out of control eczema

27 replies [Last post]
By KaraLH on Sat, 06-23-07, 00:39

Is anyone else having trouble right now with their childs eczema being out of control? My 5 yo dd is having a terrible time with her eczema right now and I'm not sure what is flaring it.

It started a couple of weeks ago with the largest area being around her collarbones. It wept and crusted over and about a week later it was gone (mostly). Then last weekend it started again. Worse. Monday the ped said it was poison ivy. I didn't agree. When she woke up Tuesday morning it was down her belly, on her back tops of thighs arms and groin. She was miserable.

We made an appt. with the dermatologist on Tuesday and we got yet another prescription. Another compound.

The area around her neck and shoulders is no longer crusty or weeping but she has patches all over her tummy back and bottom legs and arms yet.

She has nkfa. She does have seasonal allergies. It has always seemed a little more calm in the summer time up until now.
Is it the humidity? Something environmental?

Any advice would be welcome. She's kind of miserable.

She does take zyrtec every night.
She also has sensitivity to petroleum and maybe lanolin. (we have our limitations as far as treatments....)

Thanks

edited to say we live in Michigan...
------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 21 mos- (eczema, NKA)
Cecelia 4 mos-(NKA)

[This message has been edited by KaraLH (edited June 22, 2007).]

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

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By Ree on Sat, 06-23-07, 03:09

My 15 mo old is having horrible ezcema. I had him skin tested for food at 11 mos and he came back negative to the top 8. But his eczema was mild then. Now I'm so confused as to this flareup. I'm thinking it's environmental. I posted a topic on this and other commented that it's been a bad few months for seasonal allergies. I have an appt with an allergist next Friday, but I can't take him off antihistamines because we'll all go crazy. He's on Zyrtec in the morning and Atarax at night.

Hope it's poisin ivy and not eczema... I'd love to be able to get rid of this with a dose of oral steroids! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

__________________

Mom to
5 yr DS - PA & EA
3 yr DS - MA, EA & PA
1 yr DS - KNA

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By KaraLH on Sat, 06-23-07, 03:22

Dermatologist agreed: definitly not poison ivy. It is eczema.

I agree about the oral steroids. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By Lindajo on Sat, 06-23-07, 15:52

My exczema is flaring up also, topside of my right elbow in the crease. It looks horrible and is so itchy, especially when it gets hot and sweaty. Anyone know of a good cream to control it? I've used something called "temovate". I think that's what its called but its so greasy and the cream is so thick, sometimes it makes it itch more. I wonder if it has anything to do with all that yucky pollen that's in the air.

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By smudgesgarden on Sat, 06-23-07, 17:32

our ped. said that grass pollen can trigger the exczma. try backing soda baths. it helps alot, with the itching and it keeps the skin soft.

erin

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By seanmn on Sat, 06-23-07, 17:59

Quote:Originally posted by Lindajo:
[b]My exczema is flaring up also, topside of my right elbow in the crease. It looks horrible and is so itchy, especially when it gets hot and sweaty. Anyone know of a good cream to control it? I've used something called "temovate". I think that's what its called but its so greasy and the cream is so thick, sometimes it makes it itch more. I wonder if it has anything to do with all that yucky pollen that's in the air.[/b]

My DS has cream from the doctor called
TRIAMCINOLONE ACETONID CREAM. It works really well. It smells nice and goes on like lotion and is not greasy. I was also told by his doc not to let him take baths where he would be soaking in soap. Also, baking soda works well in the bath. He is 7 but I put deodorant on him to control the sweating.

Maybe, KaraLH, you could switch to giving her the Zyrtec in the morning. I don't know if this would help or not. My ds takes his in the morning and does really well during the day with his outdoor allergies and pet allergies. Or, maybe the dose is not enough.

Good Luck,

Jan

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By KaraLH on Sat, 06-23-07, 19:18

She gets a little drowsy from the Zyrtec that's why we give it to her at night. But maybe I'll try a.m. anyway. I also wonder if the dose has to be higher.

I think I'll try the baking soda bath. How much?

I wonder if it is the pollen?.... could be because her nasal allergies are bad too.

