11 month old

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Hello! I have an 11 month old DS who has had eczema since he was 6 weeks old. It has definitely gotten better and less widespread as he has gotten older but he almost always has patches behind his knees and in the creases of his ankles. When he was 10 months old I gave him a piece of grated cheese and he got a raised rash around his mouth in less than 5 minutes. It lasted about 1/2 hour and went away. I tested it with yogurt a few weeks later and again, 7 minutes later that same rash. So I was pretty sure he had a dairy allergy. I got a referral to a dermatologist from our ped. (who is not taking any of this seriously at all!) and got the derm. to prescribe a RAST test. They tested the top 8 plus avocado and banana (he had vomited for 1 hour straight after eating both those). He came back with a positive in the nut panel and egg. Nut mix contained Peanut hazelnut, brazil nut, almond and coconut and he scored a .49 (class1). Egg was both yolk and white and he again scored a .49 (class 1). My ped. told me he just wouldn't be able to eat a bowl full of nuts but since he scored so low not to worry and that I should avoid egg. he would not prescribe me an epipen and said since he has never had an ana. reaction not to worry. Well I am worried! A few days after the test (but before I had the results) I ate a peanut butter cookie and kissed my son. He got a welt on his cheek where I kissed him and again that rash around his mouth. Later that afternoon he was checking out a daycare with me and mouthing toys. Well he suddenly got that rash around his mouth. I asked what they had for lunch earlier and it was PB &J. SO to me that seems pretty serious to have such a sudden reaction (although not severe) when he has never even ingested peanuts! Why did they do a whole nut panel? And why egg white and yolk together? wouldn't he test positive even if he was only allergic to one of them? Sorry so long - my question is... I am going to another ped. tomorrow, one who is more holistic, and I am wondering if anyone can help me formulate a list of questions for her. I just feel so overwhelmed and cannot think straight and my husband is not taking this seriously either. Am I making this into a bigger deal than it is? Or should I be reading labels and feeling as worried as I do? Any advice is appreciated. Thanks! Karen

On Jun 29, 2005

Hello Karen, I'm sure you'll be hearing from moms of PA kids later in the day, but I can bet they tell you the same thing that I will. ( I have PA but don't have PA children.)

My opinion is that you should take your baby to a pediatric allergist and in the meantime avoid all nuts! Yes, read labels religiously! I don't think you are over reacting at all. Until you know, you can't be too careful.

Good luck, Adele

On Jun 29, 2005

Hi Mom2Mathias,

I'm glad you found this site. I think the mixes are considered a screening test. Since your son tested positive, I agree with Adele, you should take him to an allergist for further testing. Since he reacted to toys, avocado and banana I would consider having him tested for latex allergy. Below is a link about latex allergy. Some people who are allergic to latex react to avocado and banana (and some other foods as well) which have latex-like proteins in them.

[url="http://familydoctor.org/254.xml"]http://familydoctor.org/254.xml[/url]

Good luck getting this figured out! I think you're on the right track. Keep in mind that allergy tests can give false negatives. The real test is whether or not a person reacts to a certain food. Such food challenges should be carried out in a clinic or hospital under a doctor's supervision where any reaction can be treated promptly.

Cathy

------------------ Mom to 6 yr old PA/TNA daughter and 2 1/2 yr old son who is allergic to eggs.

On Jun 29, 2005

I don't think it was the toys he reacted to. They had PB & J for lunch that day. He has even had latex gloves in his mouth before and no reaction (we had breasfeeding problems early on and various Drs. checked out his latch, tongue etc.) I am confused because I thought there was more of a chance of a false positive but that false negatives were very unlikely with the RAST test. Thanks! Karen

On Jun 29, 2005

I second what Momcat said, the most accurate indicator of an allergy is a reaction.

We've had first hand experience with false negatives and RAST tests. My son is peanut, milk, and egg allergic. His CAP RAST for milk came back negative, the skin test was positive. We did a milk challenge and failed it despite the negative RAST.

We've been at this for two years now...which isn't all that long, but I've never heard of mixing the nut panel together (if I understood your post correctly)??? And, coconut isn't a nut, it's a fruit, I thought.

I'm just wondering if the nuts are all grouped together in the testing, are you really getting an accurate allergy reading of individual nuts or does it take the average? Maybe someone else knows...

From my understanding, a negative skin test is about as accurate as you can get for ruling out an allergy. I would recommend seeing a pediatric allergist, see what they say. I'd also be concerned about the dairy reactions you mentioned. My ds' RAST is now negative to milk, and he's definitely still allergic. Sorry to be a downer...

I'd avoid all nuts, milk, and egg until you talk to a pediatric allergist.

If you haven't already, check out foodallergy.org for tips on avoiding those allergens. Also, if it turns out he's allergic (which based on reactions, something's going on), a great book is: The Parent's Guide to Food Allergies by Marianne Barber.

Good luck! We're here if you need us. And, I don't think you're overreacting at all.

------------------ ***[b] ALLERGY ELIMINATOR*** [/b]

Meg, mom to: Matt 3 yrs. PA,MA,EA Sean 3 yrs. NKA

On Jun 30, 2005

we just go back from the Dr. and she took it way more seriously than the first doc. We now have a prescription for 2 epi-pens and she is trying to locate a pediatric allergist in San Francisco area (we live about 300 miles from there but its the nearest city). I am so overwhelmed right now and pretty panicked. I am glad to have finally confirmed with a Dr. what I already knew - this is a big deal. But I am unsure of what to do next. I am breastfeeding still and avoiding dairy, nuts and egg. Should I also read labels for may contain...even for myself with breastfeeding? Totally confused by the food thing - it feels so daunting with all the hidden peanut and dairy ingredients. I also feel like people around me just do not understand. ANy words of encouragement are welcomed - i could use them right now. Thanks, Karen

On Jun 30, 2005

Hi Karen, You and DS will do just fine. This web site is the best resource as most of the members are just like you - moms with PA kids.

I was just diagnosed at age 55. Initially, I spent a lot of hours here reading everything. This is how I've been educating myself on PA. I'm a firm believer that the more you know the less there is to fear.

Keep in mind that when you're reading old information here on manufactured food that the info could be out of date. Always read labels....even if it's something you purchase regularly. Ingredients can change as can the method of manufacturing.

I don't know how careful you have to be with 'may contains' while breastfeeding - but someone here will give you the info you need. That's what I love about this web site.

There is promising research being done on a vaccine for PA and some kids do outgrow it. This may not be a life long allergy for your son.

It'll be ok. You'll get this figured out. Hang in there! Cheers, Adele

On Jun 30, 2005

I know, it's incredibly overwhelming at first. Then, don't worry, it just gets hard, lol, but manageable.

I didn't breastfeed, so not totally sure about that one...but I think you're safer trying to avoid may contains for it all. I don't eat anything ds is allergic to when he's awake, and I eat alot of carbs, veggies, meats, fruits, or things I bake that are safe. It does get old...I eat milk or egg things when he's asleep or we're out.

Any chance (treading lightly here) you might want to think about formula? My ds tolerated Alimentum really well. Or I guess at a year, he could drink soy or rice milk? My ds drinks soy milk.

You need to cut yourself some slack. It takes a long time to adjust to multiple food allergies, labels, epipens, the whole deal. Learn a little at a time, and if you feel like you're head's going to pop off, take a break.

The resources I gave you above are the ones I've used, and I've learned a ton from this site! Hang in there, keep following your mommy instinct that led you to another opinion, and you and your son will do fine.

And, the more you read here, the more you'll see that MANY people don't understand initially, it takes a while, and you'll run into some people that never get it. But that's why we come here [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Meg

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