We need footage or pictures of a reaction for Inside Edition ASAP

I have pictures of huge hives. Would that help?

[url="http://www.allergyfacts.org.au/"]http://www.allergyfacts.org.au/[/url]

This is the only one I have ever found and planned to save it for a rainy day.

Peg

Chris,

I think we need to also let everyone know sometimes you won't see any welts or hives.

In dd case her fist reaction which sent her to the ER,was only one hive in a area that could not have been seen by someone looking at her,if I had not changed her diaper [b]I[/b]would not have seen the hive.

My only other clue was "the look"she gave me, and the fact she looked like a [b]burn victim[/b] by the time I got her to the ER.

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Love this site
Synthia

How about directing them to Dr. Sampson, Dr. Wood, Dr. Schirer, Dr. Burks, Dr. Bock, Dr. Leung, or one of the other superstar researchers? No doubt they have some good clinical material that can be used.

I hope that Inside Edition does a decent job on this...I don't think I can say "Inside Edition" and "news" in the same sentence...

Unfortunately, when these things start to happen, our camcorders are no where to be found and we're simply not thinking about videotaping the reaction.

How I would have loved to have gotten two particular reactions of Ryan on video tape. Gosh, it would show a smiling, healthy, chatty boy become a violently ill one with severe, profuse vomiting, coughing, semi-conscious, green-colored, swollen lips/facial hives, in a mere 15 seconds simply by biting into a Reese's piece and having it touch his tongue.

Things like that have to be seen to be believed. I probably would have been a doubting Thomas myself, but I'm the one who witnessed the most severe reaction of all.

And d*(# it, there were no cameras or camcorders around.

re: "How about directing them to Dr. Sampson"

Good thinking and we have already done that.

Dr. Sampson was already contacted and he is going to try to get permissions to use what he has, time is of the essence though so we need to keep working to find alternatives in time in case we don't get permission to use or we don't get it in time.

Also I have left messages with companies etc. that have made videos to see what they have, still waiting to hear back.

Any other ideas or leads?

Peg thank you for the email you sent we will follow up on that, thank you.

momma2boys I just sent you an email to call me.

I will also be sure Inside edition checks out this thread to get other ideas such as you all have given above.

Keep up the good work and keep on looking for footage and pictures which we can get permission to use and/or given to us!

Thanks

I also spoke with Chris at FAAN this morning and they also do not have anything to use for this due to agreements with those parents that gave them the pictures etc.

They've probably already thought of this...but just in case I'll throw it out there.

What about that show "Life in the ER" on Channel 28? That's real life footage of cases that come in the ER. Maybe they have something? Meg

Chris -

Dr. Wood's slides that he used at the FDA committee meeting last summer include pictures of kids with reactions. It is part of the public record so I would suppose that there is no problem using them.

Here is the main page with all the documents (Dr. Woods is the third one down):

[url="http://www.fda.gov/ohrms/dockets/ac/05/slides/2005-4160s1.htm"]http://www.fda.gov/ohrms/dockets/ac/05/slides/2005-4160s1.htm[/url]

And here is the direct link to the powerpoint presentation:

[url="http://www.fda.gov/ohrms/dockets/ac/05/slides/2005-4160s1_02_wood-Food%20Allergy-FDA_files/frame.htm"]http://www.fda.gov/ohrms/dockets/ac/05/slides/2005-4160s1_02_wood-Food%20Allergy-FDA_files/frame.htm[/url]

(I had to download the file first to see the pictures)

And here is the link to the transcript that describes the slides (see pages 28-33):

[url="http://www.fda.gov/ohrms/dockets/ac/05/transcripts/2005-4160t1-01.pdf"]http://www.fda.gov/ohrms/dockets/ac/05/transcripts/2005-4160t1-01.pdf[/url]

And here is the relevent testimony:

DR. WOOD: Now, the signs and symptoms of food allergy are highly varied. They may bechronic and low grade as I mentioned, they may be acute and life threatening. What I want to run through in the next couple of minutes are just some examples of allergic reactions that will point out a number of things about not only the kinds of reactions, but the exquisitely small amounts of food that induce these reactions we are going to show you, and the sort of day-to-day issues that patients with food allergy are facing.

