A Few Thoughts....

Posted on: Mon, 10/15/2007 - 6:27am
tommysmommy's picture
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Joined: 10/15/2007 - 08:30

Hi All,

I am new to this site and am anxious to share advice and swap stories.... I have a 4-year-old son with a peanut allergy, and although his initial reaction a year ago has been his only one so far, I am always researching ways to be better prepared should another reaction occur.

One concern i have is the stability of the EpiPen when exposed to temps outside of the suggested range. For example, my husband took our boys camping last weekend, and the temps dipped into the 40's (the EpiPen is supposed to stay above 59). My husband wrapped them in a blanket and buried them in his sleeping bag to keep them warm enough, but when I unpacked the pens the next day, they were very cold to the touch. Our pharmacist and our allergist both suggested that they were likely fine, stating that discoloration would occur if they had been damaged -- BUT -- I called the manufacturer and spoke with a medical rep who said there was no guarantee that they were still effective, and said the temp range they indicate should be followed very carefully (he also said that the EpiPens were temp controlled on the trucks that delivered themt o pharmacies, so it must be a big deal). He had no real suggestions for how to manage when on an outdoor trip. The beach is a tough one too. Any suggestions on how to live in the real world without damaging the Epipen? Help!

Also -- I have read about some of you allowing your children to eat the "may contains" and "processed on equipment with" foods that proved to be fine prior to discovering the peanut allergy, but I really really think you should reconsider. It just seems that any one food is never worth the risk (no matter how small). Just a thought.

Lauren

Posted on: Fri, 10/19/2007 - 4:19am
mom2boys1975's picture
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Joined: 07/19/2007 - 09:00

For us I agree...we don't risk it. We also avoid bakery items, store bought ice cream, and other foods at high risk of cross contamination.
Everyone does have their own comfort zone and many people have made the decision about certain "may contains" after contacting the company, sometimes that label is just a C.Y.A. statement.

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