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By seanmn on Sat, 06-23-07, 20:16

Quote:Originally posted by KaraLH:
[b]She gets a little drowsy from the Zyrtec that's why we give it to her at night. But maybe I'll try a.m. anyway. I also wonder if the dose has to be higher.

I think I'll try the baking soda bath. How much?

I wonder if it is the pollen?.... could be because her nasal allergies are bad too.

[/b]

I just sprinkle in the baking soda, maybe a fourth of a cup or maybe more.

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By PennMom on Sun, 06-24-07, 04:59

Not sure what lotions/creams you are using (saw you had sensitivity to lanolin and petroleum) just wanted to say my DD never had any issues with eczema before this March- we have now figured out that she is reacting to the creams we have been using (lanolin we think- in two kinds of eucerin, and also in aquaphor- previous problem)- we go to the allergist this week so hopefully he can help get to the bottom of this- but we really think its the lotions we were using. Hope you find out what might be causing it! Good luck!

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By SpudBerry on Sun, 06-24-07, 05:48

My son is currently experiencing the worst flair up he's ever had.

I'm blaming it on the chlorine in the swimming pool. Ever since I noticed the eczema spot - I've been better about getting him showered off imediately, and I goop him up good (on the spot) with some Eucerin cream before he goes in to the pool, then again right after the shower.

His seems to be getting better - slowly.

------------------
Sherlyn
Mom to 7 year old twins Ben & Mike
One PA since 13 months
One PA since 7 years
Stay Informed And Peanut Free!

__________________

Sherlyn
Mom to 7 year old twins Ben & Mike
One PA since 13 months
One PA since 7 years
Stay Informed And Peanut Free!

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By Ree on Sun, 06-24-07, 11:56

Quote:Originally posted by KaraLH:
[b]Dermatologist agreed: definitly not poison ivy. It is eczema.

I agree about the oral steroids. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

[/b]

Kara - How did the Dermatologist tell you to treat it? Why did you go to her/him versus an Allergist?

Our Ped said we should go to the Allergist with the family history, but I'm wondering if we should se a Derm. instead. We had a really bad night b/c I didn't use hydrocortisone before bed. I'm struggling with how to treat him without over drugging him!

__________________

Mom to
5 yr DS - PA & EA
3 yr DS - MA, EA & PA
1 yr DS - KNA

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By notnutty on Sun, 06-24-07, 13:22

My son's eczema is pretty controlled right now, however, our allergist told us to take 2 short baths a day in warm (not hot) water. Let the skin get soft from the water then immediately put lotion all over his body.

I think summer heat and pools have a lot to do with flareups. My husband's eczema was so bad recently that he did start a treatment of oral sterroids.

__________________

No longer a member.

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By seaside on Sun, 06-24-07, 13:23

If it is worst in the morning, try switching her bedding. My son has a hard time with anything made out of Polyester. We switched him to only 100 Percent Cotton, and it has made a big difference. My son is also allergic to all creams and lotions. The only thing that he can use is Vasaline. We put it on him everynight, and that also makes a big difference.

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By JRB on Sun, 06-24-07, 22:59

Does eczema always have to do with food? My ds has broke out yesterday and has not ate anything new unless it was breakfast from BK. He had a cranswich sausage. He only at the sausage. Today he has a blister on his lip.

Any advice?

Thanks Suzette

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By KaraLH on Mon, 06-25-07, 01:58

Ree, the only reason DD goes to a dermatologist is because she has never had any serious allergy problems. She started seeing a derm a couple of years ago because of the eczema. We now have an allergist for my 3 yo DD who has MFA's as of last Sept.

Now we use a compound of Kenalog and CeraVe cream. It was Kenalog with Cetaphil. We also rotate with Dermatop (the only straight steriod cream she hasn't had some kind of a reaction to) and Mimix and Atopiclair non-steroidal creams. We have tried about 5 others all of which she has had a reactions to. Even the Dermatop (which we now have in generic form) is not working any more. I think it might be the difference between the name brand and generic? Others like Protopic are petroleum based and she breaks out in hives.

It is so frustrating. The new compound we got on Tuesday burns so bad when we put in on. Although as of today, it looks like for now, the worst may be over.

