7 year old Daughter and Living in British Columbia

Posted on: Tue, 03/28/2006 - 2:52am
daughtersadvocate's picture
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Joined: 03/28/2006 - 09:00

Hey everyone, first time posting, but have read lots. Daughter started with eczema, then food allergies and asthma. Have had two visits to er in the last year with allergic reaction, just recently last week where I had to use the epipen for the first time(very scary). Trying to come up with a plan for dealing with the school, surprised there is no policy in place to deal with allergies, even something as simple as redflagging a child's registration to begin with. Amongst all this we remain a pretty normal family, two sons with no signs of allergies.

Posted on: Sat, 04/01/2006 - 11:48pm
Greenlady's picture
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Joined: 06/30/2004 - 09:00

Hello, and apologies for the late arrival of the welcome wagon! We try and greet new members right away, but traffic ebbs and flows so sometimes posts get overlooked. I am very glad you found us - this website has really been a great source of support for me, and I hope that you are finding everything you need. If you have any specific questions, please don't be shy about asking. Chances are someone has dealt with a similar problem. Take care,
Tracy

Posted on: Sat, 04/01/2006 - 11:55pm
Adele's picture
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Joined: 01/31/2005 - 09:00

Hello daughtersadvocate,
Welcome! This web site has been a lifesaver for all of us.
Most members are like you - parents of PA kids - but there are a few ol' coots (me) with adult onset PA.
Ask questions if you can't find the information you're looking for.
Cheers, Adele

Posted on: Sun, 04/02/2006 - 2:30pm
anonymous's picture
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Joined: 05/28/2009 - 16:42

Hi, I just joined today.This is the first time I've done a forum message ever. I was afraid because I'm not computer savvy either. But, your ordeal with using the epipen on your little one brought tears to my eyes, and prompted me to do my first post. Even though I'm a dentist and give a lot of shots all the time, I cringe every time I pick up my "six pack" of epipens.No needle I've seen in practice compares to this one. I'm so sorry you had to use it, and thank God your daughter is ok. My son is also seven,diagnosed at one with multiple food allergies via rast test to include peanuts,cows milk,eggs and wheat, and airway reactive disease..We've had some close epipen calls. One er and hospital stay when a daycare gave him peanut butter when he was three. He was given benadryl on the way to the hospital. While visiting Disney in Orlando, we ate at Hard Rock cafe. The waiter accidently gave him a milkshake in a closed kiddie cup instead of juice. He instantly became sick. Paramedics came right away. Another guest told me he had an epipen on his motorcycle outside as he saw me holding and hesitating with mine along with my benadryl. It was scary; there I was holding the epipen to my sons thigh trying to figure out if he was okay or If I needed to give the injection with the restaurant audience reassuring us. The paramedics observed him for a while ,vitals were okay. We decided not to go to hospital as my son seemed very ok after throwing up. I gave him benadryl.At the hotel I gave him maalox and I didn't sleep a wink making sure he was breathing and wasn't distressed. ALL this to say rightly so you should be concerned about the schools lack of a defined policy. A resource I have found very helpful is FAAN the food allergy & anaphylaxis network.web address is [url="http://www.foodallergy.org"]www.foodallergy.org[/url] phone number is 1(800)929-4040. Unfortunately, when you send your child off to school you have to educate the people who will be around them .With FAAN materials it makes it easier .For example there is "Students with Food Allergies:What do the laws Say?" Even though you live in British Columbia you shouldn't have to reinvent the wheel with the Americans with disablities act as it pertains to students with allergies.Another one "The school food allergy program" highlights model school programs. Hope this helps you. Take Care

Posted on: Fri, 04/14/2006 - 11:00am
Hazel's picture
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Joined: 04/22/2004 - 09:00

So sorry you had to use the epi-pen. That must have been extremely scary and a terrible shock. We live in Victoria and our PA son is 15 now. So far we've been fortunate with the school setting. I recommend that you read "Anaphylaxis: A Handbook for School Boards" The website I have is [url="http://www.cdnsba.org/pdf/anaphylaxis"]www.cdnsba.org/pdf/anaphylaxis[/url] - but it isn't displaying right now - but you can google it. This is a guideline for all Canadian schools. It was extremely useful for me about a year ago when I had to get peanuts out of the home-ec room and the vending machines. It supports you so when you ask for change you have this as back-up and support.

