? about milk allergy

Author:
Updated:
Original:

Well it looks like ds#2 has added milk allergy to his list... We had him tested a few weeks ago and he came back positive for egg but we didn't do milk. We are also avoiding nuts and peanuts and a few other things as ds #1 is allergic. Well yesterday he touched some milk that had spilled and got it on his leg and face and hives appeared. They went away after I wiped it off and about 20 minutes. So I think its pretty clear that is milk allergy right? We are going to add milk to the list of things to get tested when we do the blood test in January after his first bday. So I have a few questions for anyone else out there dealing with milk allergy-do you avoid all milk products and things with milk in them??? He has had crackers and a few other things with milk products in them and has not had a reaction so I am confused. Can he just react to the actual milk and not the other stuff? Also, do you think it is likely that if he ingested milk he would have a very bad reaction considering the hives after only touching it? And last question, how likely is it to outgrow a milk allergy? Thanks in advance to anyone that has any advice. I'm just overwhelmed a bit finding out we have yet another thing to avoid...

On Nov 13, 2006

I'm dealing with the exact same thing. DD is 11 months and egg and dairy allergic. We are strictly avoiding all dairy (casein, whey) for her. I was told she has an 80% chance of outgrowing dairy, so I am being really careful. Same as your DS, my DD gets hives with even minor contact. Her CAP RAST was low - 1.56 -. If I were you I'd strictly avoid until you see the allergist, then see what he says. Make sure you have an epi Jr. because as I've been finding out, its WAY harder to avoid milk contact than peanut. (think sippy cups splattering at every play group , grocery cart, table surface, etc)

Good luck!

On Nov 13, 2006

Thanks for the advice, we have talked to the allergist and she recommended avoiding milk but said if he has tolerated crackers etc with milk in that I can continue to give him these. It just makes me nervous cuz I'm afraid this will prevent him from outgrowing. Just wondering, can you give me some ideas of snacky stuff and in general the things that you feed your child, it just seems like milk is in everything! TIA

On Nov 14, 2006

Anotehr question-what kind of margarine do you use? I found some light margarines that don't contain whey but they all say not suitable for baking...so what do you use for this? TIA

On Nov 14, 2006

I have introduced foods very slowly, so my list is pretty short:

snacks- plain cheerios, gerber veggie puffs-sweet potato flavor, gerber wagonwheels- apple flavor ** read all gerber labels, some of their wagon wheels contain milk**, homemade bread toasted (I have a great milk- free recipe if you need it)

meals- soft pieces of baked sweet potato, shredded cooked chicken, white rice, gerber apple, pear, and carrot pickups, ground beef crumbled small, pancakes (I have egg&milk free recipe), steamed brocolli and cauliflower, applesauce, rice cereal, oatmeal, and still some babyfood jars of fruit.

I think thats about it so far. Luckily my DD eats whatever I put in front of her happily. She has reacted to so many other things (bananas, green beans, peas, tomato, apricots, peaches) that I am keeping it simple for now. We are also avoiding soy so that makes it hard.

Let me know if you need me to post any of the recipes I mentioned.

On Nov 14, 2006

I think we were posting at the same time!

I don't use margarine for her - haven't found a soy free , dairy free one. Don't even know if that exists! I mostly use olive oil or canola oil for cooking and baking.

On Nov 14, 2006

Fleishmann's tub and stick margarine are both milk free. The soy is processed oil - never been a problem for my son. Just make sure you get the ones with the Kosher U symbol, as they make other versions that do contain milk.

On Nov 14, 2006

For margarine we use the Fleishman's Unsalted sticks - they're dairy free, but not sure about soy. I haven't called about shared equipment with milk. They seem to be a little more like butter than those whipped tubs for baking.

Rebekah

On Nov 14, 2006

Our DD reacts to contact with milk. She is ana. to Dairy so we strictly avoid it. (allergic to peanuts and eggs as well)

I use Fleichmann's Unsalted Sticks to bake/cook with. They have been discontinued here on the East coast HOWEVER, they are still on the shelves in my area at a few places. I have been stocking my freezer. With some luck you might be able to find some in your area.

Willow Run may be an option for you. I have not used it yet but plan on trying it with some of my holiday cookies.

I have used Butter Flavored Crisco in place of maragarine for a LOT of my baking and have gotten the same result.

I save the Fleichmann's for things where shortening just won't work.

On Nov 14, 2006

Thanks so much for all of the replies-Jackson's mom, sounds like we are in the same boat. Ds has reacted to numerous things including peas, green beans, apricots...the list goes on. Thanks to everyone for the suggestions. I hope to find the fleishmans margarine here, I am on the east coast though so I will have to look asap. Thinking about xmas cookies-do they sell dairy free choc chips in the stores or do you have to order them online? again thanks in advacne! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Nov 14, 2006

We use Great Value(Walmart) Semi-Sweet chocolate chips or Giant brand Semi-Sweet without a problem.

