Do I have an allergy or not already? !!!

Posted on: Wed, 07/25/2018 - 12:19am
toryadub's picture
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Joined: 06/14/2014 - 16:32

I am getting really impatient with this whole allergy situation here. As I have always thought of myself as having a mild peanut allergy. One so mild that I didn't have to worry about may contains, restaurant allergy info or ANYTHING. My mom even tried to immunize me to peanuts when I was little by feeding me some chips with peanut oil every once in awhile... My only symptoms to peanuts, was flushing, stomach cramps and diarrhea. The last reaction I had was when I was 10 and I did a peanut challenge where I ate half of a Reese's cup. My symptoms showed up a half hour later and they were mild itching of the mouth and a few dots above my lip. They end result was "I just had a sensitivity" . I'm now 16 so that was 6 years ago and I always eat may contains and my family eats peanut butter (until last year) and I've never had a reaction since I was 10. I recently got my prick test which showed up positive as usual, but I decided to get a blood test this time because to see just how mild my allergy is. According to the blood test and my allergist I don't have an allergy at all. She deemed my skin test a false positive. She said this happens a lot. It was the RAST test so I guess it's more reliable? Idk.

Anyways, up until about a year ago, before all of these tests, I stumbled upon these boards and read a lot. That SCARED me. I learned that just because your allergy is mild doesn't mean it can't one day become anaphylactic and kill you out of the blue. And that there can be false negatives on the blood test and all that dumb crap...
So out of my fear, I started avoiding may contains and even EATING OUT which I loved to do. So now I don't let myself have any of my favorite candy bars or eat at my favorite restaurants that "can't garuntee anything"...

And the peanut challenge is out of the question because because I have an irrational fear of anaphylaxis even though I've never even came ANYWHERE close to that point. And my mom keeps saying that's NEVER going to happen to you trust me. And I say how do you know? And she says "I just know". I want to trust her.

My point is, I don't want to NOT live my life to the fullest if I don't have to.
I just need a FOR SURE of something.
I have no problem not eating peanuts, it's just a HASSLE to avoid cross-contamination.
My family like hates me right now and gets annoyed when I don't want to eat something that may contain. They roll their eyes and yell "YOU'RE NOT ALLERGIC!"

I basically have one question that I just need a final answer that will make my quality of life better by 100%:
Am I allergic to peanuts or not.

I'm wondering if I've EVER had a peanut allergy...

Posted on: Fri, 07/25/2014 - 12:29am
toryadub's picture
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Joined: 06/14/2014 - 16:32

With my experience, (NOT yours) what would you do?
Would you avoid things like I do or eat may contains and act like it's no biggie? (As that has worked for me for years until I became a hypochondriac about this)

Posted on: Fri, 07/25/2014 - 8:28am
smithdcrk's picture
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Joined: 03/13/2014 - 16:46

As if it not enough to be dealing with all the teen pressures, you just had you food world rocked. You want to make the best decison to protect your health, but all this is hitting you like a cyclone. It's great to be conservative and make thoughtful (rather than impulsive) choices. Your having a low RAST is good news. But with your anxiety level, maybe you need more information?
There are two kinds of blood tests: Traditional RAST that looks at your allergy to peanuts as a whole and a second more detailed study (uKNOW see https://uknowpeanut.com/) that looks at your sensitivity to specific proteins of the peanut (5 in all!). Your chance (and type) of an allergic reaction is measured by which of the peanut proteins you are most sensitive to.
The uKnow test for peanuts is more expensive than traditional whole peanut RAST and insurance doesn't always cover the cost. Perhaps a compromise?
1) Did the lab keep your blood samples? My daughter's RAST results once were outside what the Doc expected. He made the Lab rerun the test and prove it was the right patient. Same numbers. Yikes! But now we knew they were correct.
2) If the uKnow test is out of the budget, find out how long you have to wait for a second RAST test to be covered by the insurance company.
Blogs are good, but you need medical information too. Visit http://www.foodallergy.org/resources/
Sit down with your parents and make a plan.
Until the RAST can be redone, or repeated or you can try uKnow maybe just for that time while you wait for results you can avoid peanuts.
->If the numbers come back low, you agree to the challenge.
To relieve your anxiety about a challenge, request to do the test in the doc's office.
->If the numbers come back higher, time for a parent, doctor + you conference. There are RAST levels that do indicate that a challenge could still be ok. Ask her what are those levels and where yours fall on that scale.
My HS daughter has gone through something similar. For years, Tree Nuts were forbidden. She had reacted mildly TN at home when she was younger. Afterwards, her skin test had been inconclusive (her reaction to the peanut sample on the same arm went ballistic so her arm got a wash down before the test could be called), the RAST blood work showed low risk. Two more RAST tests, 18-24 months apart, showed her TN numbers dropping, so the doctor proposed an oral challenge. The doctor didn't recommend it the first time it dropped, he waited for the second test to confirm.
It was the scariest day of our lives.
For her entire life she had avoided ALL tree nuts, now she was going to have to take not just one tiny bite, but lots of bites.
My daughter's food challenge advice: Accept the nervous feelings, and remember to breathe. You wouldn't be there if the numbers were not low. Bring something to the doc's office that you love like a favorite book, video game, or movie. You have had candy bars with peanuts, choose a favorite. Do the challenge in style.
If you ever are going to have a reaction, the docs office is the way best place!

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