Adult Onset PA

Posted on: Fri, 10/12/2001 - 3:52am
Yellabare's picture
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Joined: 10/12/2001 - 09:00

I am 28 years old and believe that I have PA. I have never had a problem with this before. I had a terrible outbreak of hives and had some breathing problems which sent me to the ER. I have been on the internet for a week now and cannot find much about adults becoming allergic. THe one thing that I found said that only 1% of adults can become allergic??? Most of what I am seeing is in children. Has this happened to anyone else?? Do you know why?? I am continuing to have break outs even though I have avoided peanuts. I am understanding that I could also be allergic to all other types of nuts/legumes. I have been to my family physician and he said that once you have a hive breakout, it could take you as much as a month or more to totally get over even if you avoid what is causing it. HELP!!!

Posted on: Fri, 10/12/2001 - 4:42am
Adrienne_J's picture
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Joined: 10/09/2001 - 09:00

hi there - my sister had a similar reaction in her late 20's as well...she now cannot eat straight soy (tofu/etamame) and absolutedly cannot have pine nuts...now she just tries to stay away from nuts in general...just given my PA...
hope this helps to let you know you are not alone!

Posted on: Sat, 10/13/2001 - 6:56am
river's picture
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Joined: 07/15/1999 - 09:00

My sister-in-law became anaphylatic to nuts and many other things in her 30's. Also, I was talking to a fellow who was suddenly over-come by a anaphylatic reaction while eating peanuts at a party, (this had never happened before.) He was rushed to the nearest drugstore for Benadryl, which got it under control. Anyway the bottom line is that it seems to be happening.
It's important that you go see a qualified allergist to find out exactly what it is you may be allergic to. Your family doctor sound useless.

Posted on: Mon, 10/15/2001 - 12:10am
Yellabare's picture
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Joined: 10/12/2001 - 09:00

Quote:Originally posted by river:
[b]My sister-in-law became anaphylatic to nuts and many other things in her 30's. Also, I was talking to a fellow who was suddenly over-come by a anaphylatic reaction while eating peanuts at a party, (this had never happened before.) He was rushed to the nearest drugstore for Benadryl, which got it under control. Anyway the bottom line is that it seems to be happening.
It's important that you go see a qualified allergist to find out exactly what it is you may be allergic to. Your family doctor sound useless. [/b]
River,
I agree that my physician does not sound real concerned. I am going to be calling an allergist today. As I am posting this my upper lip is swollen. The wierd thing is that I have syated away from peanut/peanut products. I am wondering if I am also allergic to all other types of nuts. Thanks.

Posted on: Tue, 10/16/2001 - 12:44pm
jrizos's picture
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Joined: 05/30/2000 - 09:00

I worked on a floor for transitional care. most of our patients were at least 60. One of the nurses there told me a patient on the floor had a reaction to peanut butter, it was his first, and died right away. He was coded of course but they could not save him. I also ran into a nurse on that floor in her 30's who had an anaphlactic reactioon to red die in a hard candy. It was the first reaction she had. She said benedryl did not work and because she was working and could not be relieved untill hours later. it was too late for the epi. they had to start an iv and they were able to stop the reaction.

Posted on: Sun, 02/12/2006 - 1:18pm
Adele's picture
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Joined: 01/31/2005 - 09:00

Hi Steph,
I was diagnosed with adult onset PA about a year ago....and I'm a grandmother! I also ate peanuts but was probably mildly allergic for years before being diagnosed when I had an anaphylactic reaction.
It really does get easier but it takes a while. I think you go through stages...denial, anger, etc. It's a life-changing diagnosis.
At first, you feel like you can't eat anything. Then you realize that the 'safe' things are basic foods. Fruits, veggies, etc. I don't know how you found out that you are PA - but I found out by having an awful reaction. I don't want to go through that again, so it keeps me on the straight and narrow. Eating risky food just isn't worth it.
You'll find your 'comfort zone'...which is what you feel safe eating - and how safe you feel when you're in the proximity of peanuts (flying, ball games, etc.) You'll find out if you are really sensitive - which might mean you have to be careful about even smelling peanut butter - or you might find out (like me)
that you can smell it but can't eat it.
There are lots of peanut-free foods out there. Spend some time reading the posts here...especially 'Manufacturers (food) safe & unsafe'. You'll learn what companies you can trust. For example, I know I can eat at Burger King and that Hershey's Milk Chocolate & Special Dark bars are safe! (in the regular size - not the king-size. ALWAYS read the label)
You aren't the only one that has to deal with this. There are lots of us - all here to help you if you need it.
You'll be ok.....it'll just take a while to learn how to deal with it. You might also check out FAAN's web site at [url="http://www.foodallergy.org."]www.foodallergy.org.[/url]
Adele
[This message has been edited by Adele (edited February 13, 2006).]

