Why NOT obtaining Section 504 for your child is a DISSERVICE to your child... Page 2

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By synthia on Fri, 06-03-05, 13:34

Quote:Originally posted by Gail W:
[b][b]Myth #19: If a child has an OHI designation, he is not protected under Section 504, and he is not entitled to LRE.[/b]

OHI under IDEA entitles a child to LRE by law. IDEA's main purpose is to ensure Least Restrictive Environment for children with disabilities so that they are integrated fully with their non-disabled peers! Additionally, any child with an OHI designation is automatically covered under Section 504.

In my particular case, Mariah does not have the OHI designation for her PA. That is why we pursued a Section 504 Designation. [/b]

Same here Gail!! Little V had no OHI, under the IDEA,according to our disitrict OHI is defined different.Go figure.

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By MommaBear on Fri, 06-03-05, 14:11

Quote:Originally posted by synthia:
[b] Same here Gail!! Little V had no OHI, under the IDEA,according to our disitrict OHI is defined different.Go figure.

[/b]

What defines "OHI", Federal Law or Individual School Districts? Something else?

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By synthia on Fri, 06-03-05, 14:16

You know mommbear,I ask myself the same ?
Don't know [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img]

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[This message has been edited by synthia (edited June 03, 2005).]

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By SueQ on Fri, 06-03-05, 18:55

Gail,
Is your daughter permitted to carry her epi-pen in school? If so, is this part of the 504 or IHP or what?

My ds will be entering Intermediate school in the Fall (grades 5/6) and I just spoke with the Asst. Superintendent who thinks he is too young to be "given the responsibility" of carrying his own epi. The intermediate school is a larger, more spread-out school than his elementary school and I do not feel comfortable with the distance from where he may be and the nurse's office where they want the epi kept. I'm considering requesting a 504 if this is how to go about getting permission. Am I on the right track?

TIA,
Sue

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By Gail W on Fri, 06-03-05, 20:18

Quote:Originally posted by SueQ:
[b]Gail,
Is your daughter permitted to carry her epi-pen in school? If so, is this part of the 504 or IHP or what? [/b]

No, not currently, but we're working on it. A new School Board policy is scheduled for a vote next month.

There currently is no law in the state of Missouri that specifically gives children the right to carry their epi-pens. There [i] is [/i]Missouri law that allows for children to carry their [i]meter-dosed asthma inhalers[/i], but nothing that addresses epi-pens.) So, in our state, it is left up to each individual school district to address the issue of students carrying epi-pens. Our School Board has policy that [b]prohibits[/b] children from carry any medication with the one exception of meter-dosed inhalers because state law grants children this specific right.

Soooo.... we brought this to the attention of our School Board. We have requested that school board policy created policy that would allow children to carry life-saving medications such as epi-pens. It is currently in a committee who is word-smithing the language. I think it is on the agenda for June or July.

So Mariah will be allowed to carry her epi-pen next year... or so is the plan. I meet with staff next week to review her IHP and 504 plan. I'm not sure where it will be stated. I'll get back here and answer this question after June 8.

Quote:Originally posted by SueQ:
[b]My ds will be entering Intermediate school in the Fall (grades 5/6) and I just spoke with the Asst. Superintendent who thinks he is too young to be "given the responsibility" of carrying his own epi. The intermediate school is a larger, more spread-out school than his elementary school and I do not feel comfortable with the distance from where he may be and the nurse's office where they want the epi kept. I'm considering requesting a 504 if this is how to go about getting permission. Am I on the right track?[/b]

We are still evaluating now we want to mange this. We want Mariah to carry her epi-pen, but we also want epi-pens to be available throughout the building. The Middle School currently has 5 "trauma kits" strategically located throughout the building. Each trauma kit contains an epi-pen. We think it might be more efficient if "universal procedures" were continued to be used instead of introducing a new and different system whereby the staff would try to retrieve Mariah's epi-pen from her backpack.

But we want one in her backpack also anyway... for after school events, etc.

Our concern isn't that she isn't old enough or responsible enough to carry her epi-pen. Our concern is that if Mariah is having an allergic reaction that she may not be physically capable of administering it to herself. We want an adult trained in LTFAs with immediate access to an epi-pen with Mariah at all times.

Does that make sense?

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By Momcat on Fri, 06-03-05, 22:10

What a switch! At our school, we requested that the teacher carry the epipen. The school wants our daughter (age 6) to carry it. They say she should take responsibility for her treatment. We agreed to let her carry it if her teacher is trained to administer it. Also, there will be backup epipens stored in each room (i.e. classroom, library, etc.) where she will be. Here in California, we have new state law allowing children to carry epipens at school.

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By Gail W on Sat, 06-04-05, 13:00

Quote:Originally posted by Momcat:
[b]What a switch! At our school, we requested that the teacher carry the epipen.[/b]

Just to clarify, so did we ... at the elementary school grades K - 5.

Our DD is entering Middle School grade 6.

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By SueQ on Sat, 06-04-05, 15:13

Quote:Originally posted by Gail W:
[b] We think it might be more efficient if "universal procedures" were continued to be used instead of introducing a new and different system whereby the staff would try to retrieve Mariah's epi-pen from her backpack.

