Would you buy a product that would keep your epi warm/cool?

35 replies [Last post]
By pitterpat on Thu, 08-31-06, 23:51

DH is a little bit of a tinkerer and has decided to work on making a container in which to keep your epi that would keep it warm or cool (separate models for warm and cool). It would have a sensor on it to tell you if it did get too hot or cold - something you could reset and reuse.

His thought is that there are so many times when we want to go to the beach/pool/park and it is 100 outside that we want to keep the epi safe as well as know if it got too warm. This would be a smallish tube the epi would slide inside rather than a bulky cooler we use presently.

Should he try to market this or just make me happy with the one and only? Would you buy it?

Just curious. I was so excited when he told me that I wanted to share it with others if you are interested.

Patty

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Patty
mom to
Sara (7/02) allergic to pn, grass, trees
Julia (9/04) asthma and allergic to tree nuts (no testing, just reactions) (tests + to eggs, no reaction)

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By Danielle on Fri, 09-01-06, 00:54

Absolutely and we would but many of them. We live in Florida but vacation frequently in Colorado for winter trips. So basically, we need some sort of device almost 9 months out of the year.
Good luck and let us know.

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By falcon on Mon, 09-04-06, 01:51

I would be very interested!

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By gw_mom3 on Tue, 09-05-06, 07:57

I would buy that. We don't have problems in cold weather (since we don't really go anywhere. lol) but we do in warm. I hate having to keep an ice pack in with the epis and then check every 10 min to make sure it's not getting TOO cold from it.

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[b]~Gale~[/b]

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~Gale~

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By PurpleCat on Tue, 09-05-06, 10:48

Tinker away PLEASE - sounds like a winner to me!!!!

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Keep Smiling
DD - allergic to peanuts, tree nuts, coconut, and egg

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By schnoob on Tue, 09-05-06, 13:47

I would DEFINITELY buy that. I live in Texas and am sure that Im carrying around Epis that have been ruined by the heat just by running errands during the day and having them in my purse. We went on a ski vacation last year and that was a real stress.....please tell him to hurry !!!!

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By ajgauthier on Tue, 09-05-06, 21:30

I'd buy it.

I'm in Arizona and I need an insulated carrier (I use a baby bottle carrier) for my epi's each day from about March to late October.

The only really insulated carrier I found had some freak GPS thing in it for camping and it was $150! There was a trigger that if you opened it, 911 was immediately triggered and the GPS location was given to them. Fine for back country camping, not good for everyday use.

I also like to keep benadryl liquid and chewables in the insulated sack too.

I would suggest for marketing, that you make different sizes for different combos of things. Maybe include some of those 2oz size nalgene plastic containers to put liquid meds in? room for inhalers, or multiple epis, and liquid meds.

Great idea! Good luck!

Adrienne

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30-something survivor of severe peanut/tree nut allergy

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***retired from pa.com***

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By on Wed, 09-06-06, 17:22

I'm not sure if I'm understanding you correctly.

If you mean a carrier that actually [i]affects[/i] the temperature of the epi-pen, then no, I don't think I would buy that.

If you mean a carrier that prevents outside conditions (sun, snow) from affecting the termperature of the epi-pen, then I would be interested.

I could give you my wish list for a carrier, but I think your son should make [b]your[/b] wish list come true. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

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By ajgauthier on Wed, 09-06-06, 20:28

Quote:Originally posted by AnnaMarie:
[b]I'm not sure if I'm understanding you correctly.

If you mean a carrier that actually [i]affects[/i] the temperature of the epi-pen, then no, I don't think I would buy that.

If you mean a carrier that prevents outside conditions (sun, snow) from affecting the termperature of the epi-pen, then I would be interested.

I could give you my wish list for a carrier, but I think your son should make [b]your[/b] wish list come true. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img][/b]

right right...I agree with Anna Marie - I was thinking more of a properly insulated carrier to protect from outside temperature influences.

Adrienne

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30-something survivor of severe peanut/tree nut allergy

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***retired from pa.com***

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By happycat on Wed, 09-06-06, 22:08

I would be interested in something like this, especially if it were small enough to transport easily (i.e. about the size of an epi-belt, or some similar holder/pouch - easy to fit into a purse).

I recently looked for an insulated bag this summer before a beach vacation - I looked online, and my pharmacist called several medical supply providers for me, and there was nothing that would fit epipens (I wanted something smaller than the standard lunchbox/thermos that many people reccomend). The pharmacist was very surprized that there was nothing on the market for this purpose.

