2yr Old with PA...just Found Out...QN Please

Posted on: Sat, 09/02/2006 - 12:36pm
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Just found out My 2 Year Old son has a Severe PA on Monday...it took 3 exposures of Trace amounts (The first was going to eat at a Steak Roadhouse where peanuts and shells were "in the air" and the second two were after a taste of ice cream smaller than the white on my fingernail) before we figured out what was going on. The allergist said he was a 2 on the RAST and the skin test resulted in a reaction the size of a silver dollar. With my son, his throat closes immediately upon exposure...luckily, he has gotten better w/out having to go to the hospital, but he has never Ingested the offending item b/c as soon as it goes in his mouth there is an instant problem AND each exposure has had an increasingly more violent response. (for example: at the steak house we just thought he was choking on some food & with the last reaction we were on our way to the H b/c he couldn't breathe) Here is my 1st of likely many questions: We were given an Epi-pen for emergencies and also Liquid Zertec for skin reactons...BUT he has never had any visible signs of PA. (rashes or swelling etc.) Is this going to happen later?...if we accidentially expose him again? OR do some PA kids just not get the rash?

Posted on: Sat, 09/02/2006 - 1:07pm
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I am very sorry to hear about your son. My dd is 11 and we have been dealing with PA since she was almost 2. Her first reaction when she was just shy of 2 was similar to your sons reactions. She touched pd fudge to her lips and before she had a chance to take a bite her throat started swelling up. By the time I ran to get the epi-pen, she was unconscious and not breathing. She didn't have any hives or any swelling on the outside, it was all internal (in her throat) apparently. This was her worst reaction.
Other reactions, especially contact or aerosol reactions, she will begin with hives, runny nose, itchy mouth and the reaction will progress more slowly (compared to the first reaction anyhow)
A couple of times, she has had severe GI reactions. Really quite unpredictable.
But really, her worst reactions where her throat has closed there were no outward visible signs at all.
I hope you can stick around. You will find lots of helpful info here.
Just one question, if you don't mind me asking...if your sons throat closed off immediately, how did it resolve without emergency treatment?
[This message has been edited by KS mom (edited September 02, 2006).]

Posted on: Sun, 09/03/2006 - 9:04am
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Sorry to hear about your daughter too!! Do you think she may grow out of it? I am so new to this whole thing and it is so scarry!
The Doctor said we just got lucky. When he tasted the ice cream he turned purple/red and started gagging, eyes watering etc. so I grabbed him and made a run for the keys and the car. By the time I got him in his car seat, it was obvious he was breathing again and his color was better so I gave him some water and watched him. The Doctor said that he was luckily to be able to recover on his own, but that each reaction will likely get more severe so I guess his guardian angel was just looking out for us!
How have you come in contact with aerosol peanut protien? Do you know where there is a list of items where peanuts are present that you wouldn't normally think of? DO you mind telling me how many reactions your daughter has had which required the Epi? I'm just wondering what lies ahead for us! Thanks!
[This message has been edited by Mommyof2 (edited September 03, 2006).]

Posted on: Sun, 09/03/2006 - 10:20am
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MommyOf2,
I just raised a thread in the Main Discussion Board called "Unusual or unexpected sources of peanut".
It sounds like your son is very sensitive--was he tested for any other food allergies? Did the allergist advise you to avoid giving your son other kinds of nuts? What kind of ice cream did he react to?
From what I've read, only about 20% of kids outgrow their peanut allergy. Your son has a better chance because is still young.
Feel free to ask questions while you're figuring out how to keep your son safe. I'm glad you found this site, I know it's been a big help to me.
Cathy
------------------
Mom to 7 yr old PA/TNA daughter and 3 1/2 yr old son who is allergic to eggs.

Posted on: Sun, 09/03/2006 - 11:50am
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Wow! That is a very scary reaction. My dd has become more severe over time. She now reacts to aerosol peanut protein. I was speaking to an aquaintance and her little guy was standing beside her eating a bag of peanuts. DD and I did not notice until she started reacting.
We have only used the epi once but there were 2 other times (before we truly understood PA) that she should have had the epi according to the emerg physician.
Now that dd is older she knows when something is going on in her body and she can let us know right away. There is a chart here somewhere that shows the symptoms of anaphylaxis. I will try to raise it.
I hope you find lots of helpful information here. I know I have.

Posted on: Mon, 09/04/2006 - 1:57am
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Momcat,
Thanks for raising the thread...I really appreciate it. The Allergist tested my son for nut allerties only (because he is so young I guess). We went to the office b4 the appt, put some EMLA cream on his back, and after an hour they did 12 pin pricks. The only reaction that "counted" was peanuts...he had another slight reaction to pistacho & one other nut I think...but the Dr. said they were nothing to avoid or worry about. BUT he did say we should avoid all nuts because of the likelyhood that the other nuts have come into contact with the peanut protien. He reacted to the vanilla part of a Snickers icecream bar. I'm glad we found the site too! It's really nice to read other's stories and this seems to be a great place for information.
KS Mom, Do you mind telling me when you didn't use the Epi, but should have?
[This message has been edited by Mommyof2 (edited September 04, 2006).]