Posted on: Mon, 05/15/2006 - 12:38am
cynde's picture
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Joined: 12/10/2002 - 09:00

hi, and welcome. I also live in the lower mainland and have an 11 yr old PA DS. We knew about his PA before he started school, but he did not have an anaphylactic reaction until he was in grade 2, that is when I requested and got a PN free school.
You didn't mention what age your dd is. If she is not yet school age I would look for a PN free school in you area (call all of them). Someone else has alrady done the work and gone thru the transition for you.
If she is in school, talk to the principal. In our school district there was and still is no policy, the principal at each school makes their own policy (which can be a good or bad situation depending on the principal).
Good luck.

Posted on: Mon, 05/15/2006 - 5:19am
CdnJulie's picture
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Joined: 04/28/2006 - 09:00

Welcome fellow Canadian! Lots to learn. So sorry to hear about your plight thus far.

Posted on: Sat, 04/01/2006 - 11:48pm
Greenlady's picture
Offline
Joined: 06/30/2004 - 09:00

Hello, and apologies for the late arrival of the welcome wagon! We try and greet new members right away, but traffic ebbs and flows so sometimes posts get overlooked. I am very glad you found us - this website has really been a great source of support for me, and I hope that you are finding everything you need. If you have any specific questions, please don't be shy about asking. Chances are someone has dealt with a similar problem. Take care,
Tracy

Posted on: Sat, 04/01/2006 - 11:55pm
Adele's picture
Offline
Joined: 01/31/2005 - 09:00

Hello daughtersadvocate,
Welcome! This web site has been a lifesaver for all of us.
Most members are like you - parents of PA kids - but there are a few ol' coots (me) with adult onset PA.
Ask questions if you can't find the information you're looking for.
Cheers, Adele

Posted on: Sun, 04/02/2006 - 2:30pm
anonymous's picture
Offline
Joined: 05/28/2009 - 16:42

Hi, I just joined today.This is the first time I've done a forum message ever. I was afraid because I'm not computer savvy either. But, your ordeal with using the epipen on your little one brought tears to my eyes, and prompted me to do my first post. Even though I'm a dentist and give a lot of shots all the time, I cringe every time I pick up my "six pack" of epipens.No needle I've seen in practice compares to this one. I'm so sorry you had to use it, and thank God your daughter is ok. My son is also seven,diagnosed at one with multiple food allergies via rast test to include peanuts,cows milk,eggs and wheat, and airway reactive disease..We've had some close epipen calls. One er and hospital stay when a daycare gave him peanut butter when he was three. He was given benadryl on the way to the hospital. While visiting Disney in Orlando, we ate at Hard Rock cafe. The waiter accidently gave him a milkshake in a closed kiddie cup instead of juice. He instantly became sick. Paramedics came right away. Another guest told me he had an epipen on his motorcycle outside as he saw me holding and hesitating with mine along with my benadryl. It was scary; there I was holding the epipen to my sons thigh trying to figure out if he was okay or If I needed to give the injection with the restaurant audience reassuring us. The paramedics observed him for a while ,vitals were okay. We decided not to go to hospital as my son seemed very ok after throwing up. I gave him benadryl.At the hotel I gave him maalox and I didn't sleep a wink making sure he was breathing and wasn't distressed. ALL this to say rightly so you should be concerned about the schools lack of a defined policy. A resource I have found very helpful is FAAN the food allergy & anaphylaxis network.web address is [url="http://www.foodallergy.org"]www.foodallergy.org[/url] phone number is 1(800)929-4040. Unfortunately, when you send your child off to school you have to educate the people who will be around them .With FAAN materials it makes it easier .For example there is "Students with Food Allergies:What do the laws Say?" Even though you live in British Columbia you shouldn't have to reinvent the wheel with the Americans with disablities act as it pertains to students with allergies.Another one "The school food allergy program" highlights model school programs. Hope this helps you. Take Care

Posted on: Fri, 04/14/2006 - 11:00am
Hazel's picture
Offline
Joined: 04/22/2004 - 09:00

So sorry you had to use the epi-pen. That must have been extremely scary and a terrible shock. We live in Victoria and our PA son is 15 now. So far we've been fortunate with the school setting. I recommend that you read "Anaphylaxis: A Handbook for School Boards" The website I have is [url="http://www.cdnsba.org/pdf/anaphylaxis"]www.cdnsba.org/pdf/anaphylaxis[/url] - but it isn't displaying right now - but you can google it. This is a guideline for all Canadian schools. It was extremely useful for me about a year ago when I had to get peanuts out of the home-ec room and the vending machines. It supports you so when you ask for change you have this as back-up and support.

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