But we want one in her backpack also anyway... for after school events, etc.

[/b]
Gail - another question: Does Mariah carry her backpack during the day or is it in her locker? My idea was for Sam to wear the epipen clipped to his waist (via epi-belt or such). With that scenario, if the staff is made aware that he *carries epipen* everyone would know where it is at all times.

I live in Pennsylvania, and we are in the same position as your state. Inhalers are permitted, no law about epi. My original question to the Asst. Superintendent was weather the district has a policy and she really didn't answer that... I believe there is no policy other than the blanket "no medications allowed to be carried". We are in very similar situations, as Sam was the 1st one in this district to have a LTFA, or at least the first one whose parents have notified the district of such. However, I know just in his elementary school, there are at least 3 kids in each class after his with PA. I mentioned this to the Asst. Superintendent, suggesting that now would be a good time to start formulating a policy.

If I can not get a policy in place to allow him to carry the epi, I like the idea of the emergency kits at several locations throughout the building and will suggest that. However, as you stated, this won't address the bus (which I've never let him take and now realize I should have worked toward earlier) and after-school activities.

Thank you very much for this thread. I am using it to guide me through this process. After dealing with the school on a friendly casual basis for 5 years, I now feel like I'm starting all over again with this switch to a new building and will need to be formal moving forward.

Sue

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By synthia on Sat, 06-04-05, 15:34

Sue,

Don't know if this will help or not,When Litle V had a IEP for developmently delay which she no longer qulify for as of age 6 or laungage. We had the teacher carrie 2 epipen in a waist sack.The principial wanted
1- epipen in the lunch room
1- in the pe room
1- in the nurses station

At the start of May or April can't remember which month,anyway we started to allow her to carrie the trainer in her waist sack as a test to see (if any) problems would arise!
No problems.
In our state Fla.The kids can carrie inhalers.
The Epi-pen new laws are being refined we'll see.
Good luck!
HTH

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By Gail W on Sat, 06-04-05, 16:01

Quote:Originally posted by SueQ:
[b] Gail - another question: Does Mariah carry her backpack during the day or is it in her locker? My idea was for Sam to wear the epipen clipped to his waist (via epi-belt or such). With that scenario, if the staff is made aware that he *carries epipen* everyone would know where it is at all times. [/b]

They have lockers, but we've been told that they carry their backpacks throughout the day. During my observations at the Middle School, however, this doesn't always necessarily seem to match what I see.

I would [i]love[/i] for Mariah to clip her epi-pen to herself somehow. We keep coming back to this as a good option, but Mariah absolutely objects. It's a fashion-diva issue [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] and we've just decided its not a battle to take on. At least not now, with the big transition to Middle School. The medic alert bracelet was tough enough: "Geesh mom, why don't I wear a big sign too?" <> LOL: We're trying to make pre-adolescence a tolerable life experience for us all. We've thought about her carrying an epi in her purse, but I guess girls keep the purses in their locker.

Middle School is a whole new beast, isn't it??

[This message has been edited by Gail W (edited June 04, 2005).]

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By synthia on Sat, 06-04-05, 16:16

Quote:Originally posted by Gail W:
[b] this doesn't always necessarily seem to match what I see. [/b]

This jumped out at me,I am sorry to say.
DH and my self are very aware people.

"What one may preceive as one wanting to sue is another ones preception of wanting to keep a child safe"!

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By Momcat on Sat, 06-04-05, 17:27

If you are looking for ways to discretely carry an epipen check this out:

[url="http://www.medipouch.com/products.html"]http://www.medipouch.com/products.html[/url]

Here is something we are going to use to store the epipens in the classroom, since the school was worried about possible tampering:

[url="http://www.safetysack.com/index.htm"]http://www.safetysack.com/index.htm[/url]

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By Nutternomore on Sun, 06-05-05, 05:20

Quote:Originally posted by SueQ:
[b]Gail,
Is your daughter permitted to carry her epi-pen in school? If so, is this part of the 504 or IHP or what?

My ds will be entering Intermediate school in the Fall (grades 5/6) and I just spoke with the Asst. Superintendent who thinks he is too young to be "given the responsibility" of carrying his own epi. The intermediate school is a larger, more spread-out school than his elementary school and I do not feel comfortable with the distance from where he may be and the nurse's office where they want the epi kept. I'm considering requesting a 504 if this is how to go about getting permission. Am I on the right track?

TIA,
Sue[/b]

Sue,

Few things to be aware of: when the time comes, make sure you know whether your state has passed a law allowing DS to carry his Epi; this thread will tell you all about the new Federal law and state law activity [url="http://uumor.pair.com/nutalle2/peanutallergy/Forum23/HTML/000151.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum23/HTML/000151.html[/url]

Re:your concern about where Epi should be kept, you can tackle this via 504. Regardless of whether you choose to institute a 504, though, you'll may find the AAAAI Position Statement #34 useful to support your position that the Epi needs to be near DS (not in the nurse's office)

[url="http://www.aaaai.org/media/resources/academy_statements/position_statements/ps34.asp"]http://www.aaaai.org/media/resources/academy_statements/position_statements/ps34.asp[/url]

Quoting: [i]Epinephrine should be kept in locations that are easily accessible and not in locked cupboards or drawers. All staff members should know these locations. Children old enough to self-administer epinephrine should carry their own kits. For younger children, the epinephrine device should be kept in the classroom and passed from teacher to teacher as the child moves through the school (eg, from classroom to music to PE to lunch).