Posted on: Mon, 09/04/2006 - 8:34am
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Sure! I don't mind at all. One of her reactions was after a friend made a pan of squares for us. I checked the ingredients and they were fine. We figured later that the problem must have been some residue in the pan. As for the reaction, my dd (who was 5 at the time)had one bite and within a couple of minutes complained of a "wavy tummy". I was not there so my husband laid her on the sofa. Within seconds she had severe vomitting. My husband who is usually so calm and collected said he became panicky and that he had never seen someone so violently ill. I was not there to see it but this is what he tells me. Anyhow, his brother who was at my house at the time drove them to the er. They took her right in and the er doc gave my husband quite a scolding for not giving her the epi. We really were clueless about allergies at the time though so we had no idea.
Another time my dd was eating something and started having a reaction. I knew what was going on so I called 911. I gave her benadryl and then I asked them if I should give her the epi. They asked if she was having breathing difficulties. I told them that she was wheezing but they advised me to wait until the ambulance arrived unless she got worse. By the time the ambulance got there, the benadryl had resolved most of her symptoms so the emt's told me that maybe I would prefer to drive her myself since she was "so much better". So I did. As we are waiting in the hospital her throat starts to swell out of the blue. Apparently, the benadryl had masked other symptoms but the reaction was progressing. The er doc treated her with epi and prednisone there and was very upfront with me with how I handled things. He was very graphic and didn't mince any words. But again...this was before I had access to info on dealing with pa.

Posted on: Tue, 09/05/2006 - 7:10am
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KS Mom,
When my mom took my son for ice cream at Cold Stone, he went for a taste and immediately started throwing up...sounds like what happened to your DD. My son was not sick & my mom thought that the taste must have had a little peanut flavor icecream dripped on it...as it was the flavor near by. When they are throwing up from PA contact...how do you know if you are suppose to use the Epi? Do you just use it, or are there any other symptoms you look for...????
[This message has been edited by Mommyof2 (edited September 05, 2006).]

Posted on: Tue, 09/05/2006 - 11:31am
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I think as you mentioned, if they go from absolutely no signs of illness to violently throwing up after a taste of food, in the case of my dd I would automatically assume a reaction and use the epi. If she had been whiny and lethargic previous to tasting a new food I would probably think stomach flu in dd's case.
Its strange that each anaphylactic reaction dd has had, have all been different. The first one her throat immediately closed off, the second one was the severe GI reaction and the third was wheezing, ear canal swelling, hives, paleness, dizziness and mild nausea. She has had other contact reactions in between these anaphylactic ones with various symptoms as well.
The only thing that we can count on is that reactions and symptoms are unpredictable in dd's case. With time though, we have come to understand her body and we are more in tune to anything unusual.
I know it seems overwhelming at first but with time and knowledge, it has become easier for us to deal with. Within our circle, our family, we have a certain level of comfort. Sometimes dealing with outside influences pose a challenge but so far we have managed to find a good balance between protecting dd to the best of our ability and allowing her to be "normal".
Regarding your question about when to use the epi, we have been told not to "wait and see" as we had in the past. It is very important to use the epi right away for the epinepherine to be effective. The doctor told me that if you are questioning whether or not to give the epi, that you should be giving the epi.
This is just our personal situation and what we have been told by doctors. I wouldn't presume to give you medical advice but I would encourage you to keep asking those questions and reading the boards. If you are getting overwhelmed, take a little break! I found personally that I did better taking things in in smaller doses. It is definitely a journey!! I wish you the best!!
[This message has been edited by KS mom (edited September 05, 2006).]

Posted on: Sat, 09/02/2006 - 1:07pm
KS mom's picture
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Joined: 03/02/2006 - 09:00

I am very sorry to hear about your son. My dd is 11 and we have been dealing with PA since she was almost 2. Her first reaction when she was just shy of 2 was similar to your sons reactions. She touched pd fudge to her lips and before she had a chance to take a bite her throat started swelling up. By the time I ran to get the epi-pen, she was unconscious and not breathing. She didn't have any hives or any swelling on the outside, it was all internal (in her throat) apparently. This was her worst reaction.
Other reactions, especially contact or aerosol reactions, she will begin with hives, runny nose, itchy mouth and the reaction will progress more slowly (compared to the first reaction anyhow)
A couple of times, she has had severe GI reactions. Really quite unpredictable.
But really, her worst reactions where her throat has closed there were no outward visible signs at all.
I hope you can stick around. You will find lots of helpful info here.
Just one question, if you don't mind me asking...if your sons throat closed off immediately, how did it resolve without emergency treatment?
[This message has been edited by KS mom (edited September 02, 2006).]

Posted on: Sun, 09/03/2006 - 9:04am
Mommyof2's picture
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Joined: 09/02/2006 - 09:00

Sorry to hear about your daughter too!! Do you think she may grow out of it? I am so new to this whole thing and it is so scarry!
The Doctor said we just got lucky. When he tasted the ice cream he turned purple/red and started gagging, eyes watering etc. so I grabbed him and made a run for the keys and the car. By the time I got him in his car seat, it was obvious he was breathing again and his color was better so I gave him some water and watched him. The Doctor said that he was luckily to be able to recover on his own, but that each reaction will likely get more severe so I guess his guardian angel was just looking out for us!
How have you come in contact with aerosol peanut protien? Do you know where there is a list of items where peanuts are present that you wouldn't normally think of? DO you mind telling me how many reactions your daughter has had which required the Epi? I'm just wondering what lies ahead for us! Thanks!
[This message has been edited by Mommyof2 (edited September 03, 2006).]

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