One of the lucky few...

Linda,

Wow! Congrats on your fantastic news! Thanks for coming back to share. Your old posts have been helpful for those who joined after you. Thank you for taking the time to document your experiences for others...

A topic of discussion lately has been kids making the transition to middle school. If you happen to have time, I know that many would be interested in any words of wisdom you have about your 504 plan for middle school.

I'm thrilled for you and your family [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Thank you for sharing your DD's story. This is so terrific!

Congratulations! You are living the dream that all of us share. I'm happy for you (but, of course, slightly jealous as well).

May I ask what kind of reactions you witnessed and to what food it was she had eaten when she had her reaction?

Oh, rilira, I am crying. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] How absolutely wonderful. Oh, big hugs. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Really hon, with all of the time and effort you put into PA.com (I was going to base Jesse's written school plan on your daughter's 504) and just everything that you have offered our community, well, I have to go and have a good cry.

How wonderful. Big hugs to you, ri and ra. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

That is the best news!!! I love it...gives us all some hope too. I was curious to know when she was last tested and what the results were? I would also be curious to know about her previous reactions.

Thanks again for posting your story. Congratulations!!!!!

Me, I'm still crying. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Congratulations!!!

I also am curious to know if your daughter had asthma.

Yeah!!! Love to hear good news like that. I'm so happy for your family!!!
Julie

I am so happy for you. I just joined this bb and have a 3year old with pa and a 1 year old with wa. It's a pleasure to hear good news. I can only hope for the same.

Congratulations. so pleased for you all. Big hugs from Jayne and Becky x

What great news! Congratulations. I can only imagine the sense of relief that you must feel!

Seems like there are more outgrowing lately. Which one of us will be next?! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

rilira,

That is awesome news! I'm hoping to be able to post the same one day, too [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Would you mind refreshing my memory with regards to your daughter's reactions? How many? Approx. what age? How severe? Epi ever used? Only hives? or similar things that you can think of.

I know everyone is different but I'd like to use this as a comparison to my own son.

Thanks and give your daughter a big hug from me! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Linda, that is amazing news! I'm so happy for you and your daughter. Good job (both you and her) for keeping her safe all this time until she outgrew her allergy.

Congrats!!

I think we are a long way off from being "one of the lucky few .. ", especially since I now have 2 PA children, but perhaps one day.

Thanks everyone. I will try to answer all the questions. Rach was originally determined to be TN allergic only at age 3. She had an anaphylactic reaction from eating choc. that had touched a pecan. She was determined (after a rast) severely allergic to many tree nuts - not peanuts.
When she was five we noticed she had coughing, unexplained rashes/hives, itchiness on her face. It was determined she was now PA also.

Rach was very vigilant and handled her allergy very well. She had minor reactions on a few occasions after accidental contact or smelling of nuts/peanuts. We never used the epi pen once it was prescribed.

Rach was tested at age 3 (rast),ages 5,7(skin) and age 11(skin and rast). She tested very high on everything when she was 7 so we accepted the allergy was going to be lifelong and decided not to test again until she was older. We had planned on waiting until 13 but decided to try earlier.

Rach did have asthma. She has not had to use her inhaler in a year and a half. Her lung function was tested and she was determined to no longer be considered asthmatic. She had mild asthma.

To say life is great is an understatement..... Tuesday I got a call on my cell phone from Rach's school and I didn't even flinch (turns out I should of - she went head first into the cement - she's ok now) but my point is, normally my heart would have raced realizing her school was calling and thinking she had a reaction.

I know someone asked about a middle school 504. Ours was pretty much the same as her fifth grade one. Our great advantage was Rach's school is brand new so no food is permitted in any of the buildings. That took away half the battle. They designated a lunch table for her and she carried (carries) her own epipens. We had no nuts/peanuts used in any lesson or activity involving Rach or any of her classmates. I met with her teachers and became involved in the school so it really was quite simple.

I am so grateful and thank God for our experiences. I think PA added so much to our relationship with our daughter. We took a very active role in all her activities school, sports, social and I don't know if that would have been any different if we didn't have the motivation of making all activities safe for her. I know we would have been involved but I think it would have been different without the PA.

We have met so many great people due to Rach's allergy who we would have never met if she didn't have her allergy.

The greatest thing was her coming home saying all my friends got to eat with me today....the small things are the greatest.

Remember if it happened for us, it can happen for you!

Linda

[This message has been edited by rilira (edited September 09, 2005).]

This is probably the strangest thing to ask but I am so curious. When she eats new products with Peanut in it would you let us know how it goes and what the item is? I am just so amazed and anxious to follow how it is going with your DD. Thank you so much

That's fantastic news! Congratulations to your family.

