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Posted on: Tue, 01/10/2006 - 10:50am
anonymous's picture
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Joined: 05/28/2009 - 16:42

bandbmom,
I would definately think about authorizing this. The law does back you up, and your allergist's letter should be enough for them. I was requested from the school to have verbal communication w/my son's allergist and only would allow written. It is enough for what they need. They have a way of twisting the conversation to their needs.
Momma2boys is right - Synthias school spoke w/her DD's allergist and yes they wanted her to wear gloves b/c of what the allergist stated.
I think that the letter your dr. wrote is sufficient for what the law requires for the 504 designation...
If you do decide to allow them to verbally communicate - I would definately be there via speakerphone or 3 way conversation that I initiated - NOT them where they have an opportunity to speak to him prior to putting you on the phone.
JMHO - good luck and keep us posted!
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Posted on: Tue, 01/10/2006 - 12:15pm
Gail W's picture
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Joined: 12/06/2001 - 09:00

Is this the letter that you will be using for your Section 504 eligibility?
I would want to have my allergist primed/coached to answer these questions from the 504-C:
Quote:Originally posted by bandbmom:
Dr. Mr. B:
Brandon has been a patient at the Allergy and Asthma Center since July of 2005. He has been diagnosed with peanut allergy on the basis of prior clinical reactions confirmed by skin testing for IgE antibody.
1. Is Brandon your patient?
2. How many times (total) have you seen him?
3. What are the results of his SPT?
4. Would you forward us a copy of his test results?
5. Has Brandon had a CAP-Rast test? If no, why not?
6. How many times has Brandon been treated with an epi-pen?
7. How many times has Brandon experienced anaphylaxis?
8. Were those events treated/verified by a physician?
9. Has he ever received emergency medical treatment (e.g. ER visit) for anaphylaxis?
10. Has Brandon ever been admitted to the hospital for anaphylaxis?
11. How many patients do you have who have peanut allergy?
12. How do you compare Brandon's severity to your other patients with PA?
13. What is a "clinical" reaction? Are there other types of reactions?
14. Has Brandon undergone a food challenge?
15. Have Brandon's allergy symptoms ever required medical care or any kind?
Quote:Brandon also suffers from episodic bronchial asthma.
1. Does Brandon take asthma medication? What meds?
2. How do you describe Brandon's asthma? Moderate? Severe? Well managed?
3. Has Brandon even been seen or hospitalized for an asthma attack?
4. Has Brandon ever seen you or been treated for any complications due to his asthma medications?
5. Have Brandon's parents ever reported any side effects due to his asthma meds?
6. Have Brandon's parents ever reported that Brandon has not participated in any activities due to his asthma?
Quote:Brandon should be considered at high risk for a possible fatal food allergy reaction and therefore should be in an environment wherein potential exposures to peanut allergen are strictly controlled.
1. What do you mean by 'exposure'?
2. Do you have patients allergic to peanuts who you consider to be a 'lower' risk?
Quote: While an EpiPen Junior should always be available for the treatment of a reaction following an unattended exposure, prevention is the best treatment for Brandon.
What are your specific recommendations for 'prevention'?
Quote:It is medically necessary for Brandon to be in an environment where the risk of exposure to peanut allergen is substantially reduced.
What are your specific recommendations to reduce exposure?
In your opinion, does Brandon's peanut allergy significantly impact his ability to learn?
In your opinion, does Brandon's asthma significantly impact his ability to learn?
In your opinion, does Brandon's peanut allergy significantly impact his ability to attend school?
In your opinion, does Brandon's asthma significantly impact his ability to attend school?
-------------------------------------------------
Are you comfortable with your allergist answering these questions?
[This message has been edited by Gail W (edited January 10, 2006).]

Posted on: Tue, 01/10/2006 - 11:21pm
synthia's picture
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Joined: 10/05/2002 - 09:00

Quote:Originally posted by Cam's Mom:
[b]bandbmom,
I would definately think about authorizing this. The law does back you up, and your allergist's letter should be enough for them. I was requested from the school to have verbal communication w/my son's allergist and only would allow written. It is enough for what they need. They have a way of twisting the conversation to their needs.
Momma2boys is right - Synthias school spoke w/her DD's allergist and yes they wanted her to wear gloves b/c of what the allergist stated.
I think that the letter your dr. wrote is sufficient for what the law requires for the 504 designation...
If you do decide to allow them to verbally communicate - I would definately be there via speakerphone or 3 way conversation that I initiated - NOT them where they have an opportunity to speak to him prior to putting you on the phone.
JMHO - good luck and keep us posted!
Lana [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img][/b]
Yes it was my dd,that this happened to,I am not sure if anyone else had this happen?
When our family started this,I was new.
I allowed [b]*one*[/b] phone call to the allergiest,and only in ref to her Peanut allergy.I had wrote this in the conset form.
I tried to rely the info from *that* school to her allergiest.and was told everysingle time to ref back to a web site.
After that call I requested a copy of [b]*that* phone conversation.[/b](I still have that comunacation letter.)
The ? was asked from a staff (from a school that DH and myself choise not to send her to) member to the allergiest about the gloves.
The answer the allergiest gave back to the school was "If that is what the parents want".
Needless to say NO the parents didnot want that.We sent a letter to that school (I think that was my first letter I had ever sent to a school in ref to my children).
The letter stated that NO we the parents donot want ANY gloves put on her,and we gave are reasons not that the reasons matter the fact we said NO is what matters.DYKWIM
I would like to add that the staff member was only trying to keep *our dd safe*.
I did make sure that I told the staff member that I really am thankful that they where trying to keep her safe,but that was NOT what we thought to be best for *our* dd.
I think the letter you have is good.
I also think Gail W has a LOT of good ?'s you might want to ask yourself in re to *your* child.KWIM
[b]The asst. principal called today to say the 504 coordinator would like permission to speak to DS's allergist.[/b]
I am trying to understand this above statement! Does the 504 coordinator have medical background? I could see *other* staff members asking this of your Allergiest,
not the 504 coordinator? hummm....Good luck and keep us posted.
Careful.
HTH?
Waving hi to Cam's mom good to see you back,sorry there is a reason that brings you back.Is there anything *I* can do to help you Cam's mom? My E-mail is in my profile,
home # has changed.
------------------
Love this site
Synthia

