p-nut allergy news/your respons

3 replies [Last post]
paulette816's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 09/07/2004

I recently read 2 articles that may be of interest to all of you. Since I don't know how to do the cut and paste thing, they are asfollows...[url]http://www.hopkinschildrens.org/specialities/press_print.....this[/url] is an article re: the reliability of blood tests for food allergies. The second article speaks to the development of an allergen free peanut. If you go to scitechdaily.com - just under the little astronaut is the story line. I'm most curious as to the response on the blood test article. I've read one other report that speaks to this....the 1st one being in AAAAI. Also...when you are developing a 504 plan with your school, are the results of testing required...meaning...caprast...skin tests or food challenge? How is it determined that a child has a severe food allergy? By history and blood/skin results alone? If this one article is valid, without a food challenge the diagnosis and severity could be completely compromised/innaccurate. Please explain and thanks in advance.

Corvallis Mom's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 05/22/2001

Above a >95% predictive value, there is little point in conducting a food challenge. Many board-certified allergists would refuse to do so above a 95% predictive RAST for peanut due to the very real risk of fatality, even in a hospital setting. The exception is the unusual case in which the patient in question has a clear history of consuming the food in question without any evidence of a clinical response.

More about >95% predictive RAST:
[url="http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=9338535"]http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=9338535[/url]

[url="http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=11344358"]http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=11344358[/url]

[url="http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=11150010"]http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=pubmed&dopt=AbstractPlus&list_uids=11150010[/url]

(And the full text of the most useful of the articles [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

[url="http://www.diffchamb.com/website/Archive/documents/diffchambAB/product%20files/elisadoc/ref_lit_elisa/Ref%20Lit%204%20Peanuts.PDF"]http://www.diffchamb.com/website/Archive...4%20Peanuts.PDF[/url]

504 teams [i]frequently[/i] request such data to support eligibility, though this may be in the form of a physician's written assertion rather than specific test results. This is because the physician is trained to interpret such test results, and most 504 committees do not have a member with an MD with an allergy specialty.

In addition, many allergists do not feel that there is need for a lot of testing when there is a very clear clinical history of life-threatening allergy-- other than to make certain that the allergen is correctly identified. A hospital stay or intubation after a first taste of a particular food is generally considered sufficient, provided that other possible causes are eliminated. There are rare individuals who anaphylax upon exposure in spite of NEGATIVE skin testing and RAST results.

As to the 'non-allergenic' peanut press releases floating around:

Please note this thread, which contains several links.

[url="http://uumor.pair.com/nutalle2/peanutallergy/Forum8/HTML/002099.html"]http://uumor.pair.com/nutalle2/peanutallergy/Forum8/HTML/002099.html[/url]

Hopefully this is helpful.

PinkPoodle's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 06/12/2007

Paulette-Don't you work in the schools? Maybe you can direct these specific questions to your 504 coordinator to see which hoops they have parents jump through for the designation. I know you had an experience with one student who actually turned out not to have the allergy and you had gone to great measures to keep the students safe...am I right or confusing you with someone else?

Anyway...yes we provided lab results for DD, letters from 3 physicians, as well as her clearly documented history of anaphylaxis. She also had failed a food challenge for egg 1 yr before in a hospital.

I'm sure there are some parents out there who simply 'think' there child is allergic, but I think the majority of us here have witness our children react, as well as multiple lab tests that confirm. Not just one out of the blue test. I don't have my daughter tested for random foods.

I did see the Johns Hopkins study. It confirmed what I already suspected. It did not change anything for my family..and it doesn't change anything in terms of the school's obligations to provide safe measures.

This topic seems to stay with you, so I again would suggest you talk to your coworker/your school's 504 coordinator and get further clarification. You might want to ask what "proof" the school gets when designated 504s to children for other reasons or IEPs for children. Any blood test to confirm ADHD? Nope, they don't exist...How about for Bipolar Disorder--what is the child's blood work show---oh, again, there is no concrete "test". I could go on. I'll stop.

Thanks for sharing the article.
Nicole

paulette816's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 09/07/2004

Thanks CM...I'm reading those forwards and I appreciate your response. I get excited when I see any helpful/hopeful information like these 2 reports that I mentioned. Again...thanks

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