All students, regardless of whether they are capable of epinephrine self-administration, will still require the help of others because the severity of the reaction may hamper their attempts to inject themselves. Adult supervision is mandatory.[/i]

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By qdebbie1 on Tue, 07-19-05, 12:25

Your email in profile doesnt work?
Hi Gail,
I have been trying to review your 504 post and get as much info as possible. I wanted to see if I could ask you some questions directly. I have a contuned eligibility meeting tomorrow. I have finally worked out the details of the plan itself to be satisfactory but I want it stamped with the 504 designation. The school has already told me on several occasions that he didnt qualify but would not put it in writing. We have a mediation scheduled for after the meeting if we cannot agree.
I have been putting sooooooo much effort in getting the plan and its workings in order that I suddenly do not feel prepared to fight for his designation.
I have a letter from his allergist and his pediatrician both using good wording like threatening major life activity and outright saying they review the 504 and believe he qualifies. Neither could attend the meeting because the district always gives me just a few days notice. I would extend it but my husband is demanding that if this is not settled by the first day of school(aug 5th) we will be taking him out of school. That is a topic for another day.
If I understand this correctly I am asking for this 504 to put the plan in the lap of the district rather than making it some kind of health issue for the nurse. I want the 504 so that everyone from the super to the janitor knows these are the accomidations and there is no gray area.
If you have time, I would really appreciate your input(I hope you are not out of town). How do I express the need for the 504. What legal backing do I have to demand it. I know I can ask for a hearing next, and I would but I would like this to be over now.
Thanks.

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By Gail W on Tue, 07-19-05, 12:50

Quote:Originally posted by qdebbie1:
[b]How do I express the need for the 504. [/b]

I wouldn't go down this path. "Need" isn't a qualifying factor, and no where in the law does it state that you must prove "need". IMO, this is an attempt to sidetrack you. The reason that you are requesting 504 Designation for your child is because he qualifies. Period.

A child qualifies for a 504 Designation based on clear criteria stated in the 504 law.

Line up your data (physician letter, USDA Guidelines, 504 law, state DOE guidelines, AAFA article, AAAAI guidlines, etc.) with pertinent statements highlighted and state "I've provided you with X number of authoritative sources proving to you that my child child qualifies for a 504 Designation. You must prove to me that he does not."

I sent you an e-mail.

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By Gail W on Tue, 07-19-05, 16:16

Debbie,

Here is what I consider to be the most important documentation:

[b]1. Federal sources (3):[/b]
a. Title 34 Section 504 of the Rehabillitation Act of 1973 (Title 34, Subtitle B, Chapter 1, part 104) in entirety. Source: U.S. Department of Education and the Office for Civil Rights, [url="http://www.ed.gov/policy/rights/reg/ocr/edlite-34cfr104.html#S3"]http://www.ed.gov/policy/rights/reg/ocr/edlite-34cfr104.html#S3[/url] Highlight sections on page 4.

b. Office for Civil Rights statement recognizing allergy as a "hidden disability". Source: U.S. Department of Education, [url="http://www.ed.gov/about/offices/list/ocr/docs/hq5269.html"]www.ed.gov/about/offices/list/ocr/docs/hq5269.html[/url] Highlight the entire paragraph beginning at the bottom of the first page that begins, "The key factor in determining whether or not..." and underline the ending where it states "breathing".

c. U.S.D.A. handbook, "Accommodating Children with Special Dietary Needs in the School Nutrition Programs". Source: U.S. Department of Agriculture in conjunction with the U.S. Department of Justice. [url="http://www.fns.usda.gov/cnd/Guidance/default.htm"]http://www.fns.usda.gov/cnd/Guidance/default.htm[/url] Highlight the paragraph on page 5 called, "In Cases of Food Allergy" where it states,[i]"...when in the licensed physician's assessment, food allergies may result in severe, life-threatening (anaphylactic) reactions, the child's condition would meet the definition of "disability"..."[/i] Also highlight the section on page 28 regarding "segregating children with disabilities...".

