Peanut-Free/Nut-Free Directory
Our directory is intended as a resource for people with peanut and nut allergies. It contains foods, helpful products, and much more.
Dear Chris,
As you are aware, the MoD and the National PN Board have joined forces to promote PNs as a source of folic acid (See [url="http://www.modimes.org/About2/PressReleases/2001/peanutboard.htm)."]http://www.modimes.org/About2/PressReleases/2001/peanutboard.htm).[/url] The materials that are being distributed in connection with this campaign make no mention of the recent studies indicating that children whose mothers consume PNs while pregnant or nursing are at a higher risk of developing PN allergy, particularly if there is a family history of allergies. Moreover, the materials describe PNs as a "rich" and "excellent" source of folic acid when other foods such as eggs, oranges, broccoli, bread, cereal, spinach and prenatal vitamins are actually far better sources. Unlike the National PN Board, however, the producers of these foods, did not contribute $2.5 million to the MoD WalkAmerica campaign.
Michael Jacobson of CSPI has been corresponding with
the MoD, and it appears that they are willing to add the following warning to future publications that are cosponsored by the Nat'l PN Board: "Any woman with a family history of PN allergies should avoid eating PNs or PN products at all times, not just while pregnant or breastfeeding." Also, MoD recently posted info on its website that includes warnings to women with a family history of nut or other allergies (See [url="http://www.modimes.org/HealthLibrary2/peanuts.htm)."]http://www.modimes.org/HealthLibrary2/peanuts.htm).[/url] I am concerned, however, that the warning that the MoD intends to add to its literature does not go far enough and will not be added to existing publications. Furthermore, while the posting on the MoD website is appropriate, I cannot imagine that many women will take the time to read it. Therefore, I think the time has come to apply additional pressure. Dr. Jacobson has drafted the following letter that we hope can be used as a model for PeanutAllergy.com subscribers who wish to write to the MoD:
Dr. Jennifer L. Howse
President
March of Dimes Birth Defects Foundation
1275 Mamaroneck Avenue
White Plains, NY 10605
Dear Dr. Howse,
As the parent of a child who is sensitive to peanuts, I am astonished that the March of Dimes would encourage pregnant and lactating women to consume more folic acid by eating peanuts. Research indicates that eating peanuts while breastfeeding and possibly while pregnant increases the risk that a child will be sensitive to peanuts.
Your promotional materials do not even indicate that women (and, in the case of pregnant women, their spouse) who have food allergies should make a special effort not to eat peanuts, whether or not they are sensitive to peanuts. Research indicates that eating peanuts while breastfeeding and possibly while pregnant increases the risk that a child will be sensitive to peanuts.
Moreover, it is very troubling that you would even cite peanuts as a source of folic acid, inasmuch as that many other foods, from bread to spinach, are much better sources of that important vitamin. I can only assume that the $2.5 million that the National Peanut Board gave to the March of Dimes distorted your priorities.
Sincerely,
_______________________________
cc: Murray L. Campbell
Chairman
National Peanut Board
900 Circle 75 Parkway
Suite 1220
Atlanta, GA 30339
Congressman/woman ______________
Senator __________________
Margaret,
Apparently, your message was not successfully submitted. Could you try again, please?
Quote:Originally posted by margaret:
[b]
[This message has been edited by margaret (edited July 19, 2001).][/b]
Actually, I deleted my post. I hadn't read the preceding posts thoroughly and so had to retract my statement.
I feel strongly about this issue, so I wrote and sent my letters today.
Thanks for the Info. Colleen's Mom. I hadn't given much thought to the issue since it first came out but since your post I looked into it a bit more. It is fairly aggrevating that MOD is pushing peanuts as a source of Folic acid and it appears that a person would get more of it from the bread in a peanut butter sandwich than from the peanut butter. Considering the amount of money the peanut council is giving them I guess you can't blame them however misguided it appears. I do agree with you that they should place a clear and visible warning about the possible risks to children with a family history of food allergies. It's really not a lot to ask considering the risks involved. I'll be sure to send a letter out ASAP.
Thanks again
Sent my letter out today with the following modificatino to the last two paragraphs:
I am now burdened with the fact that my seven month old son is most likely deathly allergic to peanuts because I consumed peanut butter while pregnant and breastfeeding. I am horrified and saddened that the March of Dimes, an organization long respected in this country as supportive of women and babies, could be so apparently easily swayed to dismiss the medical evidence that the consumption of peanut butter and peanuts while pregnant and lactating can lead to the formation of life-threatening reactions in children
Rosemary N.
Just finished firing off my letter. I used the model as a guide but added my own 2 cents. Hope it wakes somebody up! My parents will also send a letter next week.
