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PLEASE HELP

4 replies [Last post]
By cpoole on Tue, 02-15-00, 04:38

Hello. My 9 1/2 month old daughter has just been diagnosed as having a peanut allergy. The daycare provider we use gave her a cracker with peanut butter on it and within 15 minutes, she had broken out in hives and had itchy watery eyes. She called my husband at work and he immediately picked her up and took her to the doctor. They told us to give her Benadryl and come back the next day. She was fine after the Benadryl. We went for allergy testing and it was confirmed that she is allergic to peanuts.
My question is this: Where do we start? How can we get a list of products to avoid. How can we know which restaurants it will be safe to take her to?
I would appreciate any advice. Thank you.

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By Hope on Tue, 02-15-00, 15:02

Hello cpoole....

This may seem overwhelming for quite a while..take each day as it comes.
First find yourself a pediatric allergist and get a prescription for some epipens. You need 1 Epipen for every 15 min. you are away from medical help, it is good to have at least two on hand in case one malfunctions (it can happen). We have 6.
Unfortunately there is no difinitive list of foods to avoid. You need to start reading the labels of everything you buy. We have a rule 'no label - no eat'. We just don't take the chance.
When my daughter was diagnosed at 13 months I went into a long period of denial, I didn't even get the prescription filled. I was sure there was a mistake. Then I found this board and I got scared into action. Now I am prepared - all the time.
As for restaurants, birthday parties, school, playgroups etc...check out the other postings on this board. Most of these topics have been discussed and you will find information to help you make decisions you are comfortable with.
These boards are great...we all share the same thing...we love our children and they have allergies. Use the support you will find here and stay safe... [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Hope

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By Gerbrand on Tue, 02-15-00, 18:47

In the Netherlands there are very detailed lists availabale with products on it that do or do not contain peanut. The listst are very good. Keeping my son Lukas on a strict diet, we can 100% avoid difficulties. We order a new list everu year.

The dietlist is about the only thing that is taken good care of in the Netherlands. For the rest, PA is not known very well in my country.

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By Chris PeanutAllergy Com on Wed, 02-16-00, 03:54

Please post (and send me an e mail) with what you can tell us about this list, also please include where you acquired it. I would like to find out how it is produced, how accurate they feel it is, what can be learned from it to see if it can be duplicated elsewhere or to see if parts of it are worth duplicating etc.

Thanks.

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Stay Safe,

[email]"[email protected]"[/email]

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By Gerbrand on Wed, 02-16-00, 08:57

Chris,

The lists I refere to are on strict docters-prescription. If the docter states that a patient suffers a certain foodallergy, one can call with 'Nederlandse Voedsel Allergie Stichting' (Duthc Food Allery Associaton) and ask for al list of products that do or do not contain peanut, milk, egg (or combinations)or what ever. The lists are only on docters-prescription, because the producers think they give some information concerning their products (what is in it, how do you make it).

The list mentions for example that my son Lukas can eat chocolatebars from Hema, but not from Super, soup of Unox is allowed, but soup of Aldi not.

Not al the products are on the list of course. Producers have to give their coorporation. Happily all big and welknown producers do cooperate.

Therefor the list is so detailed, that I can not think of a PA-product that can not be replaced by a product from the list.

Our only (small) problem (but big for a 2-year old boy to understand) is that every summer there are new ice-creams, and it takes some time before a product is on the list.

My problem for the future will be that I expect it to be difficult for Lukas to eat in a restaurant. It is my expectation that talking to the restaurantmanager in front will in some cases not lead to the result I wish. This has everything to do with PA being very unknown in the Netherlands. It takes quit an effort to convince people that eating peanuts can couse a quick death.

Later this week I will give you the adress of the NVAS in the Netherlands. I hope this will lead to the situation that more people in my country hear from PA-allergy.

I guess the list will not suite very well for PA-patients abroad. Many products are specific Dutch products. The same is that it is not a big help for me to receive a food-warning concerning specific American products.

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