[b]2. State sources (2):[/b] (Try to find comparable documents for your state.)
a. Missouri Department of Elementary and Secondary Education's manual, "STUDENT ACCESS, Section 504 of the Rehabilitation Act of 1973", (about 30 pages) and highlighted sections stating that "chronic asthma and severe allergies" were examples of "potential" disabilities. [url="http://www.dese.mo.gov/divspeced/Compliance/"]http://www.dese.mo.gov/divspeced/Compliance/[/url] Guidance/STUDENT_ACCESS.pdf

b. Missouri Department of Elementary and Secondary Education 4-page statement on "Special Dietary Needs", [url="http://www.dese.state.mo.us/divadm/food/specialdietary.html"]http://www.dese.state.mo.us/divadm/food/specialdietary.html[/url]

[b]3. Medical sources (5):[/b]
a. Letter from your licensed physician.

b. CAP-Rast or SPT results

c. AAAAI position statement #34 addressing the need for access to an adult trained to administer medication. [url="http://www.aaaai.org/media/resources/academy_statements/position_statements/ps34.asp"]http://www.aaaai.org/media/resources/academy_statements/position_statements/ps34.asp[/url]

d. Sampson article on "Anaphylaxis and Emergency Treatment", PEDIATRICS Vol. 111, no. 6 June 2003, pp. 1601-1608.

e. PEDIATRICS vol. 112 No. 3, September 2003 Policy Statement , American Academy of Pediactrics, "Guidelines for the Administration of Medication in School". [url="http://aappolicy.aappublications.org/cgi/content/full/pediatrics;112/3/697"]http://aappolicy.aappublications.org/cgi/content/full/pediatrics;112/3/697[/url]

[b]4. Other Professional Organizations: [/b]
a. Asthma and Allergy Foundation of America, statement from website declaring that children with LTFA are protected under Section 504. [url="http://www.aafa.org/display.cfm?id=5?=74&cont=153"]http://www.aafa.org/display.cfm?id=5?=74&cont=153[/url] In the "advocacy" section you can find a page called "Americans with Disabilities Act". Highlight the section starting with, [i]"Does the ADA Apply to People with Asthma and Allergies?"[/i]

[This message has been edited by Gail W (edited July 19, 2005).]

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By Gail W on Wed, 07-20-05, 11:33

Quote:Originally posted by qdebbie1:
[b] I have a contuned eligibility meeting tomorrow. [/b]

I hope your meeting goes well today. Sending positive cyber vibes your way....~~~~~~~~~~~

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By Gail W on Wed, 07-20-05, 11:37

Quote:Originally posted by qdebbie1:
[b] I have a contuned eligibility meeting tomorrow. [/b]

I hope your meeting goes well today. Sending positive cyber vibes your way....~~~~~~~~~~~

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By qdebbie1 on Wed, 07-20-05, 11:44

Thanks, I now feel really good. We filed a complaint with OCR on June 30th. My lead investigator called me last night and told me they were proceeding because our school is denying him FAPE and told me if they deny the 504 to call her immediately and add it to the complaint because "we clearly see allergy as a hidden disability" I hope I do not have to keep taking it up a notch to get it done but I will if I am forced to do it. She said once schools realize OCR is involved they back down because they like thier federal funding.
Thanks for the support, I will keep you all posted.

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By Gail W on Wed, 07-20-05, 21:32

Congratulations! linking: [url="http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001906.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum7/HTML/001906.html[/url]

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By JSaastad on Tue, 07-26-05, 07:05

Last year my first grade PA ds had a 504 plan. My third grade ds with a latex allergy had a IHP.

BIG DIFFERENCE for my third grader- at a young author's party in May the media center was decorated with pretty LATEX balloon bouquets at every table. The head room mom forgot to mention those to me, and the teacher completely forgot. Another time in phy-ed class my son had to sit out due to latex balls, when the school has all sizes of synthetic gym balls available.

A 504 plan also should include reminders to all parties involved through out the school year, people do 'forget'. A 504 plan is more thorough and very necessary.

Big Thank you's again to you 'trail blazers', you are inspirational!

-Jill

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By synthia on Mon, 08-08-05, 22:18

raising for...

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By Drew's mom on Mon, 08-15-05, 03:07

I just re-read this thread (I needed a pep talk). There is a lot of good information here, and I wanted to bump it back up.

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By MommaBear on Mon, 08-15-05, 11:30

Quote:Originally posted by Gail W:
[b]
I would [i]love[/i] for Mariah to clip her epi-pen to herself somehow. We keep coming back to this as a good option, but Mariah absolutely objects. It's a fashion-diva issue [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] and we've just decided its not a battle to take on. At least not now, with the big transition to Middle School. [/b]

Does she carry it at home? Outside of school?

This is not a battle, this is an [i]expectation[/i]. This is what she needs to make eventually as others have put it so well: "Part and Parcel" of her. I say this respectfully.

It's gotten to where I never see oldest put his epi-pen and holder in his pocket (we favor cargo pants with zip or velcro pockets). But [i]lo[/i], it's always there. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] He remembers before I do. I remember once running to the bus to give him one, thinking: "I didn't put it in his pocket."

One of the many cases and pens we have on hand was already there. He put it there. Boy, did I look silly in my flannels and power puff shirt. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Do I carry one as well? [i]Of course, I'm his mother.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

Of course, our IEP and laws (to my understanding) either designate or allow him, in our particular situaion and as an individual, as competent [i]and appropriate[/i] to carry one (as do staff with him), and maybe it's just our individual situation. Not sure what the situation is in MO.

