8 year old writes from nj

Posted on: Sat, 05/17/2003 - 3:54am
beckygolfer's picture
Joined: 05/17/2003 - 09:00

Hi, i'm 8 and i'm allergic to peanuts. I have a special table in my lunch room that says peanut free table maybe you should try that.I get really sad and mad when i see people eating stuff that has peanuts in their foods and foods that contanamate peanuts, I have a epi pen and i have a medicalert braclet but when yu where the braclet your have to where it every where even when you sleep.I don't like being treated differentaly that makes me feel sad i always thought maybe i can try another test to see if i can have peanuts again but my mom and doctor says i'm to old to see if i can have peanuts again.bye hope you send me an e-mail.oh yeah i forgot my mom is mamagaona/arlene

Posted on: Sat, 05/17/2003 - 4:19am
Louise UK's picture
Joined: 05/14/2003 - 09:00

Hey beckygolfer,
Wow, I'm impressed at your comoputer skills! I'm sure I couldn't have used a computer at aged 8.
I'm sorry to hear that you're sad about your PA. I'm nineteen and I have PA too. It sucks. I know what you mean about being treated differently - I have to wear a medic-alert bracelet and carry an epi-pen too and it can get annoying at times. But I also know that doing these things can save my life, so I keep doing them.
I'm glad that your school have a special table for you - that way you can keep safe. Do some of your friends eat there with you if they have no peanuts? When I was at school sometimes I had to eat on my own because other kids had peanuts and we didn't have a special table. But then when I got older (at high school) I could eat in a special room which had no peanuts allowed. That was much better.
I hope that reading these boards can help you feel better about your PA - I know it's really difficult but sometimes knowing that other people have it too can help us feel better, and make us feel less different.
If you want to ask anything about what it's like to be older with PA, go ahead because I have had it since I was really little so maybe I can help.
Take care, hope to see you post again soon!
Love Louise.xx

Posted on: Sat, 05/17/2003 - 11:28am
patsmommy's picture
Joined: 10/31/2001 - 09:00

hi girls. My son is 5 1/2 and has a pa and tna. I was glad to hear from you two. My son will have to eat in school next year. Iwould like to know what you have encounter with other children and or staff in the schools, good or bad. I get very sad because I know I wont always be there to protect him. He is very aware of his allergy and is afraid when someone even mentions eating peanuts. Will that get better for him? I want him to be safe and aware of what is around him but I aslo want him to have a relaxed normal life. Louise, can you tell me how things have been for you growing up with pa? Do you have any suggestions for me to make him more at ease? My house is totally peanut and tree nut free.

Posted on: Sat, 05/17/2003 - 11:43am
beckygolfer's picture
Joined: 05/17/2003 - 09:00

Hi Louise and Pat's mommy,
i know what you mean Louise, can you tell me some stuff you do about your PA? Do your friends make fun at you? Do you go to a guidance counciler? i do. She makes me draw stuff when i'm mad. I have different allergies too, like i can't eat for an example cranberries.and lots more stuff.

Posted on: Sat, 05/17/2003 - 8:53pm
Louise UK's picture
Joined: 05/14/2003 - 09:00

Hi Patsmommy,
Growing up with PA is difficult, no doubt about it. But there are things you can do to make it esier. For example you said that your house is totally PA/TNA free. That is great. It means that your son will always have a place to go where he can feel safe. That was really important to me, especially when I got old enough to really understand the dangers of PA. Also I know it seems hard for you to watch your son being scared all the time, but it shows that he understands the dangers and this is really important for keeping him safe.
As for school, there have been good and bad encounters. Some children (and parents/teachers) will never understand what PA is about, and worse still they will not try. I found the best way to handle this was just to be patient and try to explain the situation, as if we got angry at them it only made them less willing to co-operate. However, this doesn't mean we can let them get away with putting the PA child in danger. Somewhere along the way we have to strike a balance.
Make sure that you have lots of contact with the school and try to make sure that they handle things in a way that you are satisfied with. If you know they are taking all the right precautions (e.g making sure the epi-pen is within reach at all times, not locked away in an office, and having a nut free table at lunch) then you will feel happier leaving him each day.
When I was in primary one, my class had a special 'peanut awareness day'. This was great! It was aimed at a very basic level (for five year olds) but it made all the other kids in my class understand why I couldn't have nuts and why they couldn't eat nuts around me. If your school would be willing, I would highly reccomend this. Activitites we did included making 'NO PEANUT' posters for the classroom, baking some nut free goodies, making lists of all the places we could think of where nuts could be hidden, and learning about epi-pens. This was one of the most positive experiences of my PA at school as it was really fun and it actually made me feel a bit special at the time.
You will probably find that at first leaving him at school is really scary. But like I said, if you are happy with the way they are handling it (and don't give up till you are!!) then you will gradually be able to relax. SO will your son.
As for getting older with PA, it can be vey difficult at times, especially at the age when boyfriends/girlfriends become an issue. The most important thing is that your son understands the dangers now so that he can gradually learn to accept it when he gets older. Also, there are a few things which get easier with age. For example, when he gets older he will be able to read labels for himself which can make things safer. Also when he gets to high school there tend to be more options for eating, because the schools are bigger.
I realise I have rambled on - sorry! If there are any more specific questions about school/getting older, just ask as I'm not sure if I've answered your questions or not.
My friends are very understanding about my PA. This is really good as I can trust them not to bring any peanuts into my house, or not to eat any around me. I still have to be careful though, just incase they forget one day! I hope your friends don't make fun of you for it. That would make me really sad.
It's good that you go to a guidance counciller. Sometimes it's really good to take your anger out in a productive way like drawing. I hope it helps you. I don't go to a counciler but sometimes I talk to my friends about PA and why it makes me sad. This is good for me as I can let all my feelings out and good for them as it helps them understand.
Take care both of you!!
Love Louise.xx

