2 yr old dx\'d with diabetes & also just had reaction to peanut butter - help please?

Posted on: Sun, 04/11/2004 - 10:47am
selketine's picture
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Joined: 04/11/2004 - 09:00

My 27 month old son was diagnosed as having juvenile diabetes just last month (March 10th) and fortunately we caught that early and he wasn't yet sick but of course he had to stay in the hospital and we had to be educated on how to care for him, give insulin, etc. It has been a challenge.

Now last Friday he had finished lunch and wanted a "sandwich" so I put a bit of peanut butter between 2 crackers and gave it to him and turned back around to finish cleaning up the dishes at the sink. (he has had p.b. in the past but rarely and didn't like it or really eat it) He started crying and saying his nose hurt/rubbing his eyes and a lot of phelgm or saliva was coming out of his nose/mouth. I cleaned him up cause I thought he had just gotten the p.b. in his eyes. He did not EAT the p.b. but had held it and perhaps licked it. I took him in the bathroom and then I noticed his face swelling and hives coming up on his face - esp. around his eyes. His arms also had some hives. I called my HMO's nurse hotline immediately and they, to make a long story short, had me give benedryl right away and as the hives spread to his stomach they decided to call 911 for me. By the time the ambulance got here he was better - the bendryl had definitely helped. His eyes remained swollen the whole day though. The dr. says we should get a blood test in 3 weeks - to wait cause having the test now would be too soon. We were given an epi-pen in the meantime.

How likely is it that he is very allergic to peanuts? I can't believe he would be diagnosed with diabetes and a peanut allergy within 4 weeks of each other. We are just completely freaked out about it. We are proceeding right now as though he is allergic to peanuts. From the reaction he had do you think he is allergic to peanuts and perhaps highly allergic?

Any advice? If this is true - I don't see how he could ever go to a regular school. Any other folks with diabetic children with severe food allergies? I'm interested in anything folks think might help us with the peanut side of things as well.

Thanks,
Carol

Posted on: Sun, 04/11/2004 - 11:42am
ktmom's picture
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Joined: 05/15/2002 - 09:00

Hi Carol,
Hope your son is feeling better now. I think you are doing the right thing by treating it as possible allergic reaction. I think you should also keep him away from all the nuts until your visit to the allergist. The other thing I feel strongly about is that you should ask your allergist to do a blood test (CAP RAST) instead of a skin test. Apart from the fact that a skin test could sensitize the child to unexposed allergens, it is a very painful experience for a toddler...
My prayers are with you.. hope he is not allergic. But even if the tests do come back positive, with proper precautions, he will lead a happy, normal life.
This website has a lot of helpful info and support.

Posted on: Sun, 04/11/2004 - 11:54pm
Going Nuts's picture
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Joined: 10/04/2001 - 09:00

Welcome Carol!
What a lot to deal with in such a short time!
Yes, it does sound likely that he may be allergic to peanuts, and certainly you should proceed as if he is for now. That means reading labels to eliminate "May Contains" (products such as scooped ice cream, commercial baked goods) from his diet until his testing is done. You might also want to eliminate tree nuts as well, because of the high incidence of cross-contamination with peanuts, as well as the fact that so many (I think about 30%) of those allergic to one are also allergic to the other.
Quite a challenge on top of diabetes, as peanuts and tree nuts are very helpful in stabilizing blood sugar. [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]
I know there are several diabetic children at my son's school, but to my knowledge none of them have food allergies as well. Their diabetes are handled well; in addition to the school nurse there are two diabetic teachers who are very helpful.
Best of luck to you, and please keep us posted. If there are any other parents of diabetic children with food allergies, I'm sure they'll post.
Amy

Posted on: Mon, 04/12/2004 - 10:02am
abbylukesmom's picture
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Joined: 08/28/2003 - 09:00

Carol,
I am sorry to hear about the newly dx'd diabetes. It's a horrible disease to try to deal with. I have a friend whose son was dx'd at the age of 2 also. He is on insulin, she checks his levels 3 times a day still (it's been nearly 3 years since initial dx). He is doing well now [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]
I'm sorry about the reaction he had to the pb too. Keep us informed on his test results!

Posted on: Sun, 04/11/2004 - 11:40pm
Anonymous's picture
Anonymous (not verified)

Hi Carol,
I can't help at with diabetes. As for how to deal with peanut allergy - these boards will give you lots of information. Read them, and when you have questions - ask them. No question is to trivial. No question is stupid.
As for being allergic vs. highly allergic -- to me that's like being pregnant. Either you are or you aren't, but you are not a *little bit* pregnant. There are minor reactions and severe reactions, but even if a person always had minor reactions that doesn't mean the next one will be minor.
Good luck to you and your family.