(Slide.)

DR. WOOD: The first couple of patients I am going to show you have urticaria or hives. This is a total body hive reaction that this boy is experiencing, a patient I have known since he was an infant.

He is school age at this point. This reaction occurred when he was in the grade school cafeteria, was being teased about this food allergy, another child blew a straw full of milk across the table into his face, and he had this really significant reaction.

(Slide.)

DR. WOOD: This baby here was identified
with milk allergy in the first few weeks of life.

There are some children who don't show up with food allergy until they are two or three or four years old, while there are others who are really demonstrating food allergy in the first days of life.

This was a baby who was so allergic that he would react very acutely if his mother, who was breast feeding him, ingested any milk protein. She was on a very strict avoidance diet after we identified his milk allergy, but on the occasion of her birthday ate a piece of cheesecake, breastfed him an hour and a half later, and he had this acute
hive reaction.

(Slide.)

DR. WOOD: Now, when we are thinking about
urticaria or hives, there are patients that may have chronic urticaria. Food allergy is rarely a cause of chronic urticaria.

However, when someone shows up with an acute episode of hives, the chance that it is food allergy becomes higher. Again, we are looking a relatively short list of foods that are most commonly implicated: peanut, nuts, eggs, milk, fish, and shellfish.

Importantly, these reactions are usually
very quick in their onset. Ninety percent of them or thereabouts will have an onset within 30 minutes; at least half of them, within 5 minutes; and virtually all of them, within 2 hours.

When a patient has this type of reaction, it is often very easy to identify the culprit food because of the abrupt association of the ingestion of that food with the onset of these hives.

Then, in more severe episodes, there may be swelling or angioedema or associated gastrointestinal or respiratory symptoms. That is moving into more of a systemic reaction that we would refer to as "anaphylaxis."

(Slide.)

DR. WOOD: Now, this is a patient here who
is having an anaphylactic reaction. When you look at her back here, it looks just like hives. When you see her front, though, she is having swelling and breathing difficulty.

(Slide.)

DR. WOOD: This is a patient who was having a reaction in the midst of a food challenge -- not in the midst of it, after her first tiny dose of egg protein, she went into this very severe, anaphylactic reaction.

(Slide.)

DR. WOOD: This boy here is someone who is
having a dramatic episode of swelling. His
reaction occurred. Most patients, we should say, who are having severe reactions know about their food allergy and are making efforts to avoid it.

He was shellfish allergic -- he is was making efforts to avoid shellfish, and he had been reaction-free forseveral years.

Then, on another birthday occasion, he ate
chicken in a restaurant and the chicken had been fried in the same oil as shrimp had been fried.

With that cross-contact, this severe reaction.

(Slide.)

DR. WOOD: Anaphylactic reactions are
defined as a systemic allergic reaction,
involvement of multiple organ systems. These have an abrupt onset typically. They are related to IgE antibodies.

You can identify these by doing a skin test or a blood test looking for IgE. The manifestations are not always severe. There is an impression that all anaphylaxis is life-threatening. Some episodes are relatively mild, but others progress rapidly to life-threatening or fatal reactions.

We think that there are at least 150 deaths in the United States each year due to fatal
food-induced anaphylaxis. That number is probably a substantial underestimation, but we would be very comfortable saying that it is well identified of 100 to 150 deaths per year.

I don't know if this helps, but, television host Jimmy Kimmel had an allergic reaction to medication while he was on tv. There were some pictures of him on the internet back then.

[url="http://www.eonline.com/News/Items/0%2C1%2C14104%2C00.html?tnews"]http://www.eonline.com/News/Items/0%2C1%2C14104%2C00.html?tnews[/url]

I've got pictures from my little one who reacted to drinking milk.