Here is the gist of what I wrote:
As the parent of a child who recently had an anaphylactic reaction to peanuts, I am surprised and disappointed that the March of Dimes would encourage pregnant and lactating woment to consume folic acid by eating peanuts. There is significant research that suggests that eating peanuts while breastfeeding and during pregnancy increases the risk that a child wll become sensitive to peanuts.
It is really frightening that you even list peanuts as a source of folic acid when there are much better sources of the vitamin. $2.5 million from the National Peanut Board must have played a part in this disturbing endorsement of peanuts!
My 2 1/2 year old went into anaphylactic shock two weeks ago due to contact with peanuts. We had no idea she was allergic. This is a life-long deadly allergy. If I had only known not to eat peanuts while pregnant and breastfeeding (for 11 months) this may never have happened. You cannot begin to know the guilt I feel. I have a one year old that I pray every day will not have the same problem.
The March of Dimes has always been supportive of women and babies. I cannot believe that you are overlooking this serious and deadly allergy and are promoting the consumption of peanut/peanut products. It is irresponsible. I will no longer support the March of Dimes and will actively discourage my family and friends from doing so.
That's that. I feel so much better now (NOT)!
Maria
Thanks to all of you that have written to the March of Dimes regarding its campaign with the National PN Board to promote PNs as a source of folic acid. FAAN reports in the latest issue of the Food Allergy News that the MoD "will now be providing information about PN allergy in their campaign materials." I will attempt to obtain copies of these materials and will let everyone know what they consist of. I hope to be back in touch soon. In the meantime, please keep those letters coming--until we know exactly what is being distributed, we need to keep the pressure on. Also, I think the MoD needs to know how serious a mistake it has made here. Thanks again for your help!
[This message has been edited by Colleen's Mom (edited August 06, 2001).]
[This message has been edited by Colleen's Mom (edited August 06, 2001).]
Well, I received a letter yesterday from Dr. Donald Mattison, Medical Director of the March of Dimes, in response to my letter.
Did any of you who wrote letters get a response as well? In brief, their 'joint brochures' with the National Peanut Board will now state: "Any woman with a family history of nut allergies should avoid eating peanuts or peanut products at all times, not just while pregnant or breastfeeding" !!!!!
Well, obviously they missed the entire point!!
I emailed them back stating that they had made a mistake, missed the point, etc. That I myself have cat/dog allergies, but no nut allergies. on and on......
But haven't heard from them yet.....
They've got those blinders on, haven't they?
Astrid,
Mom in Reston, VA
Astrid,
I was afraid that this kind of thing would happen. That is why we need the letters to keep coming despite the announcement in the FAAN newsletter. By the way, although it has been several weeks since my last letter to the MoD, I have not received the courtesy of a reply. I think I will place some phone calls today and see what I can get out of them. I'll let you know.
[This message has been edited by Colleen's Mom (edited August 16, 2001).]
Here's my shot at it. Let's not give up.
Annette
Submitted to their MOD website:
I have been reading the discussion on peanutallergy.com about your campaign to promote peanuts as a source of folic acid. I appreciate your responsiveness to our concerns. Please consider this: I have very minor food allergies, and moderate pollen allergies. We have no history of peanut allergies on either side of our families. Because I suffered from preclampsia with my first child, I attempted to increase my proteins during my second pregnancy with peanut products. I now have the most beautiful little boy who has a severe peanut allergy. Can I be certain that it was because I consumed peanuts during pregnancy or breast-feeding? No, but I suspect it, especially with the new information that says that peanut proteins cross the placental barrier (I have website sources if you need them). I beg of you, until we have further information, please do not promote peanuts as a source of folic acid. Our family suffers daily from the fear that a teacher at preschool will inadvertantly give Chase some food with peanut products in it, or that we will slip and do so. He has been hospitalized twice because of this very thing, and every time he is exposed to peanuts it gets worse. I don't want other families to go through this. So I, along with the other peanutallergy.com parents, are requesting that you hold off on this campaign until there has been further research. Please do this in honor of Chase and the other children who must now alter their lifestyles. It's no fun for a nearly-five-year-old to wear a medic alert bracelet and see other kids eating "normal" snacks, or being rushed to the hospital because you can barely breathe.
Thank you for your time,
Annette Hampton
Here is the response I received. But I'm not done yet.
August 28, 2001
Annette Hampton
430 Mason Road
Hazel Green, AL 35750
Dear Ms. Hampton:
Thank you for contacting the March of Dimes and you concern about peanut allergies. Attached below you will find information provided by the March of Dimes in reference to your concern.