Posted on: Sat, 05/17/2003 - 11:43pm
river's picture
Joined: 07/15/1999 - 09:00

Hi Beckygolfer,
I have a 7 1/2 year old son with peanut allergy. He loves golf too, but mostly he enjoys mini-putt.
Sometimes his allergy makes him feel different too, but I tell him that everyone has something that makes them feel different. Feeling different does not necessarily mean you have to feel bad. You be proud of who you are, no matter what someone else says.
Also my son noticed that sometimes he ends up getting a better treat, because of his peanut allergy. And sometimes the other kids are a little jealous.

Posted on: Sun, 05/18/2003 - 1:30am
happygirl's picture
Joined: 03/19/2003 - 09:00

Hi I am Mariah!
I am 9 years old.
I had a table that sat 6 people these 4 people sat there and I have to sit there so only 1 one of my friends get to sit there. Now I have my table but my friends don't always sit there.
Mariah [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Posted on: Sun, 05/18/2003 - 5:36am
patsmommy's picture
Joined: 10/31/2001 - 09:00

Hi Louise , thank you for answering my questions.I am planning on sending coloring books from fann to his class the first day of school.I want to ask the teacher to explain his allergy (after I explain it to her [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ) to the class. this year only the nurse had his epipens, but I want a delegate to be trained. I want his epipen on him at all times.I will probaby get the epibelt.My only concern is , is it bulky, is it safe for him to have this on him? can he "play" with it and inject himself? I dont know the best thing to do. He is only going to be six in september. Maybe I should leave one in the classroom too.

Posted on: Sun, 05/18/2003 - 9:29am
Going Nuts's picture
Joined: 10/04/2001 - 09:00

Hi All,
Mariah, Becky and Louise, it is go great to see you guys posting - maybe I'll be able to get Kevin to post too. Louise, I'm sure you have pearls of wisdom for our children. I love it when people who have grown up with PA get involved on the boards; it's so important to see your perspective.
Mariah and Becky - are you guys in 3rd grade? Kevin is, and he has a peanut free table too. His buddies usually sit with him, but sometimes these girls who like him and his friends don't bring peanut butter so they can sit there too! I know he gets frustrated about PA sometimes too.
I'm looking forward to reading more of your posts.

Posted on: Fri, 05/23/2003 - 12:35pm
erik's picture
Joined: 05/15/2001 - 09:00

Quote:Originally posted by Going Nuts:
[b]Mariah and Becky - are you guys in 3rd grade? Kevin is, and he has a peanut free table too. His buddies usually sit with him, but sometimes these girls who like him and his friends don't bring peanut butter so they can sit there too! I know he gets frustrated about PA sometimes too.
I'm looking forward to reading more of your posts.[/b]
Yes.. it is interesting to read postings from a child's perspective. And I am impressed by the computer skills too.. when I was 8 I had never even touched a computer in my life (this is before IBM even had introduced the PC!)

Posted on: Sun, 05/25/2003 - 12:32pm
beckygolfer's picture
Joined: 05/17/2003 - 09:00

Hi i am so happy that i can go on this website.And everybody here is nice once i came on this website i thought it was terrible. I wish you can come here so i can see you in face.bye


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