[This message has been edited by MommaBear (edited August 15, 2005).]

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By Gail W on Mon, 08-15-05, 19:02

Quote:Originally posted by MommaBear:
[b] Does she carry it at home? [/b]

She doesn't carry it inside our home (is that what you mean?). We have a "Med kit" permanently stationed by the phone. It contains 3 epi-pens, other meds, written info, etc. She knows it's there.

Papa and Grandma live 2 doors up. Same situation there with a med kit visible in the kitchen by the phone. So Mariah doesn't carry her epi-pens at either home.

Quote:Originally posted by MommaBear:
[b]Outside of school? [/b]
Yes. Absolutely. If, on a rare occasion, she forgets her epi-pen, then we turn around and go home to get it. Natural consequence. (Even though Mom has one ~ three actually~ in her purse.) Mariah is exceptionally good about carrying her epi-pen/inhaler outside school. The habit is instilled. Not a big deal. ([i]Integrated,[/i] as becca says. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] )

Quote:Originally posted by MommaBear:
[b]This is not a battle, this is an [i]expectation[/i]. This is what she needs to make eventually as others have put it so well: "Part and Parcel" of her. I say this respectfully.

It's gotten to where I never see oldest put his epi-pen and holder in his pocket (we favor cargo pants with zip or velcro pockets). But [i]lo[/i], it's always there. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] He remembers before I do. I remember once running to the bus to give him one, thinking: "I didn't put it in his pocket."

One of the many cases and pens we have on hand was already there. He put it there. Boy, did I look silly in my flannels and power puff shirt. [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Do I carry one as well? [i]Of course, I'm his mother.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img][/b]

Same scenario here. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Quote:Originally posted by MommaBear:
[b]Of course, our IEP and laws (to my understanding) either designate or allow him, in our particular situation and as an individual, as competent [i]and appropriate[/i] to carry one (as do staff with him), and maybe it's just our individual situation. Not sure what the situation is in MO.
[/b]

Just last month, the School Board [i]drafted [/i]policy that would allow children to carry their epi-pens at school. At my urging. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] It is still not finalized. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] but that's another story. LOL! Prior to this, no student was allowed to carry an epi-pen at school. We asked, and it was 'prohibited'. Mariah never carried her epi-pen at school for 6 years. Even when she had an after-school playdate, she was required to drop off her med kit at the nurse's office immediately upon entering the building and would pick it up after dismissal.

So part of the "issue", for her, is that she never carried her epi-pen at school. At the time that she was interested and willing to use an epi-belt, the school refused. Introducing this extremely visible new habit [i]now [/i]as she enters Middle School (not to mention puberty) is hard. She equates it to entering a new school with a large sticker plaster to her forehead.

So...... she will carry an epi-pen discretely in the front pocket of her backpack. Staff will know that it is there, but they will use one of the 5 'trauma kits' at the school if they need an epi-pen. This is stated in her IHP.

Thank you for coming back here to ask about this. I read about the death posted on the Main Discussion board and know that this is coming from your concern for her safety.

Quote:Originally posted by MommaBear:
[b]I say this respectfully. [/b]

I know. Thank you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

[This message has been edited by Gail W (edited August 15, 2005).]

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By MommaBear on Mon, 08-15-05, 22:24

Quote:Originally posted by GailW:
[b] Thank you for coming back here to ask about this. I read about the death posted on the Main Discussion board and know that this is coming from your concern for her safety.

[/b]

absolutely, but true confession. [i]I was pretty sure what your answer(s) would be.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I just didn't know how [i]thorough[/i] they actually are. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] Sounds like you've got your bases covered. Congratulations on that very important victory at school. You've earned it.

Honestly? I'd still like to move to Missouri. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] Then you could pat my youngest's head. (providing you could catch him still long enough). [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

[This message has been edited by MommaBear (edited August 15, 2005).]

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By CarolynM on Wed, 08-17-05, 02:51

Gail,
My dd is entering middle school also. She does not want to wear her EpiBelt either. In our meeting at the school today, we came up with the solution that she will carry a purse with her Epi in it at all times at school. Apparently, it is very cool at middle school for the girls to carry purses. That solves the problem for us. Is this an option for your dd?

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By MommaBear on Wed, 08-17-05, 03:10

Quote:Originally posted by CarolynM:
[b] Apparently, it is very cool at middle school for the girls to carry purses. [/b]

Doesnt' [i]Coach[/i] make a strappy petite wallet/shoulder bag style? I've coveted the last few I've seen. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

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By Gail W on Wed, 08-17-05, 12:10

Quote:Originally posted by CarolynM:
[b]Apparently, it is very cool at middle school for the girls to carry purses. That solves the problem for us. Is this an option for your dd?[/b]

Thanks! We have our meeting nest week and we'll check it out.

I appreciate you thinking about this and posting it for me.

Quote:Originally posted my MommaBear:
Doesnt' Coach make a strappy petite wallet/shoulder bag style? I've coveted the last few I've seen.

I don't notice purses, or much about fashion at all. Actually, I'm certain that I'm a fashion "no". LOL!