The mission of the March of Dimes Birth Defects Foundation is to improve the health of babies by preventing birth defects and infant mortality. We support this goal through community services, advocacy, research and education. Our campaigns are rooted in the belief that the best way to prevent birth defects is to utilize knowledge gained from research to promote healthy pregnancies and healthy babies.
The March of Dimes Resource Center provides general information on pre-pregnancy and pregnancy related questions, birth defects, genetics, drug use and environmental hazards during pregnancy, and other related topics. The March of Dimes Resource Center does not provide medical advice or medical diagnoses. All medical questions should be directed to your medical provider.
Again, I hope you find this information helpful. If you have additional questions or materials requests, please contact the March of Dimes Resource Center at (888) 663-4637 or e-mail at [url="http://www.resourcecenter@modimes.org"]www.resourcecenter@modimes.org[/url] .
Sincerely,
March of Dimes Resource Center
Next response to MOD, there response to my first email is at the end:
OK, it's like this. Someone out there is going to think that they should increase their peanut intake during pregnancy because the March of Dimes has this neat web page that says it's good for them. Nice that you have the little disclaimer that protects you legally. Something is going on that is causing an increase in the occurrence of peanut allergies, and at this point, it looks like may just be from an increase in the intake of peanuts during pregnancy. If that turns out to be true, I can just SEE what kind of heyday 20/20 or some other program is going to have with you, since you are an organization that is supposed to prevent birth defects, and in this case you are DIRECTLY influencing the health of children in a negative way. When that happens, it's really going to hit you in the pocketbook. Suit yourselves. Go ahead, ignore our heed. We'll sit back and watch. We care about being responsible to society and our future generations. I know I would NOT publish a web site like you are doing without doing my home work first.
Annette Hampton
August 28, 2001
Dear Ms. Hampton:
Thank you for contacting the March of Dimes and you concern about peanut allergies. Attached below you will find information provided by the March of Dimes in reference to your concern.
The mission of the March of Dimes Birth Defects Foundation is to improve the health of babies by preventing birth defects and infant mortality. We support this goal through community services, advocacy, research and education. Our campaigns are rooted in the belief that the best way to prevent birth defects is to utilize knowledge gained from research to promote healthy pregnancies and healthy babies.
The March of Dimes Resource Center provides general information on pre-pregnancy and pregnancy related questions, birth defects, genetics, drug use and environmental hazards during pregnancy, and other related topics. The March of Dimes Resource Center does not provide medical advice or medical diagnoses. All medical questions should be directed to your medical provider.
Again, I hope you find this information helpful. If you have additional questions or materials requests, please contact the March of Dimes Resource Center at (888) 663-4637 or e-mail at [url="http://www.resourcecenter@modimes.org"]www.resourcecenter@modimes.org[/url] .
Sincerely,
March of Dimes Resource Center
Dear Annette,
I have received similar nonresponsive letters from the MoD. It is very frustrating! Copies of my latest correspondence follow. Although it has been several weeks since I sent these letters, I have yet to receive a reply. I guess that the person with whom I have been corresponding was on vacation. If I do not hear from her by next week, I'll start calling her and /or her supervisors.
Dear Ms. Harwood,
Thank you for your response to my email letter of June 28 regarding the March of Dimes/National Peanut Board Folic Acid Campaign. While I appreciate the quick turnaround, I am disappointed that you failed to address the two most pressing issues raised in my letter, namely:
This is more than unresponsive, now! My email bounced. The email address they gave me was bogus! Good grief!
Annette
Annette,
Why don't you call them and let them know. Their number is 1-888-MODIMES (663-4637).
I was wondering weather FAAN is satisfied with what minor warning the MoD is providing. And if they are, what exactly is their justification for this?
The reason I ask is that a while back another poster came across some rather unsavoury information about National Peanut Board Funding and FAAN. It was suggested that FAAN received this so called research funding with the objective being that they would conclude that removing peanuts from the classroom created a false sense of security, blah, blah, blah! If one were to take this information as accurate, it's not too difficult to figure out why FAAN would be happy with the disclaimer posted on the MoD site, both are receiving funding by the National Peanut Board.
Now this is not meant as a bashing of FAAN but it does beg the question. I'm not even sure how this all worked out when it was being discussed here. I'll see if I can locate the information and will bring it back up.
For myself I find this to be a tragic situation. How in the world can an organization such as the MoD which prides itself of helping women and babies and helps prevent birth defects, knowingly be responsible for exposing unborn children to a potentially life long and life threatning allergy? I think it is a question of ethics here and we can see that the funding is more important then protecting children! For shame!