Posted on: Sun, 02/12/2006 - 3:27pm
MichelleR's picture
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Joined: 05/14/2001 - 09:00

Hi,
I am 26 and became allergic to peanuts in 2000 when I was 20

Posted on: Sun, 02/12/2006 - 10:28pm
Adele's picture
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Joined: 01/31/2005 - 09:00

Steph,
Do you eat in restaurants? I have no choice as I travel for my occupation. I use a chef card and it has made life SO much easier. If you tell the wait staff in a restaurant, 'I have a peanut allergy' it seems they all say the same thing...'there aren't any peanuts in this'. The chef card spells out what you can't have and my card also covers cross contamination issues. I used a Chef card I found on line but added a few things. I printed it on a bright orange paper and had it laminated. I hope this helps.
Adele
--------------------------------------------
CHEF CARD
To the Chef:
WARNING! I am allergic to peanuts. In order to avoid a life-threatening reaction, I must avoid all foods that might contain peanuts, including:
PEANUT OIL
ARACHIS OIL
PEANUT FLOUR
PEANUT BUTTER
PEANUT
NUT PIECES
MONKEY NUTS
MIXED NUTS
MANDELONAS
GROUND NUTS
ARTIFICIAL NUTS
GOOBER NUTS
MARZIPAN
NOUGAT
If any of the above are served in your kitchen, please ensure any utensils
and equipment used to prepared my meal, as well as prep surfaces, are
thoroughly cleaned prior to use. Thanks for your cooperation.
-------------------------------------------------

Posted on: Mon, 02/13/2006 - 12:47am
Anonymous's picture
Anonymous (not verified)

I think we almost have enough members of the adult on-set to start our own club. Maybe I'll design some t-shirts. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
********
Hi Steph.
I also developed allergies as an adult. I was in my late 20's and had two small kids. All of a sudden peanutbutter and sesame seeds decided they didn't like me anymore.
As for your food *choices* not being fair to your kids - well, this isn't your choice. It is unfair - but it's not a choice. And your kids will survive. Mine did. I had two kids in elementary school when I developed my allergies. One of them was a peanutbutter fanatic. The kind of kid that won't eat anything else. And yet - he survived. And he doesn't hate me because he grew up with no peanut butter. My third child was born after I developed my allergies - so he doesn't really know anything different. Although, he was absolutely thrilled the first time his dad took him to Burger King and he got a bun with sesame seeds on it. My husband had nightmares - but my little guy sure was happy. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
There are some decent pb substitutes available too. My favourite is [url="http://www.peabutter.com"]www.peabutter.com[/url] I even bake with it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] You can also try sunbutter, soynut butter, pumpkin seed butter .
*********
You stated in your post that you are very fearful and overly careful with the products you are eating.
First of all - you can NEVER be to careful. Even products that I eat regularly - I read the label in the store, read it when I'm putting it away in my cupboard, and read it again when I open it to eat. I used to think this meant I was paranoid - but actually, it just makes me a [i]somewhat[/i] normal person with food allergies. Lots of us read and re-read the labels.
Now, about the fear. I'm guessing you had a very serious reaction. Probably anaphylactic. It took me quite a while to get past the fear. At least a few years. I was terrified to ride the bus, go away on vacation, go to an amusement park. I was terrified of everything. I was constantly overwhelmed with the *what ifs*. Then, one day, I just took control again. I realized that as long as I was careful, I would be fine. So I'm careful.

Posted on: Mon, 02/13/2006 - 5:21am
dgood's picture
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Joined: 03/27/2004 - 09:00

In regard to your children, I've found there are peanut butter substitutes that children really love including Sunbutter, Soybutter and Peabutter. Most kids wouldn't even notice a difference with jelly. My daughter has the allergy but we all live like we do because of her.
There are so many "safe" foods out there that after a while, you won't feel anyone is missing much.

Posted on: Sun, 02/26/2006 - 9:05am
jbillinois's picture
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Joined: 02/26/2006 - 09:00

This happened to me as well! I never had any allergies, airborne or food, and I even remember being proud of that fact. Then I started getting hives and having other unpleasant symptoms in my 20's. My hubby, who was severly allergic to mold & grass, kept telling me he thought it was a food allergy, and I brushed it off. Even after a couple ER trips due to lots and lots of hives, I still didn't get tested. It wasn't until my first anaphylaxis episode, while driving, that I finally got tested. You could have knocked me over with a feather when they told me it was soy & peanuts, especially since I'd had just eaten a reese's peanut butter cup. You should have seen the doctor's face when I told him that--I wish I had a camera with me! I had no idea that it was soy & peanuts. My anaphylaxis happened after eating a bagel & cream cheese. Who knew soy was in so much? Why do twinkies contain soy protein? Or ice cream or bread or juice drinks or pop or any other number of things?
I've learned to be extremely careful, and to keep a sense of humor. If I can't eat, I don't. I end up with fresh fruit or sometimes even a dry bowl of lettuce. But, I'm in great shape, and I'm healthier than I've ever been, since I really can't eat anything bad.
I have discovered one upside--I can't eat airline food!

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