I have no doubt that Mariah will also take notice, though. I use one 'purse' (a Coach backpack) that I've used for 3 years now. I tend to get one all-purpose long-lasting bag so that I don't have to revisit shopping for one again any time soon. Mariah sweetly tries to help me expand my repetoire. She loves fashion and shopping. If it's cool to carry a purse at school, I certainly will be shopping for them with her.

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By e-mom on Wed, 08-17-05, 14:34

Gail,

I got a chuckle out of reading that Mariah thinks carrying her Epi is like wearing a sticker on her forehead [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Have you seen the new holders for epipen? I picked up a new dual pack last week and the epi itself has a new container with a safety bottom for the needle. This very new sturdy and cool I might add container is green.

What if Mariah were to decorate the container? You know kinda like how cell phones have all the "bling" with their cell phone holders.

I don't think I started carrying a purse until I was a Freshman in HS. However, times have definitely changed [img]http://uumor.pair.com/nutalle2/peanutallergy/eek.gif[/img]

I think it's much easier for girls to carry an epi atleast they can put it in a purse. Where do the guys put it?

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By Gail W on Thu, 08-18-05, 05:13

Quote:Originally posted by e-mom:
[b]Have you seen the new holders for epipen? I picked up a new dual pack last week and the epi itself has a new container with a safety bottom for the needle. This very new sturdy and cool I might add container is green.

What if Mariah were to decorate the container? You know kinda like how cell phones have all the "bling" with their cell phone holders. [/b]

e-mom! Yes! We've had the new epi-pen design for a month or two. I really like them too. The .3 mg have an orange twist off cap.

I [i]did[/i] propose adding bling. I thought I was very cool to know about bling and to suggest it. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] But you should have seen the the disgusted glare I received. I'm [i]so [/i]not cool.

(Then she asked if she could get a cell phone. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] )

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By MommaBear on Thu, 08-18-05, 05:43

Quote:Originally posted by Gail W:
[b] (Then she asked if she could get a cell phone. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img] )

[/b]

are you able to wiggle on this one? [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

[i]It could be negotiable..........[/i]

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By Gail W on Thu, 08-18-05, 05:55

Quote:Originally posted by MommaBear:
[b] are you able to wiggle on this one? [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

[i]It could be negotiable..........[/i][/b]

Yes, actually, we are seriously considering it. Several of her friends already have them. She's 11. [i][b]11[/i][/b] (Deep breaths....)

Of course, [i]we [/i]look at it as a safety issue. Some phone options offer restricted calling, like outgoing calls only to home and 911.

And of course, no surprise, [i]Mariah [/i]is interested in calling her friends.

So, she's taken on looking into packages and pricing. In other words, [i]she's shopping[/i] for data. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] I'm expecting a 'pitch' from her any time...

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By MommaBear on Thu, 08-18-05, 11:01

Quote:Originally posted by Gail W:
[b] Yes, actually, we are seriously considering it.
[/b]

I mean, [i]back scratching[/i]. You carry your epi-pen full time, we'll add a phone to our cell plan. (Or can she get "pay as you go"? Do you have to be 18?) Just think, when [i]"friends" [/i]tease her about the epi-pen, she could alwyas pull out the latest in cellular technology from her coach bag, and erase their names from the phone list.

Maybe allowing her to use "pay as you go" (from her own money) for a brief period of time might soften negotiations. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

edit to change "bracelet" to "epi-pen" (it's early and I'm zero coffee for the next nine months) [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

[This message has been edited by MommaBear (edited August 18, 2005).]

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By Gail W on Thu, 08-18-05, 13:32

I had suggested that she clip her epi-pen to the [i]outside [/i] of her backpack so that it was easily visible to staff. (I was imagining staff frantically riffling through her very large backpack in a panic trying to find her epi-pen under her books and other 'junk' she carries.) This visible display is what she object to, the "sticker on her forehead".

She's fine with her epi-pen in her purse or backpack. Her backpack has a front pocket that "hides" it for her and is the only pocket with a reflector strip which solves my issue of staff easily identifying where it is.

But this:

Quote:Originally posted by MommaBear:
[b] Just think, when [i]"friends" [/i]tease her about the epi-pen, she could alwyas pull out the latest in cellular technology from her coach bag, and erase their names from the phone list. ][/b]

hit a chord with me. DH and I have been pretty consistent in our message to her that her PA is .... well, a fact of life to address. In general, we don't give out many perks related to PA.

But again this. I liked visualizing Mariah doing this:

Quote:Originally posted by MommaBear:
[b] ... when [i]"friends" [/i]tease her about the epi-pen, she could always pull out the latest in cellular technology from her coach bag, and erase their names from the phone list. [/b]

I know you are well aware of some of the hurt Mariah experienced at school over the past few years. The exclusion. [i]I allowed it to go on too long [/i] and I regret it.

Reading that made me realize how much [i] my [/i] anger is still there. I'm sure it must be so for her, no doubt much, much more.