I do know that there is a shortage of photos like this.
Have you tried contacting the charites who may have something they can e-mail you ?

If it helps raise awareness of allergy I am sure they should feel compelled to help.

sarah

[This message has been edited by williamsmummy (edited December 07, 2005).]

Per our phone conversation, I sent two pictures of my little guy with permission to use them. Let me know if you need anything else, or if you did not receive the pictures.

momma2boys, synthia, Nutternomore, ryan's mom, and mommyofmatt for your comments, input and other help; thank you.

Nutforce
I received the pictures, thank you!

E-mom I would like to have the pictures, if they are digital are you able to email the pictures to me?
I would like to chat with you on the phone about the pictures also. Can you call me tomorrow or let me know when and where to call you. Please email me with the times and phone numbers if you would like me to call you.

dmbb
Thank you, we will look into that also.

Greenlady
Thank you! I have Inside Edition watching this thread and I asked them to look into that lead to see if it offers what they are looking for. I also asked them to let me know what they find out about the lead to see if it will offer us materials for future use as well.

Peg541
I have sent an email to [url="http://www.allergyfacts.org.au"]http://www.allergyfacts.org.au[/url] and am awaiting a response, thank you.

williamsmummy
Yes we have contacted many charities but we have found nothing so far that they were allowed to give out. This is often because the parents who gave them the pictures either set restrictions on use, or did not give them the permission required for our current need.

Thanks to all who are posting, calling and emailing with leads and information. Keep up the good work; we are still in need of finding footage and more pictures of reactions.

Chris,
I just emailed you some pictures. I also just remembered that I had some pictures on my website that has free posters [url="http://www.angelfire.com/pa5/peanutallergy/hives.html"]http://www.angelfire.com/pa5/peanutallergy/hives.html[/url] (these are some of the pictures that I have on another computer if you need them in a higher resolution.)

Hope they help,
Valerie

[This message has been edited by CVRTBB (edited December 08, 2005).]

Chris, I just sent you an email.

Chris: I just emailed you some pictures too.

Cynthia

I do have several pictures of reactions. They are after my daughter was treated so they arn't full blown allergic reaction. I will send them to you with my permission to use if need. I posted on the wrong page last time. Sorry just new to the board.

Thanks everyone keep them coming!

Sent you the pics and my permission. Sorry I didn't get a chance to call. My son is excited his hives might be on tv!

Sorry, I don't have anything to contribute, but I was wondering if there is a potential air date for this segment yet?

I only have pictures of full body hives on my guy and we are assuming it was viral and not due to a reaction with food.
Plus, these were taken with a regular camera not digital.
If your still interested let me know Chris.

My directv guide said tonights show was to be about peanut allergies.
The Inside edition website also listed it as the topic.
Is it still coming on later?

Hi Chris,
I just sent you some pictures. Let me know when you get it please. Thanks!

What time is it on and what channel?

Whatever happened with this?

"And here is the direct link to the powerpoint presentation:

[url="http://www.fda.gov/ohrms/dockets/ac/05/slides/2005-4160s1_02_wood-Food%20Allergy-FDA_files/frame.htm"]http://www.fda.gov/ohrms/dockets/ac/05/slides/2005-4160s1_02_wood-Food%20Allergy-FDA_files/frame.htm[/url]

(I had to download the file first to see the pictures)"

I am doing a Be a PAL workshop for my Girl Scout Service unit for Food Allergy Awareness Week and I am trying to find pictures for a board that will be set up during the presentation. It sounds like these would work, but I can't see them. And I can't find an option to download the file. Can someone out there who can see these pictures email them to me? Or, tell me how to download the file? I would certainly appreciate it!

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Little Man's Momma
a*k*a Kendra

Um, Wow. I figured it out. Lots of bad memories there. I think that should get my point across.

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Little Man's Momma
a*k*a Kendra