Posted on: Mon, 04/12/2004 - 12:58am
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Joined: 12/29/2002 - 09:00

Carol,
I also cannot help with diabetes but I do understand what you are going through.
Read these boards and take a break now and then because it can get overwhelming.
Good luck to you and your son.
Peggy

Posted on: Mon, 04/12/2004 - 1:00am
Peg541's picture
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Joined: 12/29/2002 - 09:00

[url="http://www.foodallergy.org/"]http://www.foodallergy.org/[/url]
FAAN will be a big help to you also. Go there and read their information. They can point you towards books and videos that will be a big help.
Peggy

Posted on: Mon, 04/12/2004 - 2:05am
California Mom's picture
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Joined: 07/14/2000 - 09:00

selketine, I just want to give you my sympathy and big cyber {{{hugs}}}. I can only begin to try to understand what you are going through, right now, I'm sure. I don't have personal experience with diabetes; but I do know that it is a HUGE deal to be going through, and I am sure it is quite a shock. It does seem like a cruel and unfair blow for you to be dealing with both at the same time.
I hope you can get all the information, help, and support you need.
Take care, Miriam

Posted on: Mon, 04/12/2004 - 2:58am
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Joined: 03/31/2004 - 09:00

Hi Carol,
I was just feeling sorry for myself because my husband has Type 1 diabetes and my son (15 months) has peanut allergy. Life is not fair! These two conditions cause a lot of anxiety, but it can be managed.
My husband has lived a totally normal life with Juvinile Diabetes. In fact, he is an incredible athelete and even played professional baseball for several years. He never feels sorry for himself or makes excuses because of his disease. I encourage you to raise your son without placing limitations on him! He will be okay - in fact, I think my husband is a better person because of his diabetes.
When I was feeling really overwhelmed about the PA being added on top of my stress about the diabetes, my sister reminded me that we are already more concious about food because of the diabetes, so adding the PA concerns wont be that much different. She is right. In fact, we are eating much more home prepared, healthy foods since the PA diagnosis. My husband and I were also talking about the precautions you need to take with diabetes are similar to PA - for example, we already need to carry insulin, sugar/food, glucacon emergency shot with us - now we just add to that the epi-pen and peanut free food. We already don't feel very comfortable going to remote places far from emergency care because of the diabetes, the same is true now for PA. Luckily we aren't the type who enjoy backpacking deep in the woods or travel to 3rd world contries...so, no loss there! With diabetes I need to be in tune with how they are looking/feeling to watch out for an insulin reaction or high blood suger - it is similar for PA.
I absolutely don't want to minimize what you are going through with the double diagnosis - I hope you don't take it that way. I really understand what you are going through and know the depth of fear and sadness that this brings - I don't think anyone can understand this unless they have experienced living with diabetes and PA first hand. You definitely are entitled to grieve - continue to find support from others who are going through this. People who don't have experience with these diseases just can't relate - you NEED to find people to relate to. I hope this website helps. If you ever want to e-mail me personally, I'd like to hear from you.
I definitely have ups and downs with my coping with the diabetes, and I'm sure PA will be the same. I was just thinking the other day that maybe God let this happen to our family to teach me to trust him more. I don't know if you have faith, but this is how I am learning to cope with this. I will use this opportunity to grow as a person.
You sound like a wonderful and caring mother and will do the best job taking care of your son. You will make it through this!
Jennifer

Posted on: Mon, 04/12/2004 - 3:11am
selketine's picture
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Thanks to everyone for the responses - I am just overwhelmed right now. I handled the diabetes diagnosis fine enough I think but this peanut thing is doing me in. I feel like I'm going to screw up on one thing or the other and not paying them both enough attention as I still have so much to learn about the diabetes. I looked at the FAAN website and I guess I need to dig deeper there as I didn't get as much info as I wanted. I guess I'd like it all laid out for me so it makes sense - on one page! I also care for another child William's age 2.5 days a week (in my house) so that isn't helping. I don't want to stop because I'm only doing this through mid-June and the mom (a good friend) would have a very hard time finding someone to watch him on the same schedule until then.
Thanks to everyone - any more tips appreciated of course! I will email you Jennifer.
Carol

Posted on: Mon, 04/12/2004 - 3:19am
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Joined: 03/12/2004 - 09:00

Wow, Jennifer what a great post!!!
Selketine, I'm so sorry for all that you're going through at once.
Unfortunately, from your description, it sounds like he is allergic to peanuts on top of the diabetes. Your poor little guy!!! Big hugs to him and you!!
From my understanding, once diagnosed with a peanut allergy, regardless of how severe, the treatment should be the same: total avoidance of peanut products, and the epipen.
While my son is milk, egg, and peanut allergic, my husband has high cholesterol (who knew at 34?!?), and is also on a strict diet, (or should be!!). I consulted w/ a nutritionist to find common meals and tips to deal with the specialized diets. Maybe that would help you find nutritious safe meals for him?
Hang in! You have so much on your plate right now. I hope this board, and maybe a similar one for diabetes will help you.
------------------
Meg, mom to:
Matt 2 yrs. PA,MA,EA
Sean 2 yrs. NKA

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