And edited to add... like Annamarie and Adrienne, I'm thinking insulation rather than something that actually heats/cools, Although I remember reading (here I think) about some bag that you cool by running cold water over first and then put your medication in (it was insulin I think). Somethink like that I would be OK with, something that retains heat or coolness, but doesn't generate it itself.

[This message has been edited by happycat (edited September 06, 2006).]

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By DebO on Thu, 09-07-06, 16:20

In the summer I would love some sort of insulated, durable, cylindrical tube with a cylindrical ice pack that can be placed inside it and around the epi which would then keep it from getting too hot in hot weather.

the insulation from the cold isn't as much of an issue because we just put the fanny pack inside the jacket or in an inside pocket....

It would be great to have a resonably priced option though!

deb

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[B]**ENRICHED**{/B}

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By Nutternomore on Sun, 09-10-06, 05:53

There already is a product on the market that could be used to keep an Epi-pens cool.

It's marketed to the diabetic market, but I came across this at a disaster preparedness fair last year. I believe the "Duo" product will just barely fit two Epi-pens (if you remove them from the protective tubes).

[url="http://www.friouk.biz/us/"]http://www.friouk.biz/us/[/url]

We've not brought the product as of yet, since we've not had a problem with the Epi's getting too hot (and we live in a city in California where the summer temps regularly exceed 100 degreees)...

But if we ever need something, I really like this idea...

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By TRexFamily on Sun, 09-10-06, 12:00

I would like to see it available in a size that can also hold an albuterol inhaler. Those can explode in temps over 120. Cars can easily reach temps over 120 in the summer, and some climates are routinely over 120 in the summer.

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By TinaM on Sun, 09-10-06, 21:14

I would be very interested! Especially something that would keep the epi cool, since I live in the south and the temps sometime exceed 100 degrees.

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By gw_mom3 on Tue, 09-12-06, 08:28

Quote:Originally posted by Nutternomore:
[b]
We've not brought the product as of yet, since we've not had a problem with the Epi's getting too hot (and we live in a city in California where the summer temps regularly exceed 100 degreees)...

But if we ever need something, I really like this idea...[/b]
How do you manage that? We live in an area where it almost never gets that hot (maybe mid nineties at most) and I keep a thermometer in my epi bag. When we go to the park or zoo or my kids' games, I almost always have to end up putting the epi bag in the cooler because it's getting too hot (then I have to keep checking it so it doesn't get too cool). When we were in Calif a couple of summers ago it wasn't actually that hot (maybe mid 80's) but we drove to vegas and stopped in Baker on the way and it was REALLY hot there-the world's biggest thermometer said 110. We were there less than 10 minutes and the epis got to almost 100 degrees in that time.

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[b]~Gale~[/b]

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~Gale~

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By Nutternomore on Tue, 09-12-06, 15:06

We've just placed the Epi-pack in an insulated cooler bag (no ice or cooler pack), and placed it inside another bag to keep it out of direct sunlight. We did this for when DS went to day camp this summer without incident. Admittedly, we've never put a thermometer in the Epi-pack. Interesting idea...what kind did you use to verify temperature?

[This message has been edited by Nutternomore (edited September 12, 2006).]

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By gw_mom3 on Wed, 09-13-06, 08:30

I use the kind that you normally put in the fridge. However the last time we couldn't find one like that so the last one was just a small room type. It broke last week (they don't last long in there-so I'm always sure to get the alcohol type or whatever is in that red type) so I need to get another one tomorrow. I'll buy the refrigerator type if they have them (we were on vacation last time).

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[b]~Gale~[/b]

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~Gale~

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By TinaM on Wed, 09-13-06, 18:40

When it gets 100 degrees here, we usually put a cooler pack in the epi-pen bag and wrap the pens with a dish cloth or something. I saw this idea in another thread and it works pretty well.
However, it would be nice to have something that you didn't have to put a cold pack in and worry about the temp. all the time.

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By mharasym on Wed, 09-13-06, 23:45

Have you checked with the maker of the Epipen for their advice on how important it is to remain within a certain temperature range and if so what that range is? According to the .pdf on their website they say, Room Temperature and out of direct sunlight - that's about it!

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By pitterpat on Fri, 09-15-06, 13:00

Room temperature has a technical and legal meaning by the fda. And studies have shown that epinepherine deteriorates if not kept at that temperature.

There is lots of information available about the temp req for medication. Most in the form of medical journals and lots about concerns that EMS vehicles aren't keeping meds safely. There is a complicated logorithem about how hot it can get and for how long explaining that the effect is cumulative, etc. DH has read all that and is very concerned that our epi would not have enough epinepherine left in the proper state to safe dds' lives.

