13 month old, I need direction!

Posted on: Tue, 02/28/2006 - 8:28am
NoahsDad's picture
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Joined: 02/28/2006 - 09:00

We just left the ER with my 13 month old son. Daycare for some reason made playdoh out of peanut butter (his first exposure to peanuts) and he had a very violent reaction. He received an epi in the ambulance and we spent a lot of time in the ER with him today. I have been reading through a lot of the postings on this site and my heart is just sinking. It seems like my son may be heading for a life where food is his worst enemy! We are heading in for testing, but our Dr seems to have little doubt on what we are going to find. Can anyone give me stories of how their children have been succesful with managing their allergy? Has anyone discovered this kind of allergy so early in life?

------------------
Jason
The place where you made your stand never mattered,
only that you were there... and still on your feet

Posted on: Tue, 02/28/2006 - 8:45am
Adele's picture
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Joined: 01/31/2005 - 09:00

Hi Jason,
I'm an adult with peanut allergy (PA) so I can't help you as far as dealing with a child with PA. There are lots of parents here on the board with PA kids - so I'm sure you'll get lots of help here.
I just wanted to make sure that you know about a bi-phasic reaction. This is a second reaction that can happen 4-6 hours after the first. You said that you spent 'a lot of time with him in the ER today' so I'm guessing that you've already past this point and that the doctors in the ER watched for it.
Were you prescribed an epi-pen?
Read everything you can find on PA. [url="http://www.foodallergy.org"]www.foodallergy.org[/url] is also a good web site. You've found the best place to help you deal with it.....and it does get easier.
I hope your baby is doing ok now. It's so scary...but it sounds like you've got a doctor who knows something about it.
We're here to help!
Adele

Posted on: Tue, 02/28/2006 - 8:56am
Adele's picture
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Joined: 01/31/2005 - 09:00

Jason, I just have to add that I am appalled that a day care center would be so ignorant that they would use peanut butter in play dough.
Dealing with people's ignorance about peanut allergy is as difficult as keeping our diets peanut-free.
Excuse my venting...

Posted on: Tue, 02/28/2006 - 9:10am
anonymous's picture
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Joined: 05/28/2009 - 16:42

Hi there!!
Just a quick note to say....
I'm sorry your family is going through all of this. And very thankful that your little one is ok now.
We had our reaction at 12 months...and DD is now 5 and lives a normal happy life. Yes food is always an issue, but we do our best to make it a liveable issue. She has attended 2 different pre-schools, goes to dance class, church, Sunday school, has attended vacation bible school, gone on play dates and went to birthday parties.
We have drilled it into her head about how dangerous food can be, especially those "hiding peanuts". And yes, we have had to pull a piece or two of candy out of her mouth.
But you are the parent and you will do all you can to keep your child safe. You have definitely come to the right place. Just keep reading the posts and don't let anything get you down. Make sure you have your epi-pen and Benadryl with you at all times.
Good Luck!!

Posted on: Tue, 02/28/2006 - 9:46am
mommyofmatt's picture
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Joined: 03/12/2004 - 09:00

Noah's Dad,
So sorry about your son's experience. It's very scary when they're so young. Since you asked for other's experiences, here goes:
My ds is 3, almost 4 now, and we found out about his allergies at 1 year old after we gave him a sip of milk, and he had a fairly severe reaction. Through testing we found out about peanut and egg.
Since his diagnosis, he's had 1 contact reaction to peanut protein from shampoo in the bathtub, and I believe 1 residue reaction. Neither of these required the epipen.
It's very, very scary in the beginning. And you've been through a traumatic experience today. Give yourself time to absorb what you've been through, and the more you learn, the more in control you'll feel.
My ds attends preschool, and honestly the tougher allergy for me at preschool is the milk since the school is peanut free. We go to playgroups, birthday parties, playdates, the whole deal. We're just very careful about what he eats, washing his hands after being in public, and always having the epipen and benadryl with us.
Hope he's feeling much better now. This site is a fabulous resource! Meg

Posted on: Tue, 02/28/2006 - 11:03am
dgood's picture
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Joined: 03/27/2004 - 09:00

First of all, I am so happy to see a Dad on the board, you sound like an wonderful father and your son is very lucky!
I discovered my daughter's peanut allergy 2 years ago right around 12 months old. My mom had given her a taste of my son's peanut butter sandwich and supposedly she loved it. I then tried it a few days later. She didn't even eat the cracker, just touched it to her lip and she knew it was not good. She developed 7 hives instantly on her face. Luckily, we haven't had a reaction to peanut since but I am diligent in regard to reading labels and calling manufacturers, not allowing any restaurant food, and not letting anyone watch her but my mother who is now very on top of things. There are certain manufacturers I trust and I don't deviate brands often.
I'm sure you will soon find out what an epidemic this has become. More children are developing food allergies than ever before. The good thing is that an estimated 20% can potentially outgrow them, but the odds are against that.
I would suggest having an allergist perform a CAP RAST blood test to determine if any other allergies exist. We did this and found out our daughter is highly allergic to egg white and slightly to walnut and latex. Many times, children have a sensitivity to more than one thing.
Just read as much as you can on the board and get your son the best allergist in your area. Make sure to have several epipens and liquid benedryl available and always carry two pens and benedryl (not in car due to heat/cold). Education will help you feel more in control. I cried and pitied my family for the first few weeks then finally accepted our fate and took control of the situation the best I could.
Give it time and you will figure out your comfort zones.

