8mo DS with PA....HELP!!

Posted on: Fri, 01/23/2004 - 12:04pm
CarsonsMama's picture
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Joined: 01/23/2004 - 09:00

I need some reassurance and I am so glad I have found this board. My 8 mo son was diagnosed on Tuesday by a skin test to be PA. The RAST test results have not come back yet....waiting on pins and needles. Is it rare to be diagnosed so young?

Don't know where to start with foods! It doesn't matter yet as he is obviously still on jar food and his soy formula but I would love to get a jumpstart on this! Any suggestions would be great!

Posted on: Fri, 01/23/2004 - 12:29pm
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Joined: 04/01/2001 - 09:00

I am not a frequent poster here, but am a pretty frequent lurker. (there are many with great advice - which I'm sure you'll get for your question!)
I just wanted to let you know that I was in your same boat about 7.5 years ago. My DD was diagnosed by skin and RAST tests at 8 months. Doc said, "She's allergic to soy, milk, egg white, egg yolk, squash, strawberries, oh -- and you want to keep her far away from peanuts as possible."
Initially, since she was just on formula and jar food, my main concerns were the milk, egg and soy. Naively, I figured the peanut would be easy -- just avoid peanut butter, right? LOL!
7.5 years later, I have a beautiful, healthy, active 2nd grader who has outgrown her egg, milk, soy, and squash allergies. Peanut is still off the charts, and strawberry is stil a 2 on the skin test.
In her eight years, we've had six emergency room visits, though none in the last three years (knock on wood.) Coincidentally, she started school three years ago, and they watch her like a hawk there. (We're blessed with a supportive school!) Our daycare was great too -- they went 'peanut safe' about 4 years ago.
As for what your DD can eat -- I'd concentrate on the basics, and keep food in their most natural form. Due in part to her allergies as a small child, I now have a daughter who thinks opening a can of chickpeas to snack on tastes better than cookies, and would rather go without if she can't have water to drink.
She's had her Medic Alert bracelet on for 5 years now, and is never more than about 30 feet from her epi pen.
The key to success is immersing yourself in knowledge, educating yourself and all of those that have any responsibility for your DS, and most important: trust your instincts!
Good luck and I hope you find this board as big of a resource as I have over the years. There are a lot of smart cookies hanging out here!
--paige
[This message has been edited by mcpaige (edited January 23, 2004).]

Posted on: Mon, 01/26/2004 - 12:17pm
Lori Jo's picture
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Joined: 09/17/2003 - 09:00

We found out at 12 mos that my dd was PA. She was just starting out on solids (not due to my not trying - she's just stubborn), and so we hadn't had to think much about what she was eating. At 18 months she still only has 3 teeth, so her diet is still somewhat limited. With that said, she has had no problem with any of the brands of baby food at our grocery store. She eats goldfish, canned beans, Rumbly Grahams cookies, frozen pancakes, waffles, etc. I already made most of our dinners from scratch anyways, so she also gets whatever we're eating cut up really small.
If you are concerned about the baby food, you can also make your own. I did it for my twins and it was not that hard. Ruth Yaron's "Super Baby Food" is a great book for info and tips.
The biggest change for us was cleaning up the pantry and kitchen for the food from the rest of the family. I eliminated anything with nuts, "may contains" or "made ins". I didn't want the worry of making sure it wasn't given to her, especialy with 2 helpful 4 year olds in the house.
Don't worry. It will take time, but you'll figure out what works for your family.

Posted on: Mon, 01/26/2004 - 1:44pm
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Joined: 05/28/2009 - 16:42

Sounds like you're not alone at all regarding the early onset. A few of us have kids who got the "news" when our little ones were just wee things.
My daughter had a very serious reaction at 6 months old - my mom happened to be with us at the time, and was a nurse who spent years working in the allergy & asthma clinic in my hometown, so while I was unaware of what was happening to my little one at the time of the reaction, my mom was right on it and diagnosed it as anaphylaxis and got us to the hospital without delay.
At 9 months old, we subsequently found out thru testing (skin only)that my DD was anaphlactic to peanuts, treenuts and egg (the egg allergy was finally outgrown at age 3), and allergic to practically every vegetable known ('cept potatoes - lots now outgrown), most pit/seed/core fruits (some of which have also been outgrown), oats, yada, yada, and developed some allergies to a host of medications (tempra, flonase, etc.)
It does get easier to manage and in a few short months, you'll be spouting advice to the newcomers on this board. Hope to see your posts in the future. Warm regards, [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
[This message has been edited by Syd's Mom (edited January 27, 2004).]