On Nov 14, 2006

We use President's Choice, which is a Loblaw's brand: [url="http://www.loblaws.ca/en/default.asp."]http://www.loblaws.ca/en/default.asp.[/url] You might check to see if it's carried in a store near you.

On Nov 14, 2006

Thanks again guys, I knew I could depend on this place for good advice! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

On Nov 14, 2006

My DS is also dairy allergic. We strictly avoid any may contain milk items in hopes that he will outgrow. I can't see feeding him [i]anything[/i] with milk in it...even if it appears he is not reacting. It is what is going on [i]inside[/i] his body that I am concerned about. Of course, this is MY comfort zone for him. Just some food for thought....

I think it is hard to say whether or not your sons next reaction might be bad. The thing with allergies is that you never, never know what will come next. This is why we (as in my family) choose to practice strict avoidance. We are hopeful our son will outgrow, I know many dairy allergic children do so!

On Nov 15, 2006

There is no evidence to prove that strict avoidance helps to outgrow. Our PA and TNA DD also has dairy and egg allergies. We have been strictly avoiding all of her allergens her entire life. She had an egg challenge a few years ago and almost passed (mild stomach upset). Despite strict avoidance, last summer she had an egg challenge which she failed miserably (stomach upset and pain, severe nasal congestion and sneezing). I'm not sure that strict avoidance didn't make her allergy worse. Some research these days seems to be heading towards exposure to small amounts as a treatment (sublingual immunotherapy).

We are still strictly avoiding, but I'm not sure why. Habit? Fear?

On Nov 15, 2006

Do those of you with dairy allergic children keep your house dairy free? Of course our house is completely nut and sesame free, but now that the baby has egg and dairy allergies, I am finding it hard to get my comfort zone adjusted! We no longer have eggs around, although my DS (not egg or dairy allergic) still eats pasta that is may contain egg. Not a big deal. My problem is with MILK. DS drinks milk and eats yogurt & cheese daily. They are a big part of his diet. I cannot restrict him, he is already restricted enough (PA, TNA, Sesame, soy) .

I have a rule that food and drink are never carried around - ONLY at the kitchen table and we wash up after. But DD still occasionally gets mystery hives. I'm sure its from milk traces.

How do you all deal with this?

On Nov 15, 2006

A couple of follow-ups here... I wrote Con-Agra in horror at the idea that they might be discontinuing Fleishmann's anywhere. Here's how they responded:

Your communication concerning our Fleischmann's Unsalted Spread Stick was most welcome. We appreciate comments and questions from our consumers. We are happy to inform you that our Fleischmann's Unsalted Spread Sticks have not been discontinued. We do not have any indication that they are in the process of being discontinued for any regions in the United States. Keep in mind it is up to the retail stores to determine what products they will have available. We would also like to take this opportunity to invite you to visit our collection of recipes at: [url="http://www.conagrafoods.com/recipes/."]http://www.conagrafoods.com/recipes/.[/url] You can also sign up to receive the latest information on our recipes from our brands and useful tips for your kitchen. Navigate to the link above and go to the "subscribe now" icon on the left side of the page. We appreciate your interest in ConAgra Foods. We will also be sending a response via regular mail. Thank you for taking the time to share your comments with us. Sincerely, ConAgra Foods Consumer Affairs

****************

So...try a different store!

Regarding the keeping the house allergen-free...I don't think that's practical. My daughter does not have any allergies so she drinks milk all the time and we encourage her. It's important for growth - my son is on the "malnourished" growth chart as a result of his allergies, so I'm not going to restrict foods from her I don't have to.

Of course, we keep peanut butter in the house too so perhaps you should ask other parents their comfort levels.

On Nov 15, 2006

One other follow-up... I did actually start a thread on the trace amount thing because I was surprised that this seems to be such a huge topic of conversation on this board. When I hung out here many years ago, people weren't quite as obsessed with "avoiding exposures" in forms that didn't cause reactions. I was curious if there was some study I missed that said these "exposures" lengthened milk allergy.

I haven't seen any studies that say that "trace" amounts of an allergen that's breathed or consumed without a reaction do anything to allergies. RAST levels are not predictive of very much. My son's have consistently fallen even though he has had many "exposures" over the years (and probably 1-2 reactions a year). However, they've never fallen below the levels where he might be testable - I think he's a Class 3 for peanut and milk right now. (Incidently, I've heard that Pharmaceia is recommendings labs stop using these class designations at all so parents stop brandishing them.)

