RECENT PEANUT ALLERGY

Hi. My name is Kristy. I wanted to join this site to maybe find out more info and for the support.

Wow!! I never expected to have a child with a severe food allergy. About a month ago, my husband had been eating a PB sandwich (he knew not to give him a bite, they say not to until age 2yrs) he gave our son a very small bite. Within 15 min, his eye swelled up and he was acting very uncomfortable, clawing his face and ears from the itching. I asked my husband, "DID YOU GIVE HIM A BITE OF PB??!!!" When he said yes, I took off to the ER. They gave him steroids and watched him. They sent us home about 2 hrs later. I wanted to make sure so I took him to a pediatric allergist. Got the results yesterday!! My son is a class/category 4 to peanut.
I just feel like crying constantly!!! I don't want anyone to watch him. We have decided I will quit my job to stay home with him. I will be home schooling when the time comes. I do not trust schools or other caregivers to take care of him the way I will. I feel bad for all the families out there dealing with FA. I never realized how detailed things can get.

By donna0540 on Thu, 08-08-13, 20:35

Hi Kristy,
My son was also diagnosed at 2 years old with a life threatening peanut allergy. He is also allergic to garlic, chicken, peas and poppy seeds. He has thankfully outgrown his soy allergy. Ryan is 17 years old now. I know exactly how your are feeling. The day Ryan was diagnosed I was so overwhelmed. For Ryan, this was all he knew. It was normal for him. He learned very quickly what to eat and not to eat. I educated his pre school teachers and at 3 years old Ryan taught his teachers how to use an epi pen! His friends and their parents were all so supportive. I remember thinking there is no way Ryan will ever go to someone's house for a play date, I will just always have them at my house. Well, that all changed by kindergarten. I finally allowed Ryan to go over to a friends house after school. When I went to pick him up I noticed on the refrigerator a list of foods that were "Ryan safe foods" and a list that were not safe. I cried when I saw this and was forever grateful to this mother who to this day is a dear friend and our boys are the best of friends still.
I helped our school district to implement food allergy policies and was class mom from kindergarten through the sixth grade.
Fast forward 12 years later and Ryan is entering his senior year of high school. With new worries of going away to college I have to be thankful that Ryan has always been aware of his food allergies and what can happen to him. Touring colleges is somewhat daunting and I go straight to speak with Student Life to find out what they have implemented for Food Allergies in their dining halls. I have to say I have not found one school yet that does not take food allergies very seriously and all the colleges so far seem to be very accommodating.
Hang in there Kristy, it is very scary at first. Don't get me wrong we never let our guard down we have just learned to live in a world that has peanuts in it. Please do not hesitate to contact me for anything. Also, The Food Allergy Network is an amazing resource and helped me immensely during those early years.

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By mysweetpeanutallergybaby on Fri, 08-09-13, 02:35

Thank you. I'm hoping things will stop feeling so overwhelming soon. Reading what people are posting is a big help. I have made an appt to a pediatric allergist in Kansas City to check for other things, and find out more information. Not to comfortable with the first allergist we went to.

