26 and still reacting...glad I found this site! (long, sorry!)

Posted on: Thu, 06/01/2000 - 12:30pm
Sazzy's picture
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Joined: 06/01/2000 - 09:00

Hi,

I am 26 and have been allergic to peanuts and tree nuts my whole life. I was allergic to eggs etc as a young child but I grew out of that. I have just found this site because two hours ago I had another reaction. I was eating a cookie that I knew had no nuts in and so felt safe and then my lip started to swell... fortunately it must have been a tiny tiny amount of nut because apart from feeling horrible nothing else happened. Basically, the cookie had been in contact with other cookies and they had nuts... this is how most of my accidents happen... they are almost impossible to avoid, but usually are not too bad because the amount of nut is so small... so, I hopped on the net and found you all! It helps knowing there are lots of us...

When I was young nut allergies were not recognised and I struggled quite a bit, but made it! I also was vegetarian for 7 1/2 years so know how hard that is when you can't eat nuts.

I also read a post from a parent worrying about their child drinking in later life and having accidents with nuts... well, I have done that myself... but it taught me a lesson and now I can drink and still know not to eat. It is just so serious that your mind never switches off from the problem.

Oh and I am English, though I am now in LA. And I would just like to say that England is great. Menus in restaurants with stars by meals with nuts... waiters who don't bat an eye and treat you seriously... clear food labels... fantastic! Here in LA most waiters don't even understand what I could possibly be talking about when I mention nuts... I also lived in Germany and that was terrible for nuts...
...one bad thing about England is that the problem is now so well known that lots of companies are warning you even if a nut is in the building, overkill and it means you are left with nothing to eat if you listen all the time... oh, and peanut butter is not so popular so less problems there! I hate the way so many american choclate bars have peanuts in and want to import some good old british, nut-free choclate...

Oh and parents... don't worry too much about your child wanting to eat a cake with nuts despite their allergy because it is a cake... the feeling you have when you eat a nut is so horrible even the youngest child will not ever be tempted...

Ok, I have gone on and on... this is the first time I have written about the problem so I suppose I have a lot to say!!

Take care everyone and I'm happy to answer any questions... though I have some myself!

Sazzy

Posted on: Thu, 06/01/2000 - 6:39pm
Gwen Thornberry's picture
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Joined: 10/14/1999 - 09:00

Hi Sazzy
Welcome to the Board. I'm glad you found this site, it's a really great source of information. I've found out more from this site in the last 9 months than in the rest of my life, and I'm still learning.
I'm Irish, so I know what you mean about waiters and clear labelling, though some places still have a way to go. I also agree with you about companies over-reacting. In particular, Marks & Spencers. They had a very unfortunate experience about 9 years ago or so, when sadly a girl died after eating a pie which was cross contaminated. Now they put warning labels on absolutely everything, which is not in the least helpful. It makes you complacent and take risks you shouldn't, but when you see "not suitable for nut allergy sufferers" labels on EVERYTHING in the supermarket, you tend not to take it so seriously as you feel they are just covering their behinds in case of accident.
By the way, you mention that you usually have reactions due to cross contamination. These may not be so severe now, but the protein can build up in your system and the next tiny amount of p/n you eat could cause a really bad reaction, so be very careful of that.
Gwen

Posted on: Thu, 06/01/2000 - 11:51pm
PattyR's picture
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Joined: 04/12/2002 - 09:00

Welcome to the board. It is great to have you on the board and thanks for the offer to answer our questions. We will certainly take you up on it!

Posted on: Fri, 06/02/2000 - 6:46am
Yankee's picture
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Joined: 03/08/2000 - 09:00

Welcome. After reading your post I think I'm going to move to England!

Posted on: Sat, 06/03/2000 - 7:11am
ihatepeanuts's picture
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Joined: 04/08/2000 - 09:00

Nice to "meet" you Sazzy. I know you will
find lots of support on this website. From
reading your post it made me worried about
the possible new labeling laws. Yes, I am
definitely all for better labeling but I
wonder if it will make it almost worse? As
in England, if there is even nuts in the
building they will label "may contain" (I
think that's what you said). What if the
new labeling makes manufacturers put that
on everything just to cover their skin?
How will we really know if something is safe
or not (we'll probably have to make even
more phone calls). Chris, is this something
that we may have to worry about or am I just
too paranoid?
Tracy

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