I feel good every time I read it. Empowering.
Quote:Originally posted by MommaBear:
[b] Just think, when [i]"friends" [/i]tease her about the epi-pen, she could always pull out the latest in cellular technology from her coach bag, and erase their names from the phone list. ][/b]

Thank you. I never would have thought about it this way.

You know, I had the same positive response when you (in another post) suggested that the "substitute" treats your cub would chose from were vastly more appealing than what the birthday child brought... like movie tickets, lego blocks, and other very coveted substitutes that would make the unsafe treat far less appealing in comparison. And I liked the idea that maybe your cub could also pick one friend to receive one of cub's substitute treats along with him. I never told you, but that really made me think.

I'm thinking about that maybe it's time for me to think about ways to tip the scales in Mariah's favor.

Thank you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By murrays on Thu, 08-18-05, 14:19

Our DD starts kindergarten in two weeks and we

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By MommaBear on Thu, 08-18-05, 16:41

Quote:Originally posted by Gail W:
[b]I know you are well aware of some of the hurt Mariah experienced at school over the past few years. The exclusion.[/b]

[i]yes.[/i]

on a personal level: [i]I've lived it.[/i]

I have very [i]biased[/i] ideas about it. I admit it. It's something so wrong on so many levels, I'll fight with every last iota of my being before I ever allow my children to buy into the idea such exclusion and clique-ishness is *normal*. That if they experience pain in some way because of this, [i]it's not because there is something wrong with him[/i]. I can't take the pain away, but I can sure ease it. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] I [i]can[/i] change the world. I'm their mother. [b]It's my job.[/b] If I can bring life into this world, I can sure give it direction. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I'm not saying you buy into it. I know you don't, I know it hurts you equally, if not more. I just realize how it permeates every aspect of society today. I'm just speaking from unspeakable hurt.

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By MommaBear on Thu, 08-18-05, 16:57

Quote:Originally posted by Gail W:
[b]You know, I had the same positive response when you (in another post) suggested that the "substitute" treats your cub would chose from were vastly more appealing than what the birthday child brought... like movie tickets, lego blocks, and other very coveted substitutes that would make the unsafe treat far less appealing in comparison. And I liked the idea that maybe your cub could also pick one friend to receive one of cub's substitute treats along with him. I never told you, but that really made me think.

I'm thinking about that maybe it's time for me to think about ways to tip the scales in Mariah's favor.

[/b]

Yes. That's my job. I don't care what the school tells me.

Although there is *not* supposed to be a treat box this year..........*you've* got me thinking. It brought a [i]positive response[/i] to me (again) as well. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

I'm thinking: "Maybe a *secret* treat box, chest, *room*, between me and the teacher. Just in case. That way, if she ever decides to *breach* the plan, she'll have to deliver *whatever* to my cub. And proto. With audience. And explain why. I indulge my children. [i]Without shame[/i]. The #*!! with how someone else [i]wants me to raise them[/i]. Their MINE.

Fah. I indulge them, [i]and they are still "good kids"[/i]. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img] [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

For the "treasure chest", (in the [b]unlikely[/b] event *the teacher* would [i]choose[/i] to utilize it), I'm thinking of something on a [i]bit[/i] smaller scale than *this*:

[img]http://img.photobucket.com/albums/v318/trainspotr/Christmasmorning2003boys.jpg[/img]

thoughts? [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By synthia on Thu, 08-18-05, 17:02

I could not have said it any better
Thanks Love the pics!

------------------
Love this site
Synthia

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By MommaBear on Thu, 08-18-05, 17:04

Quote:Originally posted by Gail W:
[b]And I liked the idea that maybe your cub could also pick one friend to receive one of cub's substitute treats along with him.[/b]

[img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img]

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By MommaBear on Fri, 08-19-05, 00:23

Quote:Originally posted by synthia:
[b]I could not have said it any better
Thanks Love the pics!

[/b]

thank you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

you know, as much as my oldest likes to [i]pretend[/i] differences such as birthday cake vs. [i]smarties tarts[/i] don't bother him............I find it quite striking that each year at Christmas, the cubs are quietly, but deliberately comparing the size of [i]each others piles of presents[/i]. Sometimes, each secretly comming to me and asking if their pile is as big as the other. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img] No lie. [i]I know different[/i].

It's my job.........

ps.....I always keep a few gifts that *both* would like, [i]unmarked[/i]. That way, if I notice either feeling slighted, or one more immensely enjoying their gifts than the other, I can just nudge the unmarked box in their general direction. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

[i]It's my job...... [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img][/i]

Initially, we keep the gifts [i]interspersed[/i], non-differentiable from the others. [img]http://uumor.pair.com/nutalle2/peanutallergy/cool.gif[/img] Inevitably, they start dividing them up into separate piles, [i]comparing[/i]. No one can tell me it's any different at school, when brother to brother, this is what I notice at home. [img]http://uumor.pair.com/nutalle2/peanutallergy/tongue.gif[/img]

LOL. this year, as technology creates an inverse proportional relationship between size and dollar amount, [i]what will I do???[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

[This message has been edited by MommaBear (edited August 18, 2005).]

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By Nutternomore on Fri, 08-19-05, 07:54

Murrays,

Welcome to the boards. I see that you're a new poster...