To answer someone elses question: No eczema is not always food related. My DD with the eczema has no food related allergies. She has had eczema since infancy. My 2 yo DS has eczema (mild) and NKFA either. 3 yo DD with food allergies has very mild eczema.
Baby- nothing yet!!!

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By Moni on Mon, 06-25-07, 06:04

Hi Kara

Have you every tried Emu Oil. I expect it is only available here in Australia, although many american health food or organic food stores or markets stock Australian tea tree oil etc so maybe they will sell emu oil. If not, there are a few websites here in Australia that would probably ship to US or Canada.

You just have to make sure it is 100% Emu Oil. It has been a miracle cure for us. I have skin problems so when I'm having a flare up I take the 100% emu oil capsules and apply the oil to the psoriasis. For my son, he has had terrible cradle cap since he was a baby (now 7)and the ONLY thing (and I have tried so many things)that gets rid of it is emu oil. He also gets this redness(sore area)under/around the bottom his lips, I think it may start out as wind burn or maybe he has eaten something that has given him the rash (eg tomatoes does it) and I put on the emu oil and within 24hrs it is almost completely gone. I haven't tried it orally for my son yet, not sure that you can give it orally to children. A friend of my mums had terrible psoriasis on her head etc her whole life, she now takes emu oil orally and topically and it has completely gone.
I can't say that it would work for everyone, because we are all different and I'm not a doctor or naturopath or anything, I've just used it myself and on my family and it is fantastic and thought I would share it with you and you could investigate wether it would be something that could help your daughter, if you google emu oil or 100% emu oil there should be lots on it and exactly what skin conditions it is best for.

Moni

------------------
LIVING WITH PEANUT ALLERGY FOR 30+ YEARS

__________________

LIVING WITH PEANUT ALLERGY FOR 30+ YEARS

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By chuser on Mon, 06-25-07, 18:42

Kara L:

My heart goes out to your little one! My DD suffered from severe excema since birth, and around this time of year it would really flare up. The good news is that she is 7 years old now and her excema is significantly better. Not sure why exactly -- we moved and now have softened water which I heard can help. Suncream made her excema worse -- I read that the ingredients for high SPF suncreams can aggravate excema. It certainly did for her. The heat is the worse though -- we had to keep her in during the high heat days. She does not like the sun either. Even then we still had to aggresively treat her excema. The only thing I can say for sure is hang in there (I know it is darn hard) but it will get better.

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By chuser on Mon, 06-25-07, 18:47

KaraLH:

Not sure how to edit my original reply, but I wanted to add, that friends of ours also have a child with severe excema, and they swear that their salt water pool helps in keeping the excema in check. They actually say the best is when he swims in the ocean!

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By KaraLH on Mon, 06-25-07, 20:46

Chuser: Thanks! I have to say, I think sunscreen is aggravating the problem this year too. Until this year April-October has usually brought some relief. This year it was just the opposite. All winter we dealt with learning about Food allergies and the eczema subsided- Then when we're starting to finally "get the hang of" these food allergies, the eczema gets bad again. (different kids) I have hope that it will get better as she gets older!!

She is also in swimming lessons right now. Very drying. The eczema was flared before we started but it is hard to deal with when her skin is sucked dry from the chlorine every night. They're done on Thursday.

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By KaraLH on Tue, 06-26-07, 20:09

Just heard from a friend. She is an Arbonne consultant. There is a line for kids. I think it is ABC Kids?

Just wondering if anyone has ever tried it. Apparently it's supposed to be very good for eczema. No Lanolin or petroleum. Before I spend the big $$ I just wondered if anyone else has tried it?

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By TMG on Thu, 06-28-07, 18:55

I wondered about Eczema flaring up... a week ago my daughter's skin was awful. It's hard to tell the difference between the Eczema flare-ups and food reactions. Any tips for that?

Also, We use CeraVe and I'm glad to see others that use that. Do you use the lotion or the cream? Do you find one works better than other? How do you handle the itchiness of the Exzema?

Kara - I'm wondering if you buy the CeraVe in small bottles or if you get it from a supplier? I find it's hard to spend the $13 every 3 weeks for our daughter.. I can't imagine having to use it on more than one child. We'd be going through a bottle a week!

