A \"Less Severe\" PA. A \"More Severe\" PA.

Posted on: Wed, 12/03/2003 - 4:13pm
MommaBear's picture
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Joined: 09/23/2002 - 09:00

Are there such things?

What studies are published on this topic?

What do *you* classify your child's, related person's, or your own PA as? On what factors do you base this?

How does the term "potential" fit in this picture? Does the term "potential" have anything to do with the classification?

Posted on: Wed, 12/03/2003 - 4:56pm
Booklady's picture
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Joined: 11/13/2003 - 09:00

My family feels my son's PA is mild to moderate. This with no medical background. I always feel the "Big One" (reaction) is just around the corner and live accordingly. I would love to read some studies on this. It's interesting that when they talk about my son, they forget that I get quite protective (like a Mommabear?! Ha)and remind them they probably wouldn't be so nonchalant if it was THEIR son in this situation. I keep telling them that all the little reactions could lead into a big one, but they just don't get it.
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Posted on: Wed, 12/03/2003 - 8:41pm
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Joined: 05/28/2009 - 16:42

Hmmmmm...When posting this question, another question pops into my mind.
Is there "mild" anaphylaxis or "severe" anaphylaxis? So assuming there is no such thing, my assumption has always been a PA is a PA. You can't go by moderate or severe. You either have it or you don't. And any food allergy can lead to anaphylaxis at any time. Therefore, one must always assume it is severe, IMO.

Posted on: Wed, 12/03/2003 - 9:29pm
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Joined: 05/06/2003 - 09:00

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[This message has been edited by StaceyK (edited October 21, 2004).]

Posted on: Wed, 12/03/2003 - 11:42pm
becca's picture
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Joined: 05/22/2001 - 09:00

I have been told by the allergist that there is no way to predict the severe reactions, so we need to treat it the same, with strict avoidance nonetheless. My dd's ingestion and reaction history might suggest to many that her allergy is "mild", however, and of course, I hope it is, even though I am very careful.
Statistically speaking, there are certainly folks who will not have anaphylaxis, but since there is no way to know who that is, it is sort of useless info!
One thing addressed when I listened to an allergist speak was the CapRast numbers. He had a scale and certain scores(higher ones) indicated more likelihood of actually reacting, but interrestingly, not the severity of the reaction. The severity, of course, is the greater the concern. If we knew for sure our kids would get a little itchy or a few hives, and only that, life would be alot less stressful. Too bad they cannot hone in on better testing for that sort of issue. becca
[This message has been edited by becca (edited December 04, 2003).]

Posted on: Thu, 12/04/2003 - 3:23am
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Joined: 06/09/2001 - 09:00

I think of "more severe" and "less severe" in terms of sensitivity, not in terms of reaction. Since my daughter has been around children eating peanut butter and has not reacted to the smell, I would call her less sensitive than others who are airborne reactive. However, we still practice total avoidance, because any reaction she does have is a possible anaphylactic one.
With respect to CapRast numbers, our allergist told me that a result of 15 or more (kU/l) means that a reaction is likely to be anaphylactic. This seems to be different from what others have heard, so I am just throwing it out there for comparison.

Posted on: Thu, 12/04/2003 - 3:48am
attlun's picture
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Joined: 06/13/2003 - 09:00

I think PA is PA, and the "potential" to be severe is there for everyone. I consider my son's PA as "deathly". I base that on the factor of his last reaction was anaphylactic and very severe. I think the term "potential" can apply to everyone w/PA. The "potential" to have an anaphylactic reaction is there, no matter what the "numbers" say. I don't know what studies are published on this topic.
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Trevor 8/6/01
Harmony 1/22/03
Baby #3 due June 24, 2004!