I see you have some important questions, but they may well get buried here in this topic.

Suggest that you start a brand new topic w/your questions, so members can give you targeted feedback...and make it easier to get what you're looking for. For example, when you post the topic, there is an option you can select where you will be notified whenever someone responds to your topic....

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By MommaBear on Fri, 08-19-05, 11:15

Quote:Originally posted by murrays:
[b]-I

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By murrays on Fri, 08-19-05, 13:23

Quote:Originally posted by Nutternomore:
[b]Murrays,

Welcome to the boards. I see that you're a new poster...
[/b]

Thanks! My wife has been reading the boards for months and

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By MommaBear on Fri, 08-19-05, 17:27

Quote:Originally posted by murrays:
[b] Thanks for the links, but a search for

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By Gail W on Fri, 08-19-05, 18:07

Quote:Originally posted by murrays:
[b] If I bring up LRE to the 504 committee, I want a document from the OCR, USDA, etc. with those words highlighted. I want to argue facts, not impressions or interpretations.

Thanks
-murray[/b]

[img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Not intending to be sarcastic whatsoever, but I hope you find such clear cut statements and post the links here.

In addition to the Wright's Law website, I found Reed Martin is an excellent source on this topic (LRE).

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By murrays on Fri, 08-19-05, 18:35

Quote:Originally posted by Gail W:
[b] [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

Not intending to be sarcastic whatsoever, but I hope you find such clear cut statements and post the links here.

In addition to the Wright's Law website, I found Reed Martin is an excellent source on this topic (LRE).

[/b]

Thanks, I'll check those sites.

I think this thread has yielded several clear cut statements, links and strategies that will make the job much easier (things like allergies are considered hidden disabilities by government agencies). I simply won't push LRE if it's not that clear cut.

-murray

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By Nutternomore on Sun, 08-21-05, 13:09

Quote:Originally posted by murrays:
[B-I

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By MommaBear on Sun, 08-21-05, 13:27

In this link pertaining to IDEA, entitled within the document: "[b]H.R.1350
Individuals with Disabilities Education Improvement Act of 2004 (Enrolled as Agreed to or Passed by Both House and Senate)[/b] :

[url="http://thomas.loc.gov/cgi-bin/query/z?c108:h.1350.enr:"]http://thomas.loc.gov/cgi-bin/query/z?c108:h.1350.enr:[/url]

you can find (after some time):

[i]`(9)[b] FREE APPROPRIATE PUBLIC EDUCATION[/b]- The term `free appropriate public education' means special education and related services that--

`(A) have been provided at public expense, under public supervision and direction, and without charge;

`(B) meet the standards of the State educational agency;

`(C) include an appropriate preschool, elementary school, or secondary school education in the State involved; and

`(D) are provided in conformity with the [b]individualized education program[/b] required under section 614(d)."

bold added by myself. "Individualized education program" = IEP? Anyone? Would this include "504"?

___________________________________

and (after some more time):

"`(5) [b]LEAST RESTRICTIVE ENVIRONMENT[/b]-

`(A) IN GENERAL- [b]To the maximum extent appropriate[/b], children with disabilities, including children in public or private institutions or other care facilities, are educated with children who are not disabled, and special classes, separate schooling, or other removal of children with disabilities from the regular educational environment [b]occurs only when the nature or severity of the disability of a child is such that education in regular classes with the use of supplementary aids and services cannot be achieved satisfactorily.[/b]

`(B) ADDITIONAL REQUIREMENT-

`(i) IN GENERAL- A State funding mechanism shall not result in placements that violate the requirements of subparagraph (A), and a State shall not use a funding mechanism by which the State distributes funds on the basis of the type of setting [b]in which a child is served that will result in the failure to provide a child with a disability a free appropriate public education according to the unique needs of the child as described in the child's IEP.[/b]

`(ii) ASSURANCE- If the State does not have policies and procedures to ensure compliance with clause (i), the State shall provide the Secretary an assurance that the State will revise the funding mechanism as soon as feasible to ensure that such mechanism does not result in such placements.
[/i]

(again, bold added by myself)
________________________________________

but this is [b]IDEA[/b] legislation......... so I don't know if I'm being of any help. least of all my impressions. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]
________________________________________

some may be surprised, elated, or even [i]dissapointed[/i] to realize what a "Free, Appropriate, Public Education in The Least Restrictive Environment" may actually be. Catchy phrases being what they may be.

General Disclaimer: I am not offering advice in any manner or form. I do not guarantee the accuracy, currentness, or content of the link in this post. Individual Mileage May Vary.

[This message has been edited by MommaBear (edited August 21, 2005).]

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By MommaBear on Sun, 08-21-05, 13:41

btw, I found the above link at

[url="http://www.ed.gov/policy/speced/guid/idea/idea2004.html"]http://www.ed.gov/policy/speced/guid/idea/idea2004.html[/url]

under:

"Laws and Policy"

General Discliamer: I am not offering advice in any manner or form. I do not guarantee the accuracy, currentness, or content of the link in this post.

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