Katiee (Wade's mom)
Here is the latest from the March of Dimes and my reply:
Thanks, Catherine -- have been more out of the office than in. The revised materials are in production and not available yet, but you are on the list to get a copy when they are!
All best regards,
Stephanie
Dear Ms. Harwood,
Do the revised materials contain the American Academy of Pediatrics recommendations, as reported by FAAN?
Sincerely,
Catherine M. Tretheway
[This message has been edited by Colleen's Mom (edited August 31, 2001).]
Here is my latest email to the March of Dimes:
Dear Ms. Harwood,
Again, I would like to know whether the revised materials to which you refer in your last email contain the American Academy of Pediatrics recommendations that "peanut products be excluded from the diets of nursing women who have a family history of allergy" and that parents "delay introduction of peanut products to their children until after age three," as reported by FAAN? If not, what type of warnings will be included in the revised literature? I look forward to your response.
Sincerely,
Catherine M. Tretheway
Here is my latest email to the March of Dimes. I'll let you know when I get a reply:
Dear Ms. Harwood,
It has been nearly one month since you advised me that the revisions to the folic acid campaign materials were in the "clearance process." What is the current status of these materials and when can I expect to receive a copy? My fax number is xxxxxxxxxx.
Thank you for your assistance.
Sincerely,
Catherine M. Tretheway
Here is the March of Dimes' response. Same old song and dance! Maybe some additional calls, letters or emails from concerned parents could help speed things up. You can email the March of Dimes at [url="http://www.modimes.org/About2/contact/contact.cfm."]http://www.modimes.org/About2/contact/contact.cfm.[/url] Their mailing address is 1275 Mamaroneck Avenue White Plains, NY 10605. You can call them at 1-888-MODIMES (663-4637). Thanks for your help!
Thank you for your ongoing interest; the materials have not yet been released to print but I am happy to send you a copy as soon as they are available.
Best regards,
Stephanie
Here is what I wrote:
Dear Ms. Harwood,
Please forgive my impatience, but this matter has been ongoing since May. I shudder to think how many mothers have inadvertently sensitized their babies to peanuts by following the advice given in the current campaign materials. When does the March of Dimes intend to release the revised materials?
Sincerely,
Catherine M. Tretheway
This is the March of Dimes' reply:
Thank you so much for your continued interest and I appreciate your understanding. We are all working back toward some sort of normalcy, grateful that our staffs in New York and Washington DC have all been accounted for, yet grieving over losses from World Trade Center companies and the airlines who have been our supporters. The current campaign materials were voluntarily pulled by the National Peanut Board, and they, and we, are in the final stages of finalizing the content of the new materials, working with FAAN. I will be happy to update you on the delivery as soon as possible.
Many thanks,
Stephanie
GOOD NEWS!!! After a year of protesting against the March of Dimes/National Peanut Board campaign to promote peanuts as a source of folic acid, I finally received a revised campaign brochure in the mail yesterday. The brochure now characterizes peanuts as a "good" source of folate rather than a "rich" or "excellent" one and includes the following footnote (in very tiny print):
"Infants born into families with histories of allergies are considered at higher risk for developing allergies. The American Academy of Pediatrics recommends that women with a family history of allergies, especially nut allergies, should consider excluding peanut products during pregnancy. Mothers with these family histories should eliminate peanuts and tree nuts from their diets while breastfeeding. Significant dietary changes should first be discussed with their health care providers".
The same warning also now appears on the National PN Board web site at the following address: [url="http://www.nationalpeanutboard.com/health/folate.html."]http://www.nationalpeanutboard.com/health/folate.html.[/url] I assume that the warning will be incorporated into other campaign
literature as well, but will check with the March of Dimes to see if I
am correct
While I am grateful that the March of Dimes/National Peanut board finally made these revisions to the brochure, I really wish that the allergy warning was printed in larger type and that it included the fact that the father's family history also needs to be taken into consideration when assessing the child's risk for developing food allergies. However, I realize that short of an agreement to end the campaign altogether, this is probably the best that we are going to get.
A big "Thank You" to everyone who wrote letters to the March of Dimes and made this happen.
[This message has been edited by Colleen's Mom (edited May 21, 2002).]
[This message has been edited by Colleen's Mom (edited May 22, 2002).]
YEA! I do believe there is a good chance that my constant consumption of peanut butter during pregnancy and breastfeeding caused my son to become PA (I didn't know, no one told me not to!) and it made me sick to my stomach to see those ads. I am very proud to be part of a group that helped make this change come about!
Bravo!!!
Kudos to you!
Peanut-Free/Nut-Free Directory
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[This message has been edited by margaret (edited July 19, 2001).]