By kel22dd on Thu, 08-08-13, 08:50

Hi, my son was diagnosed at 2yrs (life threatening) to PN and TN, all seeds and soy allergies. He came very close to dying when he ate a bite of a cookie that had PN in it. But thank God the doctors treated him with lots of medicine ( epinephrine, steroids, h2 blockers, albuterol) and he was ok. He was also allergic to all legumes and peas and green beans. I didn't realize that peas, green beans and legumes can sometimes go hand in hand when it comes to peanut allergies. I was very happy that his allergist had tested him for all of those because I would never have thought to keep him away from those foods. He had a kidney bean by accident once and he swelled up and broke out in hives and had respiratory problems, but with treatment he was okay. So if you are able to have your son tested for these allergies I would definitely have it done. You can never be too safe. It will help you when it comes to choosing foods ( especially veges) and also with soy in a lot of food now it is a good thing to know. I know how you feel. It is so stressful and scary. My husband works and I stay home with our kids. My PN/TN allergy son is now 6 and he has a twin sister and also an 8 yr old sister who do not have food allergies. The twins are off to kindergarten next week and I am very nervous. This will be the first time ever he will be away from me (or my husband or my mom). I have taken all precautions, met with school principal and filled out 504 plan, have epi-pens galore at school in different areas, ordered allergy gear from a great site called allergyapparel.com, talked to my son over and over that he can't eat anything from anyone except what we send in, will also have a box of safe treats in the class. I also only live 2 blocks from school and can go there at anytime, which I will the first week (to recess and lunch) to see how the food situation is. Even with all of this I am still a nervous wreck. The feelings bring me back to when he was diagnosed. Stressed out, anxious, can't sleep completely worried that I can't protect him. Basically like I don't have control over his safety. It is such a scary feeling. I think this is just something that us allergy moms go through and can't really explain to non-allergy moms because there really are not words to describe how fearful we really are. I do have to say that I only felt like that when he was first diagnosed, then I became informed and really had no problems for the last 4 yrs. My husband I check all foods and speak up where ever we go about his allergies. I know that this week (and probably the next few weeks) too shall pass, as very hard as it is for me right now, it will get better, just as it did before. Change is very hard for me especially when I feel like I am sending out my baby onto his own and releasing my safety net, but I know with the support from all the moms here that have done this before me and all of their encouragement I will be just fine. I will look back at his first week on kinder as a good memory. The ups and downs of allergy moms. I think this is a wonderful website because I don't feel so alone and I have found a lot of answers to many different questions I have had. I hope that you are able to find many answers to your questions and all the support you need. Try to get all of the allergy tests you can, its worth it. My good thoughts are sent your way.

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By mysweetpeanutallergybaby on Thu, 08-08-13, 10:50

Thank you. I'm so sorry for you because I know the exact feeling you are having. It sounds like you are doing great. You have thought of everything. I am going to call the allergist today to see what else he will let me test for.

By mysweetpeanutallergybaby on Thu, 08-08-13, 03:26

I didn't realize that peanut was not even a nut until all of this. So do I need him to stay away from peas, soybeans, chick-peas....etc.? Should he be tested for all of that also? What if ingredients say soybean oil? I'm just sooooo confused!!!

By mysweetpeanutallergybaby on Thu, 08-08-13, 03:23

I'm about 20 min away from the hospital. That is something I was thinking about just to have a plan in place. Do I call 911 or do I take him myself? I truly think I could have him to the hospital before the ambulance could probably even get here. I'm actually feeling a little better by reading everyone's comments and advice.... but just a little ;) I think it will get better once I get used of things to do. When I read things like the 13 yr old dying after her dad, a doctor, gave her 3 epi-pen injections...... that's a little unnerving.

By gerilynn on Wed, 08-07-13, 23:52

I see you say you live in a rural area.....are you within close distance to a hospital in case of an emergency? That was always my big concern. Because I remember the doctor saying when my daughter was first exposed to peanuts, had we not called 911, she likely wouldn't have made it.

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By coeja73 on Wed, 08-07-13, 23:38

I hear ya! I felt like food became the enemy when my 3 yr old was diagnosed. (he is now 9)
Of course you feel this way...that's alright. It's a shock to your whole outlook, but in time, as you get comfortable with some food protocols, you will open up your bubble again. Your bubble will never be completely open, but you (and your child) can't live in fear....so...I now have 3 folks that babysit (NOT including my parents or inlaws strangely) and I did send my kids to school (we chose the preschool with the best food allergy policy in town)...etc. Hang in there. Take things slowly, and get to know this new resident in your house...by the name of "food allergy."

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By mysweetpeanutallergybaby on Wed, 08-07-13, 23:16

Everyone is being so wonderful. Thanks so much for the replies and advice!!!

By homegrown5 on Wed, 08-07-13, 22:29

Start a notebook with all things allergy related. Keep all his prescriptions, allergy testing results and all information you receive. Keep track of his reactions. Make a section for recipes and safe foods. Gently train your immediate family! Go to www.allerbling.com and buy him a bracelet to wear at all times. Train him to keep it on as this can help speak for him when he can't. Take one day at a time! You are his best advocate!

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