Amy

Claire,

Rachel has had:
snickers
Reeses PB Cups
M&M's (plain & peanut)
Butterfinger
Twix
Kit Kat
Crunch Bar
Skippy Peanut Butter
Granola Bar
Chinese Food
All with no problem whatsoever.

So great!! I am very happy for you!

Looking at that list, she might have to take up jogging, hee, hee! Just kidding, of course!

Really good news. becca

That is great news! I'm so happy for you two! Were you a little leary giving her something with peanuts in it for the first time?

Wow that is great for you and her!! I would love to have a bag of butterfingers to eat. Maybe Chris having the allergy is keeping my weight down a bit. I would sit and eat the whole bag of PB cups if I could.
Amazing what we can give up to save our babies.
Best of luck claire

rilia, I am so happy for both of you. [img]http://uumor.pair.com/nutalle2/peanutallergy/biggrin.gif[/img]

I really wish all the kids could outgrow it. That's where all my hopes and prayers go.

********

I guess she doesn't remember every eating pb before. Does she like it? Was she scared trying new foods?

[i]I thought I had posted a response here the first time I read the thread - but I guess I got interrupted and forgot.[/i] [img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img]

Everyone keeps joking with Rach about gaining weight (she is in 7th grade and still wears a little girls 10 slim). I guess all her gymnastics keep her slim!

She didn't ever remember eating PB. She thinks it tastes great.

The actual food challenge was scary at the beginning but once it was obvious she wasn't going to react it wasn't bad. The allergist basically said if she is going to react it will be right away.

Once you watch your kid eat 27 peanuts in a controlled setting without reacting, you aren't afraid for her to eat anything else.

Our next big plan is to go out with friends to Roadhouse Grill to celebrate ( they are the ones who serve peanuts and you throw them on the ground!!)

Yesterday I did get emotional when I had my meeting with the school. It was a meeting to dissolve her 504. When they handed me the paper to sign, it all hit me. I didn't think I would ever be doing that. It was a huge moment!

Linda

In tears & almost speechless! That has to be amazing. Congratulations!

Linda, would you mind telling us what class your DDs peanut allergy was? How severe? It might give those of us whose kids are quite severe a little more hope! Thanks.

Wow Linda - what incredible news! I am so happy for you and Rach. I haven't been checking these boards much at all, recently, but boy am I glad I did today!

I will be thrilled if the same should happen for Leah. So far we have been RAST testing every two years and she keeps coming out as a class 6 for peanuts and walnuts. This December we will do it again. Maybe something will change.

Congratulations!!!!!!!!

[img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Miriam

California Mom, you've been missed. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Lindajo- Rachel's PA and TNA were all class 6 and she had asthma. They told us she was almost a 100% guarantee of her allergy being lifelong. Rach had even had reactions to smell...

So there is hope to the very severe here.

Linda

rilira, you may not remember, but I don't have any "numbers" or anything for Jesse - I just know he's had three anaphylactic reactions so I have given up hope of him outgrowing the allergy. Are you telling me I shouldn't? I just always thought once you had the anaphylactic reaction, that 20% chance was blown out the window.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Thanks, Linda! That IS good news! My PA DD is diagnosed as severe also. She has gone w/o a reaction (Thank goodness!) for 8 years now. But, when I retested her levels last year, they went up [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]. I do hope and pray she grows out of the severity of this allergy. I still wouldn't let her eat peanuts/nuts, but just to know that she wouldn't be severe would be great!

Simply re-raising for Lam and Naer74. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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"That was Polanski. Nicholson got his nose cut."

rilira, I was thinking about you (and your daughter) the other night. I remember how you "paved the way"; how you posted your daughter's 504 Plan on the board and worked so closely with other members (including myself) to make sure that they could get what they needed for their children. You were one of the forerunners as far as the whole 504 Plan on this board (posting your daughter's and helping others) and man, what an incredible journey for you to have taken and then have it turn out the way it did.

Since your holiday season is upon you officially with Thanksgiving last week, I was also wondering how you and your family are dealing with the holidays differently this year, minus PA.

Just really wanting to say that despite the fact that your daughter has outgrown her PA, it doesn't mean that your hard work on behalf of her and the PA community will ever be forgotten or that we don't wonder how you are living now without PA.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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"That was Polanski. Nicholson got his nose cut."

(Thanks, Cindy!)

rilira,
How absolutely amazing!!! I am speechless. (That's pretty amazing in and of itself!)

With God all things are possible. I hate to admit this, but I haven't prayed about my son's PA being taken away for a very long time. I know better. There is ALWAYS hope.

I am thrilled for you and your family! Congratulations!
Lam