Posted on: Thu, 12/04/2003 - 4:47am
Anonymous's picture
Anonymous (not verified)

Ah, those words I always hate to hear, "but my PA child's allergy is less severe than your son's!" only because of the *potential* factor.
I have come to understand, through the years, what other PA parents meant when they said that. That their PA child had never experienced an anaphylactic reaction or didn't react as easily as Jesse.
Initially, and I did post about it here, I always felt like screaming at them, but it *could* be your child as well! You never know when the next reaction is going to be anaphylactic, and, as I found out after Jesse having two anaphylactic reactions, when the next one is going to be a hive-only reaction.
However, to answer your question as to how I label my son's allergy (Happy 8th Birthday Jess man [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] ), I label it as severe or deadly based on the fact that he has had two anaphylactic reactions. Okay, that was how I labeled it after the two anaphylactic reactions. Severe or deadly, because, in fact, he almost died.
Then, taking into consideration what Kim M. posted, I would also say that Jesse's PA is severe because he had an anaphylactic reaction to residue only at school last year.
Perhaps other PA children, in coming into contact with the same residue would only have had a hive-only reaction or an asthma flare-up (not a great thing either [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ), but not an anaphylactic reaction.
I do, as I say, have difficulty with classifying the allergy in terms of severity though because I believe there is always the potential for PA to be severe and deadly regardless of whether a child has even had a reaction or not, but simply tested positive on an allergy test.
I also think, for myself, because there are other parents (not here) in *real* life that will present their child's PA as really no big deal, it has made me look, on occasion, as though I was Psycho Mom from He** or that my requirements at the school were unreasonable. However.
For example, and nothing to do with severity, but tomorrow we're going to Glanmore House again where Jesse is also going to be making the gingerbread cookies his sister made last week there. His teacher showed me the recipe yesterday and told me that she has let Glanmore House know that a PA child will be in attendance. She couldn't understand my concern about the currants that were used last week in Ember's class' attendance at Glanmore House.
I now have to call Glanmore House and ask them to read the label on whatever bag of currants they choose to use tomorrow to see if they're "may contain" or not, which some can be.
And then, there's this voice in the back of your head that says, okay, what's the big deal? Just let him use the currants. What are the chances of them being "may contain" and then what are the chances of him having a reaction. But for me, and I guess this comes back to the severity topic again, I never know with my guy (can I still call him a wee guy at 8? [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ) if he would react or not.
I'm hoping to speak with the other PA parent tonight after school to see if he let his son use the currants last week.
Excellent question, Momma Bear and perhaps I am only irked by classification because my son does fall in the severe category. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Thu, 12/04/2003 - 4:49am
Anonymous's picture
Anonymous (not verified)

Also, I will never forget SharonA., a member here, not posting for a long time. Adult woman, probably my age. Went to the theatre one night to see a show and was eating her regular peanut M&M's like she always did when she went into full anaphylaxis. She had developed her PA and didn't know it and the first reaction (if mind serves me correctly) was the anaphylactic one.
Adult development of food allergies, in particular, is also something that interests me (separate question).
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
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Posted on: Thu, 12/04/2003 - 4:51am
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Joined: 04/08/2003 - 09:00

I feel as though I have been to so many allergists in the past 6 months and I always ask the same question and get the same response - PA is PA and unpredictable. However, my PA DD 2 year 10 month old just had a CAP RAST and tested a class 0 for all nuts and class 2 for peanuts. Overall score 85 for IGE. Main allergist said this was a positive sign that she was not off the page for all nuts and peanuts.
I am extremely compulsive with everything including the lipstick that poeple wear when they come in contact with my kids. I dont allow any may conatins, my family doesn't eat anything with nuts/peanuts and I don't have her around anything that might be a problem. We do go with kids everyday so I am sure peanut butter is lurking everywhere but Thank God no reaction since the first one last Feb. (knock on wood)
I tell everyone that a peanut allergy is like being pregnant - you are are or you aren't!!! I tell everyone that it is life threatening and never play it down. I have been in classes where there have been other kids with PA whose mom's are very relaxed and it makes it soo hard. I just explain that one of the ways to outgrow it is to limit exposure so I keep her away from anything that I see as "iffy" or unsafe. I dont really believe that there are less severe PA case because you can't predict the next reaction.
[This message has been edited by Danielle (edited December 04, 2003).]

Posted on: Thu, 12/04/2003 - 5:36am
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Joined: 05/06/2003 - 09:00

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[This message has been edited by StaceyK (edited October 21, 2004).]

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