Dh is still tinkering. I was just curious if I should try to share his hard work when he's finished. I would feel selfish if I were enjoying this great idea and everyone else was still battling the problem.

And the device will affect the temp of the epi. We haven't found a way that is compact that will keep the epi at the correct temp all day outside in GA. It cannot make it TOO cold or TOO hot though. It will have temp sensors to ensure that. Plus, he's planning to attach thermometers to let you knwo the max and min temp it reached.

Thanks for the feedback though. I'll let you knwo how it comes out.
Patty

__________________

Patty
mom to
Sara (7/02) allergic to pn, grass, trees
Julia (9/04) asthma and allergic to tree nuts (no testing, just reactions) (tests + to eggs, no reaction)

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By gw_mom3 on Fri, 09-15-06, 18:29

Quote:Have you checked with the maker of the Epipen for their advice on how important it is to remain within a certain temperature range and if so what that range is? According to the .pdf on their website they say, Room Temperature and out of direct sunlight - that's about it!

It says right on the EPI that you need to keep it between xx and xx temp (don't have them right next to me and I'm too lazy to get up right now).

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[b]~Gale~[/b]

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~Gale~

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By melissa on Fri, 09-15-06, 20:18

I would be very interested...it would be nice if it was big enough for 2 epi's...
by the way, I own the Frio wallet mentioned above...liked it at first, but after about a year it doesn't seem to hold temp as well and it makes the epi container damp...plus you have to plan ahead by soaking it for 10-15 minutes, then letting it dry...sometimes I forget to get it ready.
melissa

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By Melrose Mum on Tue, 09-19-06, 20:57

We LOVE ur Frio products, we have one that holds one epi (in it's Epi-mate) and another that holds 2 epis (in their epi-mates) We've had them for a year and can't imagine how we could get by without them. They have CHANGED OUR LIVES!

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By on Wed, 09-20-06, 01:56

pitterpat, just some information for you.

You've heard of the e-belt by zonii - it's the one sold by medic-alert. It was designed by a mom because her son was being teased when he wore a fanny pack to school. She made three - one for each of her kids. When people saw it they asked where she had got it, and eventually it became a business.

There was an article about it in Allergic Living Magazine.

********

I wouldn't say to do something like this in the hopes of getting rich. But, when you find a need it can sometimes be turned into a business - and if you do anything better then break even, it's a success. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By pitterpat on Thu, 09-21-06, 13:56

My dh put his new temperature sensor in dd's epi-belt. The alarm went off within 20 minutes of her wearing it. It is set to go off if the temp goes above the "room temperature" of 86. I was surprised. Makes me rethink everything we do with the epi.

Patty

__________________

Patty
mom to
Sara (7/02) allergic to pn, grass, trees
Julia (9/04) asthma and allergic to tree nuts (no testing, just reactions) (tests + to eggs, no reaction)

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By ajgauthier on Thu, 09-21-06, 23:15

Quote:Originally posted by pitterpat:
[b]My dh put his new temperature sensor in dd's epi-belt. The alarm went off within 20 minutes of her wearing it. It is set to go off if the temp goes above the "room temperature" of 86. I was surprised. Makes me rethink everything we do with the epi.

Patty[/b]

I wonder if body heat affects the epi-belt?

Adrienne

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30-something survivor of severe peanut/tree nut allergy

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***retired from pa.com***

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By shogun220 on Sat, 04-14-07, 03:18

pitterpat, just wondering if your DH has made any progress on this. I would be interested.

My thought would be a stainless steel vacuum tube just like a thermos but the perfect size for one or two epi-pens. A thermos will keep stuff hot or cold for hours so I imagine it can keep something room temperature for just as long.

Also, several posts mentioned a thermometer- which ones do you use? A min/max function would be great, along with an alarm, and compact in size.

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By mistey on Mon, 05-07-07, 14:47

Nutternomore- I tried your link but it didn't work.

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By Nutternomore on Mon, 05-07-07, 16:03

Quote:Originally posted by mistey:
[b]Nutternomore- I tried your link but it didn't work.[/b]

Looks like their website is down. In the meantime, here's a link to the Canadian website...you can read about it.