The only think I *have* heard is that it can be good to increase the overall allergen load that an individual can manage to reduce allergic symptoms. This is in line with the study that found having a couple of pets can actually make people *less* allergic overall. The idea is that if you stretch the balloon and the body can juggle more allergens at a time, it's likely to be overall less responsive to any given allergen. This may be why kids "outgrow" allergies - their overall tolerance is larger simply because their bodies are larger and/or they have "stretched' their overall allergic tolerance, so the level of the reaction in the bigger balloon isn't enough to trigger an allergic response. The allergy is still there, but the threshold has moved up for everything. (That's why some kids may still react even after they've outgrown foods if their threshold is stressed by too many allergens at a time.)

We don't knowingly introduce trace amounts into our son's diet, but we do knowingly expose him to other allergic triggers (we have two cats despite his asthma and he tolerates them fine now).

On Nov 15, 2006

We do have a peanut/nut free home and have since ds #1 was diagnosed. He also has egg allergy along with ds #2 so we rarely have eggs in the house but I do have things with egg in them like cookies but this is only once in a while. We just found out about ds#2s milk allergy but I have no plans on making the house milk free. Of course we are going to keep it away from ds#2 and I will prepare things seperately for him if I need to but ds#1 loves milk, cheese, yogurt... and I do not plan to restrict him from having it. That is my plan for now and like with everything else we will see how it goes and works day to day...

On Nov 15, 2006

I am SO annoyed with ConAgra!!!! Back in June I was emailing and calling them about this. Their final answer was that it would not be available on the East Coast.

Thank You BriandBrinasmom for checking with them and getting the GREAT news!! I will have to call again and make sure it will still be available in my area but am very hopeful that it will be.

Sorry for the scare!

As for an allergen free home....DD is contact reactive to dairy. When we elimated all dairy from the house the mystery hives left too.

My stress level went down and MY sinus trouble is gone! We are nut and egg free too. DH *may* be allergic(GI) to eggs as well. He is dragging his feet about testing though.

This is what works for us, now. As DD gets older things may change.

Alicia

On Nov 15, 2006

Thanks for sharing how your families deals with the milk thing. I don't plan on keeping milk out of the house - just not practical or healthy for those of us not allergic. I am seriously becoming OCD about my kitchen surfaces though! I don't know how any restaurant can claim they don't cross contaminate things. I only have 4 people to cook for and its really hard to keep everything separate! Thanks again for all of your input.

On Nov 15, 2006

Quote:

Originally posted by JacksonsMom: [b]I don't use margarine for her - haven't found a soy free , dairy free one. Don't even know if that exists! I mostly use olive oil or canola oil for cooking and baking. [/b]

Mother's margarine (passover version) is dairy and soy free.

Cathy

On Nov 16, 2006

we have a dairy allergy here. we dont keep the house totally dairy free. we dont cook with dairy at all and we generally dont purchace foods that have dairy in it. but our daughter (no allergies) loves yogert for her snack at lunch and string cheese, so we have that and regular milk for her. but that is realy the only dairy in our house. with our son who has the allegy he can have some foods with dairy in it. like butter. it dosnt bother him. i know alot of people here ther children cant even have that, but john can . he can also have waffels they dont bother him. but basically every thing else does. oh some baked goods that has small amounts of dairy dont bother him. with us its realy just been trial and error! hisdairy allergy isnt as severe as others thoe. we buy alot of kosher foods because they dont mix dairy with meat. it makes it alot easier to go shopping

erin

On Nov 18, 2006

We dont keep milk out of the house with a 10 yo who is not allergic and a 6 yo who has multiple allergies.

In regards to hives and contact. Our son had that in the past, I think at around age 2 and 3 but does not appear to any more. When I reported this to our doctor he was not surprised and still said my son will "probably" outgrow his milk allergy.

In regards to trace exposures, I dont know any correct answers but I have never seen (and I've looked) any study that shows that total avoidance increases one's chances of outgrowing.

(I should add that per our doctors advice we do practice this)

In our case, our son is pretty sensitive so we just have always avoided all known allergens completely.

On the other hand, there are some interesting research studies at Duke and now at Johns Hopkins using desensitizatin and sublingual immunotherapy. Tiny, tiny amounts of the allergen under STRICT medical supervision are being given to induce tolerance.

there are also studies being done on early introduction of peanut in high risk children (those already sensitized to egg, or w/eczema or atopy) by Dr Gideon Lack

You can read more about these on the Food Allergy Initiative's website [url="http://www.faiusa.org"]www.faiusa.org[/url]

Go to the left hand column and click on "Update on Research"

FAI's mission is to find a cure or effective treatment of food allergy by 2010. They raise several million each year the bulk of which funds food allergy research around the world.

take care, Gina

Related