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#226491 - 08/25/07 08:52 PM FAHF-2
Beth V Offline



Registered: 01/15/00
Posts: 49
Loc: wellington, florida USA
Hi All,

Had an appt with Dr. Sampson a couple of weeks ago. Unfortunately he had to cancel at the last minute for an emergency-BUT-since we were coming from Florida we kept the appt. anyway. FAHF-2 is still going into trials. When all is said and done, they won't tell you to go eat nuts or shellfish or whatever you are allergic to. You simply won't have to worry about an accidental ingestion or cross contamination.
Dr. Sampson is also working on a rectal vaccine. That sounds promising as well but not a lot of infor on it.
Beth
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#226492 - 08/27/07 07:33 AM Re: FAHF-2
jsmom Offline



Registered: 05/03/00
Posts: 14
Thanks for asking about the chinese herbal treatment. I'm praying that it works.
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#226493 - 08/27/07 12:57 PM Re: FAHF-2
solarflare Offline



Registered: 02/07/02
Posts: 853
Just not having to worry about cross contamination or accidental ingestion would be enough for us.

I don't see my almost 10 year old taking too kindly to a rectal vaccine though.

------------------
Cheryl, mom to Jason (9 MFA including peanuts, tree nuts, shellfish, coconut, sesame, squid)
Joey (8 NKA)
Allison (4 milk allergic, suspect shellfish, avoiding PN/TN for now)
Ryan (1) nka *knock on wood*
_________________________
Cheryl

Jason 10 mfa pn/tn/sesame/coconut/shellfish/squid
Joey 8
Allie 5 mfa milk/pn/tn
Ryan 2

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#226494 - 08/31/07 09:48 AM Re: FAHF-2
Lindajo Offline



Registered: 10/14/03
Posts: 1406
A rectal vaccine? I think Cheryl speaks for all our kids. Not to keen on that one. Hopefully, they can find another way of administering it.
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#226495 - 09/12/07 08:50 PM Re: FAHF-2
ijkchen Offline



Registered: 07/30/07
Posts: 39
We got a copy of the papers and the list of ingredients. My FIL got a chance to review it and is identifying the Chinese names for the herbs so we can take it to our herb people. We won't get a chance to caravan up to the herbal place for a few weeks but once I do I'll add a blog entry of what's said. Expect a lot of "restoring balance" and "too much fire" talk but I hope to break down at least what's in it and how it's supposed to work - by Chinese medicine standards.

The results of the July 2007 trials are out. It's still mouse models but all the earlier findings are holding up. PubMed doesn't have the doc yet and I don't have access to brand new papers through Blackwell Synergy but I should be able to beg my friend to get a hold of it.

As for the rectal vaccine I'm assuming everyone is thinking suppository and not syringe. It's not uncommon for Chinese medicinal products to go through the bottom and not the mouth. My husband went through a lot of suppositories as a kid. In our case since our boy is so young rectal compound 'pill' is better. You can't puke it out or taste it. But I can understand your son's position. I hate asking for Tylenol at home and getting handed a box of suppositories.
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#226496 - 09/13/07 06:09 AM Re: FAHF-2
mmgshih Offline



Registered: 05/09/02
Posts: 25
Loc: cambridge, ma
Hi previous poster (chen?)

I am sorry I cannot remember your login name-it is late at night and my brain is already asleep. If there is any way at all you could email me the Chinese names of the herbs I would be very grateful. My husband is from China and the next time we go back I would like to speak to his uncle who has an American MD but is also a Chinese medicine practitioner about this herbal medicine. I would like to try this herbal medicine and am willing to do it before they release it in its polished, heavily researched state.

Thank you in advance!
mmgshih
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#226497 - 09/13/07 05:12 PM Re: FAHF-2
ijkchen Offline



Registered: 07/30/07
Posts: 39
Absolutely. In case this formula gets stalled and never makes it to market I will keep a copy on hand. This week is tough but next week should be fine. If you want a bilingual version it will take a little longer only because FIL will write it down and I have to enter it into a word processor. I'd be happy to do that as well.
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#226498 - 09/13/07 08:15 PM Re: FAHF-2
Luc's Mom Offline



Registered: 09/14/05
Posts: 103
Loc: Princeton, NJ
 Quote:
Originally posted by ijkchen:

As for the rectal vaccine I'm assuming everyone is thinking suppository and not syringe. It's not uncommon for Chinese medicinal products to go through the bottom and not the mouth. .


regarding the rectal vaccine. we spoke briefly with our allergist at our last visit regarding promising research. She did her fellowship with Dr Wood i believe. And has co-authored FA research with Wood, Sampson & Burks -- so i feel she is really "in tune" with the latest stuff -- i love her!

She said that the FAHF results were encouraging, and that Burks oral immunotherapy were encouraging too (but the field has been disappointed before with oral immunotherapy for FA, so she was cautiously optimistic)

but the research she was most excited about, the one that she believed held the most promise at this point was rectal immunotherapy - because it bypasses the respiratory track and gut.

I will double check w/her at our Nov checkup, but i am fairly certain that the rectal "vaccine" isnt a vaccine.. moreover, its not FAHF being rectal administered but immunotherapy..

frankly, IMHO, any treatment with considerable promise is worth it, regardless of route of administration.. for us at least..
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#226499 - 09/14/07 06:42 PM Re: FAHF-2
Corvallis Mom Offline



Registered: 05/22/01
Posts: 4153
Loc: [censored]
http://www.acupuncturetoday.com/archives2005/dec/12fratkin.html
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#226500 - 09/14/07 11:59 PM Re: FAHF-2
mmgshih Offline



Registered: 05/09/02
Posts: 25
Loc: cambridge, ma
Dear ijkchen,

Thank you for taking the time to respond to my post. I would be very grateful if you would give me the names of the herbs in pinyin and in chinese characters if at all possible. You can also email me at mariagoff@hotmail.com if that is easier. It can't hurt to try this route. Keep me posted on how well the herbs work for you.

Thank you again for sharing your knowledge with me.

mmgshih
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