Hi Everyone!

7 replies [Last post]
By crickett4444 on Tue, 09-07-10, 01:49

My name is Cris and I am a mom of 2 boys, 8 and 2.
My oldest has a severe allergy to peanuts. Thankfully, he outgrew the nut portion of his allergy and does not seem to react to other allergens. He is my 'difficult child' having ADHD and ODD with a possibility of aspergers. He also has eczema and asthma.

He was diagnosed with a peanut allergy at 2, but had signs of one since he was a year old. We are currently waiting to get my youngest into the allergist as a preventative as he also has eczema. I would rather just know than have to deal with a small child going into anaphalaxis.

Thankfully, I am a supercontrolingfreak of a parent and my oldest has not had a serious reaction needing his epipen.

I am however fighting with his school and school board regarding his personal safety plan at the school. Last school year, the school lost his inhailers and aerochamber they also lost all 6 of his at school epi pens. (2 in office, 2 in classroom, 2 on him) They also do not seem too concerned about food safety in the class room. I am terrified that I am going to get 'that' phone call...

Has any one else had this issue?

--Cris

__________________

-=Cris=-

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By cervonil on Tue, 09-07-10, 13:23

That is horrible, I am SO sorry you are having so much trouble with the schools. What bothers me the most is these people are responsible for our children 40 hours a week - and this kind of thing represents their willingness to keep them safe. Non peanut allergy parents should be concerned as well. My son is still in preschool, so I don't have any advice, just empathy. Good luck!

__________________

4 yr. old son - severe peanut allergy and mild egg

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By crickett4444 on Tue, 09-07-10, 17:12

It is a scary thought that people have a complete disregard for safety.
I hope your wee one has a better school experience!

__________________

-=Cris=-

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By Mrsdocrse on Sun, 09-19-10, 02:28

Hi Chris

Wow! I would be furious if the school lost my sons epi pens.. They are expensive. How old is your son? My son is in grade school he is not allowed to keep his epi pend himself. The school nurse keeps his. Is the school superintendant involved? They do have an obligation to keep your son safe. Check the web site to get information on a 504 plan ( not sure if that is the correct #) But there is some language in there that will mandate the school to make some accomodations for your son.

Good luck

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By zeena2 on Sun, 09-19-10, 12:54

504 is the correct number A 504 plan refers to Section 504 of the Rehabilitation Act and the Americans with Disabilities Act, which specifies that no one with a disability can be excluded from participating in federally funded programs or activities, including elementary, secondary or postsecondary schooling. "Disability" in this context refers to a "physical or mental impairment which substantially limits one or more major life activities." This can include chronic conditions like asthma, allergies and diabetes. A 504 plan spells out the modifications and accommodations that will be needed for these students to have an opportunity perform at the same level as their peers, and might include such things as blood sugar monitoring or a peanut-free lunch environment.

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By crickett4444 on Mon, 09-20-10, 03:09

Hi,
My son is 8. We have quite a few epi pens for him. 2 on him, 2 in the classroom, 2 in the gym and 2 in the office (cha ching)
When the school year ended last year, I asked for his epi pens to be returned home so I could replace the ones that were soon to be expired and was simply told 'I don't know where they are."
My concern was not so much about the cost, although to be honest I was irritated about that. I was most concerned about what would have happened if he had a reaction and went into anaphalaxis! He could have died and it would have been their fault.
We live in Ontario, Canada and here we have Sabrina's law. It is their duty to have a safety plan in place for him and to keep him in a safe environment.

On a happy note, My 2.5 year old was tested and he DOES NOT HAVE ANY ALLERGIES! yaaaay
I wanted to sing! :)

__________________

-=Cris=-

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By nmainmom on Mon, 09-20-10, 18:00

I'm so sorry your school is NOT helping you. I too had to talk to our district's Superintendant at the start of this school year. Things have improved so much! You really need to write everything down. Tell the Superintendant that you are sending in everything (medicine) your child could need and you expect the school (nurse, teachers, etc.) to not only be trained on how to use these but also to be responsible to know where inhalers, Aerochambers, and Epi-pens are. What if you child needed them NOW? What if another child took them to "play" with? This is a health safety issue. I also told our superintendant that the severity of this matter had to be passed down from him, He agreed. All I can say is with in one day of that meeting things changed. Good Luck! Great no allergies for you 2.5 year old!!!!!!! =)

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By crickett4444 on Mon, 09-20-10, 22:21

The sad thing is I have contacted the school board. The simply do not seem to care one way or another. The school has new administration this year and so far, even though I have been one of 'those' parents, it has been better.
If we have the same sort of issues with the schools complete disregard for my son's safety I will probably end up suing the school and the school board.

__________________

-=Cris=-

Groups: None

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