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By saknjmom on Thu, 06-28-07, 19:00

My son's eczema has been aggravated lately. Usually, the sunscreen is the culprit and swimming in lakes.
This year, his skin has been bad on his hands and feet. His hands started peeling and they were a mess. We thought he had athlete's foot on his hands. Went to the dr yesterday and she said it isn't athlete's foot, it is eczema. He had strep throat awhile ago and she said that sometimes strep can cause peeling skin?

Also, we have been having success with vanicream lotion. I find that creams are better than the oily stuff like aquaphor and vaseline. I even have his cortisone cream mixed as a cream not an ointment.

The stuff I've posted about before called Cutar is a lifesaver for us. [url="http://www.sumlab.com"]www.sumlab.com[/url]
it is a liquid you pour into the bath.

For excessive itching, I give benadryl at bedtime until things settle down.

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By KaraLH on Thu, 06-28-07, 19:46

TMG, I have only been getting the CeraVe from the Dermatologist so far. Can't find it anywhere else. Too new around here?
I know it gets so expensive, between steriod creams, allergy meds and daily maintenance it can be scary. I'm the only one in a house of 6 not on some kind of prescription right now!!

Saknjmom, I've heard that a lot of people like the Vanicream. What about this Cutar? Does it foam up? Can you use it like a soap? All the cleansers we've tried are like water. I don't feel like they do any good.

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By saknjmom on Thu, 06-28-07, 21:44

the cutar stuff is not soap, more like a soak. It is coal tar based and has done miracles for my son's skin. It is expensive, but you don't need that much per bath. At this point, our eczema is better and a gallon jug will last 1+ year.

I've posted this story before, so those who have read it can yawn!!

DS has had horrible eczema since about 3 weeks old. It did improve after we started allergy shots and got allergens out of his diet. But, sunscreen and pollen wreak havok on his skin.

In the late spring when DS was 5, the sunscreen had completely sucked his skin dry. It was literally like sandpaper from his neck to his toes. It was cracking and he could hardly stand to be touched. I took him to the dermatologist. He gave me a sample of the stuff. He took a bath in it and came out with probably the softest, calmest skin he'd ever had. We use it when his skin is aggravated. It works!!

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By KaraLH on Thu, 06-28-07, 23:50

Well, you have me very interested. That sounds very much like DD's skin. It peels and sloughs off and leaves raw oozing spots. Most of that is cleared up now but now it is just so dry- like sand paper.

She said today: "I'm glad at least it doesn't hurt anymore. But, I bet it will again soon, huh mom?" Ok, sad moment for me. just like last week walking into the derm's office and she says,"I can hardly wait 'til I'm normal." I asked her what she meant and she says, "Like, until my skin is soft like yours and not so hurty." Another sad moment for mom. She's not even the one with food allergies!!

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None
By FromTheSouth on Sat, 06-30-07, 03:09

I suggest you see a good dermatologist as well as an allergy doc. The allergy doc. can identify allergies but our experience lead us to conclude not all allergy docs. know how to treat ezcema effectively (which is chronically dry skin usually triggered by allergies). I'm not a doc..so can't give medical advise...What our derm. doc. told us years ago was to soak our dd in the tub for exactly 15 mins. in slightly warm water...overly warm water can irritate it...with no soap. Keeping moisture on all parts of the body. Then we had her stand and soaped her up quickly with Cetaphil liquid soap or their bar soap. We now use Dove unscented bar soap because Cetaphil a couple of years ago starting adding almond oil to some of their products. My dc said their skin felt like it was on fire one day when I used their lotion. That's how I discovered the ingredient change. So check the ingredient labels on all bath products/soap. It often is listed. I think the Dove sensitive skin formula may contain almond oil, also, but we have had no issues with the unscented or reg. Dove soap. The doc. even had us wash her hair with the soap instead of shampoo because many shampoos have irritating chemicals. This was simply a precaution til we knew she wasn't having a reaction to shampoo.