Posted on: Tue, 01/27/2004 - 10:10am
CarsonsMama's picture
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Joined: 01/23/2004 - 09:00

Thanks so much for all of your replies. It has now been a week since his positive skin testing to not only peanuts (very strongly) but also to milk and to brazil nuts. We are waiting on pins and needles for his blood test results. The allergist he goes to is very thorough and says that if the milk comes back positive, she will do a food challenge test to make sure he is really allergic.
My sister has a highly allergic child (eggs and milk) and says that his skin and blood tests were both positive to soy but his food challenge test was negative. So, there is hope. But, from what I saw his skin do in reaction to the peanut test, I know he is truly allergic.
I am starting to deal with this better. The first few days were weepy ones for me. I have been struggling, however, with guilt. My nurse midwife, whom I also work for, says that there is some research out there that has found a link between mother's who eat TONS of peanut butter during pregnancy and an increased incidence in PA in their babies. THANKS!!! Why didn't she tell me this when I was pregnant. Protein is supposed to be good for you and I craved peanut butter so I thought I was doing the right thing. I feel like I have poisoned him and ruined his life.
Anyway, I am so appreciative of the posts from all of you and I look forward to the day when I have all of this down pat like all of you do.
Thanks again!!

Posted on: Wed, 01/28/2004 - 5:28am
Triciasmom's picture
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Joined: 08/03/2000 - 09:00

Carsonsmom,
Don't beat yourself up about having eaten peanut butter during pregnancy. I lived on it. After my c-section, I had no appetite, and spent the first couple weeks snacking on honeyroasted peanuts while I nursed Patricia. She is anaphylaxic to peanuts and tree nuts, but it has not ended our lives. Yes, it is a burden sometimes, and it is confusing and frustrating sometimes. But we adapted and overcame.
I can't change the past. All I can do is move forward. I try to keep it all in perspective, and I spent hours on these boards for the first year after Patricia's first reaction. She has not had any more anaphylaxic reactions, and she is 4 1/2 now.
So take a deep breath, and know that you are not alone. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] There is not a lot of definite compelling evidence either way that peanut consumption or lack thereof during pregnancy makes much difference. My daughter's allergist told me last week that there is some evidence that some kids are genetically prone to react to peanut protein. So did we cause our children's peanut allergies? Maybe, maybe not. Hugs to you. It might all seem overwhelming right now, but it does get more manageable with time and experience.
Amy

Posted on: Wed, 01/28/2004 - 1:05pm
Lori Jo's picture
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Joined: 09/17/2003 - 09:00

I agree, don't beat yourself up. I LOVE nuts, and PB is/was my favorite food. I'd been eating about a jar every 2-3 weeks for years. I ate the same for both pregnancies and my twins (age4) have no allergies. The baby got a small smear on her hand an immediately broke out in total body hives. What caused the difference between the two pregnancies? Who knows. I also figure there alot more women out there who lived on PB while pregnant that don't have PA children than those who do. At least I tell myself these things to assuage my guilt as a mother.
It will be managable for you, though, and not so overwhelming. And while Carson is young you'll be able to almost totally control what he comes in contact with. You'll have time to grow into dealing with school, etc. I was completely overwhelmed after finding out about Rose, but now we've just moved on, accepted that I'll be making alot more home cooked food, and have set out to educate everyone I know or that she will come in contact with about PA.
------------------
Lori Jo,
Rose, 7-31-02, PA
Beatrice & Georgia, 8-14-99

Posted on: Wed, 01/28/2004 - 11:48pm
CarsonsMama's picture
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Joined: 01/23/2004 - 09:00

Thanks so much again for the comforting words. We are still waiting his blood test results and hope to hear something today.
I do feel fortunate that we found out the way we did and not by him having an anaphylactic reaction to it. And, he is young enough that I have some time to research what he can and can't have. So, I am very grateful for that. I am beginning to be able to look on the brighter side of this...with the help of encouraging people such as all of you.
I look forward to getting to know everyone better because it really does help to know we are not alone in this big PA thing!!!
Thanks again for the comforting words!!
Amy

Posted on: Thu, 01/29/2004 - 5:05am
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Joined: 10/27/2003 - 09:00

I also wish I knew before pregnancies about the link between PA and eating peanut butter. Oh well.
I just had a suggestion, and it's IMO, but...I made all my children's baby food. Even before the PA- I wanted to know what was in it and it turned out to be a LOT cheaper. I know that some people on the board have had problems with different baby foods. It really didn't take a lot of time (I work outside the home full time), and I could freeze a lot. With the twins, it was harder to keep up with them. I tried (a few weeks ago) those toddler meals, and they would not eat them. In any event, that's what we did.

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