[url="http://www.frio.ca/about_frio.html"]http://www.frio.ca/about_frio.html[/url]

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By gw_mom3 on Mon, 05-07-07, 17:49

Quote:Originally posted by melissa:
[b]I would be very interested...it would be nice if it was big enough for 2 epi's...
by the way, I own the Frio wallet mentioned above...liked it at first, but after about a year it doesn't seem to hold temp as well and it makes the epi container damp...plus you have to plan ahead by soaking it for 10-15 minutes, then letting it dry...sometimes I forget to get it ready.
melissa[/b]
Would it be possible, if you forget, to buy a bottle of cold water when you get to your destination and then soak it? It wouldn't/shouldn't get too hot by that time, I wouldn't think. Or you could get a bottle of water on the road somewhere. I think I'll get one of these for our vacation. We'll only need it for when we go to disney, zoo and beach.

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[b]~Gale~[/b]

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~Gale~

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By ajas_folks on Wed, 05-09-07, 00:42

I really like the idea of having one of these at home at least in case of hurricane or long power outtage in heat here.

Since there are many sizes available from one of the Canadian retailers -- [url="http://www.diabetesexpress.ca/"]http://www.diabetesexpress.ca/[/url] --
which of the wallets is it that holds 2 epipens? Large? Extra Large?

Thanks,
Elizabeth

(Go to website & enter FRIO in search box to see all the sizes they carry.)

[This message has been edited by ajas_folks (edited May 08, 2007).]

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By ajgauthier on Wed, 05-09-07, 00:45

Quote:Originally posted by ajas_folks:
[b]I really like the idea of having one of these at home at least in case of hurricane or long power outtage in heat here.

Since there are many sizes available from one of the Canadian retailers -- [url="http://www.diabetesexpress.ca/"]http://www.diabetesexpress.ca/[/url] --
which of the wallets is it that holds 2 epipens? Large? Extra Large?

Thanks,
Elizabeth

(Go to website & enter FRIO in search box to see all the sizes they carry.)

[This message has been edited by ajas_folks (edited May 08, 2007).][/b]

you can also get FRIO on Amazon.com

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Adrienne

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***retired from pa.com***

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By gw_mom3 on Wed, 06-20-07, 06:08

The FRIO got a few negative reviews at amazon. We'll be going to southern Calif and Vegas this summer (August-HOT!) and would like something to keep the epis cool in dh's backpack for disney, zoo and the beach. Has anyone else tried the Frio? One person on this thread said it didn't work as well after a year and one said it changed their life. If I get one I'd get the large so we wouldn't have to take the epis out of the holders.

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[b]~Gale~[/b]

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~Gale~

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By niche on Wed, 06-20-07, 19:57

Hi,

I just got one of the Frio pouches about a month ago. I got it for my husband who takes our son to school and drops him off. I wanted something he could just leave in the car all day. It is just starting to really heat up here, yesterday it was 90 and so far I am pleased with it. When the weather was cooler I could leave it for several days. Now I just bring it in each night and refresh it. For our purposes it seems to be working well.

hope that helps,
Nichele

DS 5 PA TNA
DD 1 ?????

__________________

Nichele

DS 6 PA, TNA
DD 2 Fpies to Rice and Oat

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By gw_mom3 on Wed, 07-04-07, 17:35

Frio owners-what size pouches do you have and how many epis do they hold? In or out of the tubes (that come in the twin packs)? I wrote an email to the company over a week ago asking about interior dimensions and epis (like it says to do on their website) and they never replied. It is so typical anymore for companies to not reply to questions and very aggravating. I have 3 weeks to get something.

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[b]~Gale~[/b]

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~Gale~

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By Melrose Mum on Tue, 07-31-07, 18:15

Sorry, I don't visit these boards as often as I used too....
We have (I think) the small wallet and a large wallet. The small holds one epi in an 'epi-mate' container (which is larger than the new tubes they come in from the pharmacy) and the large holds two. The interior dimension can be affected by the absorbsion level of the crystals, when it is 'full' the space is tight, as the water (which does not need to be cold when you soak it by the way) evaporates (the evaporation process is what keeps it cool, so you must keep it in a breathable purse/bag) the crystal begin to shrink and the interior space expands a bit. We have 'over soaked' ours a couple of times and found that we could just barely squeeze in the epi-pens - but after a little evaporation time (the next day, or in your oven if you're in a hurry) it's fine. (we've never soaked them to the point that we couldn't get the epi-pen in AT ALL, not sure if that's possible.) I have noticed that the Frio can't work properly if it can't 'evaporate'. My DD had a fanny pack she sometimes wore that was a nasty/plasticy material....we switched to a more breathable pack and the Frio works just super, ever with her added body heat combining with extreme outdoor temps. We bought ours from [url="http://coolerconcept.com"]http://coolerconcept.com[/url]
Can't say enough, I SWEAR THIS IS THE BEST THING EVER!

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