Posted on: Wed, 01/11/2006 - 3:19am
mommyofmatt's picture
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Joined: 03/12/2004 - 09:00

We haven't gone down this road yet...but your allergist's letter seems really clear as to what needs to be done.
Would it make any sense to ask them how many doctors they conference with? Do they also speak to doctors about diabetic kids?
Because his letter is so clearly written, I can only imagine that they want to try to get him to back off from some of what he wrote.
Most doctors that I've dealt with aren't crazy about phone consults...Maybe that could be your way out of one? Maybe ask them to write their questions down, and I agree with the others, communicate in writing and keep you in the loop.
Good luck! Keep us posted! Meg

Posted on: Wed, 01/11/2006 - 7:06am
Gail W's picture
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Joined: 12/06/2001 - 09:00

I agree with Meg. And I think asking them to write their questions is a great idea.
The reason I listed those question is because I can see an administrator taking information from specific questions and then coming to their own conclusion. Or picking and choosing only certain facts that supports their belief that this isn't serious or isn't worthy of a 504 designation. Sometimes facts can are just omitted.
For example, my daughter has never been hospitalized for an anaphylactic reaction, and the school administrator tried to use that information as a rationale for her assertion that Mariah's PA therefore wasn't serious. Same for her asthma. She asked if Mariah had ever gone to the ER for an asthma attack, and I think she did so to gather 'data' to make a case that her asthma wasn't a significant health issue.
Beware....

Posted on: Wed, 01/11/2006 - 8:41am
bandbmom's picture
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Joined: 12/14/2005 - 09:00

Hi All! I spoke w/Brandon's allergist yesterday afternoon and the first thing he told me was that I don't have to sign anything. He said he doesn't understand why they would need to talk to him because he's already written them a letter, which is sufficient. He is also suspicious that they are up to no good. He told me he's never had a school ask to speak with him. His advice was to contact the 504 coordinator and ask her EXACTLY what information she is looking to obtain from him. He told me to then call him back tomorrow (Thurs.) and we would take it from there. I've already decided I'm not going to sign it. The allergist is right. They've got proof in writing of his allergy, what more do they need. The allergist also said that he is Brandon's advocate and is not here to look out for the school's best interest (I love this guy!). If they press further, I will offer the skin allergy test results I have from his original allergist, the letter that his old allergist wrote to the pediatrician stating that he tested positive for peanuts and should stay away from peanut and tree nuts and I have a letter coming from the pediatrician, who treated Brandon when he had his reaction, which I can also offer as proof. I feel like saying, "what, don't you believe he has this allergy?".
I'm not looking for the school to be peanut free, but I will probably ask for PB&J along w/the choc. chip and sugar cookies that are made in their central kitchen to be taken off the menu. The cookies are made on the same pans as the pnut butter cookies.
Tracy

Posted on: Wed, 01/11/2006 - 9:45am
synthia's picture
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Joined: 10/05/2002 - 09:00

[img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]
------------------
Love this site
Synthia

Posted on: Wed, 01/11/2006 - 9:55am
Gail W's picture
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Joined: 12/06/2001 - 09:00

That's great news bandbmom. You're allergist is a keeper. You can tell the 504-C that this is all coming from your allergist, not you. Perfect!

Posted on: Wed, 01/11/2006 - 10:52am
bandbmom's picture
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Joined: 12/14/2005 - 09:00

Yes, that's exactly what I did (forgot to mention that). I sent the 504-C an email and cc'd the principal and asst. principal saying that the letter from the allergist clearly documents his allergy, what else is she looking for and what exact questions is she planning on asking. I sent the email at 11:00 this morning and didn't hear anything back as of yet. We'll see what their next angle might be.
Thanks for the support!
Tracy

Posted on: Wed, 01/11/2006 - 1:51pm
ElleMo's picture
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Joined: 06/19/2003 - 09:00

Quote:Originally posted by JRsMami:
[b]I would invite the doctor to your next 504 meeting and discuss it in a group setting with all members. [/b]
Does anyone have a doctor who would actually go to a meeting?

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