Posted on: Tue, 02/28/2006 - 11:32am
MarkiesMom's picture
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Joined: 02/23/2006 - 09:00

I just found out last week that my son (a little over 2 yrs) is allergic to pistachios. Now he must follow strict avoidance of all PN/TN -- as now I understand his immune system is set for further allergies, and I carry epi pens and benadryl. I was fortunate that his reaction didn't require hospitalization, but the uncertainty of future reactions to contact will always be there. I had to take him to his speech therapy class today and explain his *new* situation -- to my surprise, his ST has two teenagers, both with severe PA. She assured me that this is very manageable; her son carries his epi with him everywhere; handles his own diet, even goes to a special camp in Canada for PNA. I think I cried for the first week after I heard about my son, but the more I reach out, I realize that this is not a disability or a terminal diagnosis; it's a major lifestyle change (not a welcome one, but it's here -- and I will do whatever it takes to ensure my son's safety)

Posted on: Tue, 02/28/2006 - 11:47am
cgroth's picture
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Joined: 01/25/2006 - 09:00

Hi,
What a scarry day you've had! My daughter is also 13 months old we just recently found out about her allergies. She has never had a bad reaction to peanuts. We found out about all her allergies after she reacted to milk with hives. It is so hard when they are this little. They can't say what is going on and every time she cries I'm afraid she's having a reaction! This site has been wonderful and has tons of good information. Keep reading!

Posted on: Tue, 02/28/2006 - 12:22pm
NoahsDad's picture
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Joined: 02/28/2006 - 09:00

Thank you for the comments so far. The daycare says they follow the AAP's reccomendation on peanuts and, sure enough, when we did some google work, we found a lot of reference to that 12 months for peanut butter. We can't find the specific statement from the AAP ourselves yet, but lots of reference to that number. While I find myself wanting to be mad at someone, they seem to have always had his best interest at heart and they are cleaning house even as we speak. One peanut allergy to them means no nuts for anyone.
We are scheduling a RAST test with a very good allergist in the area tomorrow, hopefuly they aren't too back logged and can get us in. In the meantime, we are watching him like a hawk (he's our first and only) and making sure he gets all of the meds prescribed. We don't have an epi pen yet but I suspect a Jr is in our future.
On the very plus side, he is back to his normal self this evening, just seems to be a little sore and is having a hard time drinking since his lips got pretty messed up from the swelling. He's back on straight baby food until his throat is a little less sore and our house is now peanut free (looks like even our dog food had peanuts).

Posted on: Tue, 02/28/2006 - 12:30pm
Anonymous's picture
Anonymous (not verified)

Hi Jason, your son's first reaction was at the daycare, right? I wouldn't hold it against them that they didn't know. Nobody did.
But, it's good to know they are willing to eliminate all peanuts for him. Seeing is believing.
If you have to wait to see a specialist, call your family doctor to get a prescription for a jr. epi-pen. In fact, in some areas you don't need a prescription. (If you have insurance, you might want a prescription just to make sure it's covered though.)
Sorry you had such a horrible introduction to this. Things will get easier though.

Posted on: Tue, 02/28/2006 - 3:39pm
Corvallis Mom's picture
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Joined: 05/22/2001 - 09:00

I can offer you my deepest sympathies!
Our daughter was 11 months old when we had our first terrifying visit to the Emergency Room. She went on to develop allergies to many other foods, including eggs, soy, wheat, and dairy. Most of these she has now outgrown, but that was a very rough three year period. (So be prepared... the ride can be pretty bumpy for a while!)
She is now a happy, perfectly normal six year old who doesn't live her life terrified of food. She does have certain restrictions, but these are the way she has [i]always[/i] lived her life, so they do not seem to bother her as they do some kids.
We have had only one more trip to the emergency room since that first one.
The first few years is the hardest, when they are so little. But you do get used to it after a while. It becomes your new normal.
[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Sorry you had such a harsh introduction to PA, but I [i]can[/i] offer you genuine sympathy. We've been there with our daughter.
I wish I had known about this site back in the day. Glad you found us so soon.

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