Then we rinsed her with clean water ...and did not use a washcloth because rubbing irritates the skin...while the skin was still wet we applied the moisturizer. We were told to let her air dry...so no towel rubbing. Again, at the time we used Cetaphil lotion..then switched to Eucerin...Found it difficult to rub in...then I saw a news segment about using Crisco shortening for eczema. I tried it and it worked great. It rubbed in easier than Eucerin & had no odor. It contains soy, however, so not everyone can use Crisco. We would put a dab of hydrocortisone cream on inflammed areas (always seemed to be in the bends of the elbows and legs...behind the neck) The best advice was treat any inflammed areas ASAP so it wouldn't get out of control...and keep their fingernails clipped. We even switched to Ivory Snow/Dreft laundry detergent and only used white 100% cotton sheets for awhile to eliminate some possible reactions. My 4th dc also has ezcema but has not had to see a dermatologist because I keep it under control using the above bathing method. Again, see your doc. for advise. This is just what worked for us. When she first saw the allergy doc. she was so inflammed she had to go on liquid steriods & prescription ointments to get it under control. Then the allergy doc. said we needed to see a dermatologist.

P.S. Almost forgot to mention doc. told us sweating/heat can make it worse. Even getting emotionally upset can trigger it...Told us try to keep her calm. She was around 3 years old when she first saw the derm. doc.

[This message has been edited by FromTheSouth (edited June 29, 2007).]

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By lauramacf on Sat, 07-07-07, 03:39

Much of my advice may be repeats from what others have said. My DD used to suffer from severe eczema, triggered by both food allergies and environmental ones (including animal dander, a real biggie for her). My recommendations are baking soda baths, no soap whatsoever for a while (I used to even use baking soda on her scalp if it was really dirty, but mainly would just rinse it with the baking soda water), allergen and scent free laundry detergent (we use All Free and Clear), no fabric softeners, no dryer sheets. Dust covers on the bed, no stuffed animals in bed. Be mindful of dust and allergens in the home and clothing, for instance, line drying clothes outside would be a no-no because of pollens, we keep the windows closed in the house and run the air conditioner in the car (once I used the vent for fresh air, and the inside of the car was covered in green pollen shortly after!) I also use an allergen barrier lotion on her skin when contact with any allergen could be an issue. The product I use is called Proteque, it is non-greasy and very light, but lasts through handwashings. Use a moisturizer you trust and know hasn't irritated in the past (trying a new product in the midst of a bad eczema spell is tempting, but could add to the problem right now).

My daughter's eczema didn't get completely under control until we identified all of her allergens (and she has an extensive list) so there is always the possibility that an unidentified or new allergy is to blame, but there are so many reasons eczema can flare up it is really hard to say. In our experience, few doctors were really willing to search for the "cause" and dismissed the idea that she even had allergies back when she was a baby covered with weeping, bloody eczema (until she experienced anaphylaxis, of course).

As time went on with my little one, I started to use California Baby body wash/shampoo in addition to her baking soda baths. She has been doing great the last few years. I never want to go back to the days of out of control eczema, so we continue with most of our other precautions. Good luck!

__________________

Laura
DD wheat egg milk p/t-nuts shellfish oats seeds
DS gluten-intol
Both asthma/env. allerg.

Groups: None
By KaraLH on Sat, 07-07-07, 17:45

Thank you. Actually, DD is doing much better this week. We've kept the air on in the house more and been keeping cooler in general which I think is helping. We also do the free and clear laundry thing. That started when she was a baby- she just can't tolerate anything more. She has no food allergies just seasonal and environmental. We don't know the extent of those allergies however, she just takes Zyrtec daily to help those.

What I have found is that it is hard to continue all of the routines when her skin is better and not flaring. This has been 5 years and you would think that by now I would have learned that we just need to use every precaution even when she isn't flared up just to prevent a flare up. I guess I also hope that this time will be the last bad flare up she gets and of course, I'm wrong every time.

Routines. Isn't that what all of this is about? learning new routines and sticking to them. All of us live by routine. No throwing caution to the wind for us. It's all aobut the routine.

------------------
Kara mom to 4, wife to 1
Elise 5- (eczema, NKA)
Mary 3- (egg, peanut, beef, pork, chicken, turkey, organge, avoiding: tree nuts, shellfish, most dairy, eczema)
Franklin 2- (eczema, NKA)
Cecelia 7mos-(NKA)

__________________

Kara
dd 6-ecz.,petroleum
dd 4-egg,pn,tna,sfa,pork,milk&pres intols,
chocolate
ds 2-Env
dd 1-NKA

Groups: None

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