and an attempt to share what has kept me alive, and functioning. I thank my mom for the paranoia that she instilled in me just for that reason. And it's this paranoia, not any of the sheltering that serves me in good stead now..
(Again, not knocking the peanut-free school.. That would have rocked.. I'm just afraid it would have made me less wary)
Not trying to stir-up crap. Just adding an experience..

Posted on: Mon, 05/20/2002 - 11:45pm
n5vox's picture
Joined: 04/17/2001 - 09:00

Thanks for answering my questions. Everyone will have their own way of dealing with this allergy and I do know that awareness is the best way to prevent problems. Maybe they will hurry up and get the TNX-901 approved and ready for use and all of us can breathe a little easier! Amy

Posted on: Tue, 05/21/2002 - 12:22am
smack's picture
Joined: 11/14/2001 - 09:00

As long as you don't knock the peanut/nut-free schools, I think your message is important. We can all learn from people that are adults living with PA.
Peanut butter is messy, sticky, and smelly. Kids are more sensitive than in your day it seems, more react to smell. I like the fact I can go shopping while my kids are in J.K. and don't have to worry about getting a phone call to come quick because my son is having a reaction.
The younger grades are important since kids are not as vocal and able to describe what they are feeling if they were to have a reaction. So many are sick all the time, sneezing, wiping their noses, sniffling, coughing, upset stomachs, this could be a reaction and the teacher wouldn't even know it(just thinking the child has a cold/flu).
Anyway, I think the grown-ups living with PA are an important part in helping us parents realize our kids will be alright.
And, a little paranoia is always a good thing in protecting one's self, and others [img][/img]

Posted on: Tue, 05/21/2002 - 12:31am
Going Nuts's picture
Joined: 10/04/2001 - 09:00

Keep an epipen in your car? Bad advice my friend, as both cold and heat will destroy it.
I don't totally disagree with the spirit of your argument - I teach my son to live in the real world, and the real world is not peanut free. But until children are old enough to understand this, they deserve our protection. I don't think peanut free nursery schools are at all unreasonable. Did you ever see a bunch of 2-5 year olds eat? More stuff ends up on the chairs, tables, toys, etc. than in their stomachs. Our children deserve protection from that. As for your comparison to children in Africa being taught to avoid the lions - they also ride on their parent's backs, or are in the company of adults for quite some time. They aren't sent out into the bush at the age of 2 to fend for themselves.
Place a drop of PB on you inner lip? Please! My child doesn't need a trip to the ER to understand the danger. That is just plain bone-headed.
You don't mention how old you are, or whether you have children yourself. I can only imagine how difficult it must have been growing up with this, before there was any awareness. But just because you had to face "Baptism by Fire", doesn't mean everyone should be doomed to. This is the kind of thinking that still has medical residents working 120 hours a week, just because their predecessors had to do it. When we have more knowledge, we should use it!

Posted on: Tue, 05/21/2002 - 1:57am
Carefulmom's picture
Joined: 01/03/2002 - 09:00

Stuffguy, "information to aid you in your decisions"? I went to the link and didn`t see any information at all, just a display of ignorance. What a pathetic person you are, to have such a need to show people how little you know. Try reading a medical text, and you would cringe with embarassment at the lack of knowledge you displayed.

Posted on: Tue, 05/21/2002 - 2:07am
anonymous's picture
Joined: 05/28/2009 - 16:42

While I can appreciate how you've managed to safely navigate living in the world of peanuts, I have real difficulty taking parenting advice from someone who isn't a parent. Assuming you are not.

Posted on: Tue, 05/21/2002 - 2:24am
Anna's picture
Joined: 07/20/1999 - 09:00

No problem, Stuffguy. Of course, you realize that whereas for your allergy, a bit of peanut on your lip might just cause swelling, for others, it can cause death.
If you're giving out medical advice, I assume you are taking responsibility--legally, ethically and financially--for any results of your faulty advice. By posting your article, you are in effect putting yourself in a position of responsibility.
If someone with a more serious peanut allergy should die or become permanently disabled or brain-damaged by oxygen deprivation after reading your 'advice' and not knowing any better, consider your role in the matter. Don't believe in how serious others' peanut allergies can be? Spend some time in an emergency room. I'm quite serious. If you plan to dispense harmful 'medical advice', at least volunteer to help out in an E.R., and watch what happens when an anaphylactic patient comes in. And then, if you please, revise your article. Until you take up this challenge, you might want to consider retracting your words before they come back to haunt you and/or someone is harmed by them.
[This message has been edited by Anna (edited May 21, 2002).]

Posted on: Tue, 05/21/2002 - 3:21am
stuffguy's picture
Joined: 05/20/2002 - 09:00

Ok.. Everyone calm down for a second.
I'm not trying to kill off your kids, nor am I trying to be blatently irresponsible. And I am by no means familiar with the allergies of someone else, nor am I trying to knock how you're going about dealing with it.
In wandering around these boards, I've found lots of messages from people who, no matter their approach are concerned about this allergy. I'm just sharing what I've learned, and the experiences that have affected me.
The peanut-lip thing burns like hell. As does inhaling it. As does taking a bite of a cookie that's "not supposed to" contain nuts. All are things that I've experienced at some point in my childhood. And all are things that stick in my head as constant reminders to be careful.
Listen, I'm not knocking any of you. It just frustrates me sometimes how sheltering is used instead of education. I read a post elsewhere that said "trust yourself, trust your child" that showed me that I've got less to worry about than I thought.
I apologize for any misconceptions. A doctor I don't claim to be. Up on the current state of medical understanding, I don't claim to be. Heck, I have never even heard of "TNX-901" though I'm about to google it to death.
What I do understand is what it's like to be a child with this allergy, and I do know which things were unexpected that almost got me, and I do know which things from my past constantly remind me.
I wrote the rant because the trend towards protection, not education was starting to both scare and annoy me. I shared it here, mainly because my readership is unlikely to care. Which, be it good, or be it bad, at least I found a group of people who care.
I'll edit the language in the article to take into account your respective feedbacks, and flames. Even those who think me an uneducated and underinformed individual, I appreciate the feedback..


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