504 again...what if they say no???

Posted on: Thu, 03/15/2007 - 11:13pm
chanda4's picture
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Joined: 12/14/2006 - 09:00

I have copied and changed that huge outline of Rhonda's to fit my requests for the school for Jake. I emailed a copy of it to the 504 coordinator so she can go over everything, our meeting with the team is next Wed. I started thinking, what if they just flat out tell me *NO* on everything?? I mean, a few of the things I asked for before the 504 and they told me *sorry, not goign to happen*. Does the 504 give me some special power that this time they will say *YES*??

A few examples, I asked to have one medicine pack/kit kept in the classroom(they told me NO before) but during a fire drill, or lock down(where the kids are locked in their rooms for safety) I wanted his pack with him(not to mention one in his room just makes sense in case of an emergecny), not locked in the health office(a 2nd pack can remain there, that's fine). I also asked that no food be allowed in the classroom, and that all snack, b-days, holiday treats and foods be taken to the lunchroom, eaten, hands washed and then they return to class. And then a few smaller ones like Jake not using the bathrooms/sinks by the lunchroom(where all the cold lunch and PB kids wash after eating, seems too risky) and if they would clean the peanut-free tables EVERY morning(because outside groups use them for god knows what after shcool) and if they would wipe off his computer keyboard and mouse prioor to use, for him never to use any *mouth* instruments during music...yuck!.....

Anyways, what if they say I am being ridiculous and most of the stuff I worry about they won't change or adjust...then what???? How much power does a 504 have if they don't agree???? Thanks [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Fri, 03/16/2007 - 12:45am
gvmom's picture
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Joined: 08/24/2005 - 09:00

The designation gives your child the right to have accommodations that make their education accessible. Get the designation first. Make sure that is signed and sealed -- then worry about the accommodation part. It is way too early for me today to think to say much more -- but I know there is lots on what you are asking.
Oh, and check into the laws for your state about you child & carrying their epi-pen. If there is a battle about keeping a kit in the classroom, then many states are putting laws in place that allow children to carry their epipen.
In the end, don't start to worry about them saying no. We kept getting a no about a table until we got the designation -- now our DS has a table to eat at for lunch with his class. We might have to fight to keep it, but sometimes getting that designation can change the tone on some things.

Posted on: Fri, 03/16/2007 - 1:14am
PA-Mom's picture
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Joined: 09/18/2006 - 09:00

If they say no on something you feel is an important accomodation, I would get a letter from the doctor explaining why it is important. Also, to help get the accomodation you could have research info/studies/articles backing up your request (I've gotten some info like this from my allergist and the internet on certain subjects). Good luck, I hope you get what you are asking for, please let us know!

Posted on: Fri, 03/16/2007 - 8:30am
Momcat's picture
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Joined: 03/15/2005 - 09:00

If they say no to eligibility or certain accommodations, get them to put it in writing. Then you have proof of their refusal. This is very important if you need to file a complaint later.
Cathy

Posted on: Fri, 03/16/2007 - 8:38am
chanda4's picture
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Joined: 12/14/2006 - 09:00

They said he is eligible, but I sent an outline of the accomadations(they are having me list what I think is needed)...but even today the coodinator(I saw her in the lunchroom, she was really friendly) but again stated "we're not going to be able to accomadate everything, the list is so long". I just have a feeling they are going to stick with the same difficulty as when I asked for things prior to the 504. "sigh"!
Technically, they can label him with a hidden disability but then not make any changes right, if they think things are fine the way they are?? UGH!
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Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Fri, 03/16/2007 - 11:36am
Peanut Militia's picture
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Joined: 03/06/2007 - 09:00

I know of a group that meets in the Colorado Springs area-6 or so moms. I know Broomfield is a bit away, but they may know of other groups. They are also up on state laws. They do not have a web site so I don't feel comfortable posting their info. E-mail me and I will forward your information to them.

Posted on: Mon, 03/19/2007 - 5:48am
Mom2Ian's picture
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Joined: 02/26/2007 - 09:00

Did you find some help with your questions? Since the 504 accommodations are agreed to as a team, make sure you focus on what is most important. Make sure you are prepared to show why it is critical that the accommodation be made. Unfortunately, there is almost no required trainings for schools when it comes to LTFA. They may not realize why you are requesting what you are. Evan having taught a child with latex and one with some food allergies, there is a lot I never learned about anaphylaxis until I started coming here after ds was diagnosed. (Shame on me for not learning more. I thought I had done pretty good research on the issue.)
I think you should not back down on the second med pack in the classroom. I know that it may violate district policy but since he has been approved for 504 they should be able to make an exception. They may not realize a child is most at risk while active like at PE or recess. The EpiPen should defiantly be with him at all times. Schools are big and every second counts. Unfortunately, you may be the one that has to educate them on this condition. Get some documentation together. At first, try to stay positive while sticking to your guns. There may come a time when you have no choice but to get nasty, but it

Posted on: Mon, 03/19/2007 - 9:34am
chanda4's picture
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Joined: 12/14/2006 - 09:00

Thank you Peanut Militia(for the offer) and also Mom2Ian....I am apart of MOSIAC which is an severe food allergy group that meets once a month in Lone Tree, they have given me some info, but they are not familiar with the 504. I got to your posts a bit late, my meeting is the day after tomorrow. I literally have a stack about 7in thick of stuff and articles, I hope I have it all!!!! Thank you though, if they fight me on any accomodations, I won't sign the 504 and I will come back and get some help...so I might be back. THANKS!!!
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Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

Posted on: Mon, 03/19/2007 - 11:02am
Carefulmom's picture
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Joined: 01/03/2002 - 09:00

My advice given the school`s history would be to not sign anything there. Tell them you want to take it home and read it. I signed it at the meeting, but my school handled the whole thing completely differently. They offerred me the 504 without my asking, and every accomodation I asked for they said fine. With your school (I think they are already giving you a hard time about the food free room and had a fundraiser where actual peanuts were sold as part of a lunch, right?), I would take it home and read it carefully before signing.
[This message has been edited by Carefulmom (edited March 19, 2007).]

Posted on: Mon, 03/19/2007 - 2:29pm
chanda4's picture
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Joined: 12/14/2006 - 09:00

Quote:Originally posted by Carefulmom:
[b]My advice given the school`s history would be to not sign anything there. Tell them you want to take it home and read it. I signed it at the meeting, but my school handled the whole thing completely differently. They offerred me the 504 without my asking, and every accomodation I asked for they said fine. With your school (I think they are already giving you a hard time about the food free room and had a fundraiser where actual peanuts were sold as part of a lunch, right?), I would take it home and read it carefully before signing.
[This message has been edited by Carefulmom (edited March 19, 2007).][/b]
Carefulmom, I never thought to do that...thank you for the advice, will do!!!
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Chanda(mother of 4)
Sidney-8 (beef and chocolate, grasses, molds, weeds, guinea pig & asthma)
Jake-6 (peanut, all tree nuts, eggs, trees, grasses, weeds, molds, cats, dogs, guinea pig & eczema & asthma)
Carson-3 1/2 (milk, soy, egg, beef and pork, cats, dog, guinea pig and EE)
Savannah-1 (milk and egg)

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