How do I get my 13 year old to take her new PA seriously?
My 13 year old was diagnosed 1 year ago with PA. She has had between 8 and 10 severe anaphalaxis episodes in the past year which typically involve diarrhea and/or vomiting, swollen lips/tongue, swollen hands/feet, and hives. The last 2 have also included swelling of her ears and her voice has also sounded different. Luckily she has had no difficulty with her airway. The problem we are having is that she isn't taking it seriously. Rarely remembers to take her epi-pen and continues to eat chocolate and ice cream (despite the fact that many of her reactions have been after having ice cream). I am so frustrated and scared. I am also financially getting exhausted. Her last reaction happened on vacation (she ate Dippin Dots at an amusement park when we weren't around) so now I will have to pay an ambulance fee and another emergency room visit. I have considered having her pay for a portion but decided against that because I don't want to take a chance that she will ever delay reporting a reaction for fear of having to pay for the treatment. I would love suggestions from anyone who has gone through this. I think if she had been diagnosed younger it would've been so much easier to teach her to respect the PA. One thing we have done is just recently purchased an ice cream maker so we can start making ice cream for her at home. HELP!!
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