confused

I'm trying to learn all I can since my 18mnth old was just diagnosed with a cat. 4 peanut allergy last month.

Few questions if anyone could help:

-Is it ok for him to eat peas, beans, and other legumes?

-Is a legume allergy something that kids with PA are usually allergic to also? (He has an appt next month with a pediatric allergist that said they would check for more things. Just wondering if I should wait until then.)

-Should he stay away from things with sunflower oil?The other treenuts on his bloodwork were 0. So the only thing was PA. I was told to watch treenuts also because he could become allergic to them as well.

-What if it says soy or soybeans? Even if it just says "may contain soy"?

-What test is best to check for multiple things?

Sorry for all the questions!! Our life has been completely turned upside down, as you all have already experienced.

By ldwells62 on Tue, 09-03-13, 11:41

Our pediatric allergist recommends avoiding garbanzo beans and lentils because they are very closely related to peanuts.

The blood test will only tell you about allergens that have been exposed to the blood, (food that your child has previously eaten) meaning that if your child has never consumed a particular nut/food, the blood will NOT react to testing.

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By mysweetpeanutallergybaby on Tue, 08-13-13, 13:37

Thanks so much to everyone for the info. It sure helps a lot!! It seems like I have read about staying away from generic store brands..... is that true?

By LSUTigger on Mon, 08-12-13, 23:34

Interesting I keep reading where everyone is still giving Benadryl as our Allergist is now recommending Zyrtec as he says it stays in the child's system longer and giving Benadryl is the old way to treat.

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By Hsmith6165 on Tue, 08-13-13, 15:23

We give both. Our daughter is on a daily dose of Zyrtec, as her enviromental allergies are terrible. We also give benadryl if she has a reaction. It is a fast acting medicine where as the Zyrtec does stay in the system longer. We also had the UKnow peanut test done for her. She tested positive to 3 out of 4 proteins that cause the severe reactions. We never leave the house without 2 epi pens and benadryl.

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By LSUTigger on Mon, 08-12-13, 23:29

Ask your doctor about the UKnow peanut test. It gives you more defined idea of how strong the child's response will be to peanuts. It tests for a reaction to all 6 proteins in the peanut. 4 out of 6 are the ones that typically cause anaphylaxis. Our daughter was off of the chart with all. It gives more defined information than the typical blood test. At first I thought it was hokey since we had already completed a regular skin and blood test. We knew out daughter was allergic. This test tells just how allergic as our doctor mentioned. Whether you will need to hit the panic button because you forgot the epi pens or not. Now I a fan of the test.

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By pgalx3 on Mon, 08-12-13, 21:57

I agree with comment about requesting a blood test rather than the skin test. Especially for a child that young. They can test for lots of different things with just the one blood sample. Ask for all the common allergens. We waited until my daughter was older before getting the skin test to see if she had grown out of any of her allergies.

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By pgalx3 on Mon, 08-12-13, 21:52

My mother, nephew, and 7 yr old daughter are all allergic to peanuts. We have lots of other severe food allergies in our family as well, including tree nuts and even certain vegetables. It's manageable. We eat well even when we all get together and the list of forbidden food options is quite long! It's scary at first, but things will get better.
I don't know anyone with a nut allergy who can't eat peas or beans. I am sure there are people with this problem, but the PA people I know are fine with them. Read labels and stay away from anything with any kind of nuts until you have the chance to meet with your allergist. He/she will be able to answer questions and give good advice. Deli and bakery items do not have the same labeling laws. They are higher risk. We stay away from those and make our own. Keep your home nut free.
You might consider talking with friends/caregivers about how to keep your son safe from any peanut products via toys. Young children often put toys in their mouths. If one has been eating peanut products, puts a toy in his mouth and your child picks it up, there is a potential for a reaction.
Outside of that, just make sure you know the symptoms of an allergic reaction, and make sure you always have children's Benadryl with you. Call and ask the pediatric allergist nurse what dosage to give in case of a peanut exposure prior to your appointment. Call and ask your pediatrician for an EPI-Pen if you don't have one. You should not have to wait to see the allergist for that. My 7 yr old has only had one reaction since her initial one when she was 3. She goes to school and friends houses, and has pretty normal life. I have to advocate for her and teach parents and teachers all the time, but it's manageable.

good luck!

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By mom1995 on Mon, 08-12-13, 21:48

Have them take blood and test his blood. One, they can test for nearly anything, two it is less stressful on the child, and they can quantify better. You will get more detailed results

As for many of other questions the hardest part is there really are no two kids exactly alike. So I could tell you all day long about my child and her list of allegyns but at the end of the day it's not your son.

If you're appointment is within the next say 30 days then just read about everything you think of and start a list of the things you want him tested for as well as your questions. Go to the appointment as prepared as you can.

My daughter was about the same age when we learned she should not eat peanuts. We learned the worse possible way..... She nearly died that day. She was not tested until age 5 and we did a skin test, we were nearly in the emergency room for that too. She was tested again after puberty and this time we did the blood test. She did not test positive for soy but in this last year we learned she has an intolerance for it. No reaction but her body can not process it.

So you see there are so many variables.

Keep asking and keep your head up. This is really not the end of the world it just makes it a bit more of an adventure.

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By Hsmith6165 on Mon, 08-12-13, 17:13

I have 2 PA children. Both tested negative to soy and have no reactions to it. Have your allergist test for the main allergens: Milk, soy, wheat, egg, peanut (you've already tested positive). We also had our daughter do a peanut component test, which breaks down the proteins in the peanut to tell you if the child is allergic to the proteins linked to severe reactions. Insurance doesn't pay and it was 300.00. But now we know she is at risk for severe reactions. Also, the FDA requires any foods with peanuts in them to be listed as an allergen (per my Allergist). With french fries being a favorite for many kids, don't forget to ask if they were cooked in peanut oil, as we have also made the decision to avoid this. It's a life changing event but does get better with time. Still doesn't take the fear away, but the anxiety goes a little more each day. Stick to chain restaurants too. We love the Olive Garden b/c they have allergen menus and have always been very cautious when we tell them of the kids allergies. Hope this helps. :)

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By Buzzyfoo on Mon, 08-12-13, 02:39

Hey. My 18month old PA son has had peas since he was 8 months old with no issues, as for other beans I don't believe I have given him any other than green beans. I would definitely hold off giving him anything new until you see the allergist if it is a concern for you. At this point its not worth the stress on you. you have enough on your plate. I believe I am going through the same as you and have over a month until we see the allergist. His one time and only exposure was the worst day of my life. To see 4 doctors and nurses pinning him down to administer epi and IV's without even knowing his name was just awful!

The reason my Dr. Told me to stay away from tree nuts wasn't because she was afraid he was allergic to them as well, she stated most tree nuts are processed in the same manufacturing plants as peanuts and they can easily cause cross contamination. It's not worth the risk. I have been writing down all my questions to take with me to the allergist so I don't forget anything.

Good website I found for snacks http://snacksafely.com/safe-snack-guide/

Good luck and I hope your little one is doing better!

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