I need help

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MFA Mom's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 08/31/2007

Okay, I had a very rough week at school....even rougher today when I went to pick up my 504 letter from the doctor.

When I first approached our doctor about 504 plans over a year ago, he knew very little about them. I told him I was seeking one and asked if he could do a letter. He asked me to write the letter and he would sign it.
I spent a lot of time researching the elements of a good 504 eligibity request. I spent a lot of time writing a good letter after reading many samples posted here, from FAAN literature, etc. I quoted and cited the source for anything I copied from FAAN, OCR etc. If I used phrases from one of your samples, I changed it enough so I wasn't copying it directly. I also spent time with the Special Services lady trying to see what she felt was important to include. I took advice from so many of you.
Today, I picked it up and it says:

I have been xx's allergist since 2001. In addition to chronic asthma, he has a clinical history of a life threatening reaction to peanuts and tree nuts at age 4. because of his concurrent asthma, he would be at a greater risk for a fatal food induced allergic reaction.
Because of the degree of xx's food allergy, it would appear that section 504 would safeguard him. This would create a more secure school environment and allow xx to participate in all school functions in and out of the classroom. Thank you.

When I picked it up and read it, I was literally ready to spit nails. The nurse previously asked me where the info came from, I told her that I used formats, examples, samples from FAAN, pa.com etc.
Today, the secretary/nurse said doc was afraid of being sued and using someone else's letter. (I even gave them a disk so that it could be edited easily).
I was like WHAT??? I cited sources in the letter the rest was changed around to not be copied word for word.
I started crying. I started yelling at the nurse because I need this to be right. I need the letter to say what I wrote. (I love our allergist. Love two of three of his nurses. this nurse I cannot stand) I completely lost it. (today no patients are in the office, just me and her).

So now, I am recomposed I don't know what to do. DH says, write the letter stating the other stuff, sign our names and proceed. You have the documentation from the dr about the severity and history.

What should I do? I cannot go into this and fall on my face.
BTW, the allergy letter finally went out today, the 4th day of school.
PTO meeting principal had a perfect teaching moment for PA...he chickened out and didn't address ?? about peanuts in classrooms.
The kids have eaten lunch in their classroom since day one. Every day at least 2 kids with PBJ. I'm a complete wreck. My good friend basically cut me off today because she's had it with hearing about it. i was devastated. I feel like my friends who get it, still can't get it that I'm so uptight about school.

Momcat's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 03/15/2005

I think you should talk to the doctor yourself and explain why you need him to verify certain things in his letter such as what body systems are affected by an allergic reaction and how the need to manage a life-threatening food allergy substantially limits a child's ability to care for himself. You need verification from the doctor that your child's condition fits the definition of a disability under Section 504. Maybe he can write his own letter that will fulfill those requirements.

He should remove the "it would appear" part. Instead, he should state that your child's medical condition is a disability under the meaning of Section 504.

The part about the chronic asthma increasing the risk of a fatal reaction is good.

Go with your instincts and get him to fix the letter, but don't go through the nurse. Talk to the doctor directly.

Cathy

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Corvallis Mom's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 05/22/2001

You've got mail. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

mommyofmatt's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 03/12/2004

hmmmm. I don't get the fear of being sued. I think he may be more afraid of sticking his neck out too far in terms of saying your son needs a 504...If he's stating pertinent medical facts about your son, he's doing his job as an allergist. I would try to meet with him too for a consultation to understand his hesitation more. What if he stated all the medical facts using the right language (caring for theselves, breathing) without saying he needs a 504 specifically? Good luck! Meg

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***[b] ALLERGY ELIMINATOR*** [/b]

Meg, mom to
Matt 3 yrs. PA,MA,EA
Sean 3 yrs. NKA

__________________

***[b] ALLERGY ELIMINATOR*** [/b]

Meg, mom to
Matt 3 yrs. PA,MA,EA
Sean 3 yrs. NKA

TwokidsNJ's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 05/28/2005

Hi -
is this who I think?
I'm not sure how the letter compared to yours -- it seems OK just a little brief. I'd love to see the better version.

Did you have the meeting yet?

MFA Mom's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 08/31/2007

I think that his worry is that he doesn't know that much about the function of 504 plans. I think he's afraid of being quizzed or asked a question that he "should" know if he wrote the letter.
The letter is not crazy complicated or over the top in any form. It has the following main components:
1) description of the allergy & history of my son's reaction.
2. description of anaphylaxis
3. The 504 code quoted from Faan and how it is hidden disability etc. and info from OCR about how schools have to accommodate them.
4. Says how ana. would affect ds's life function of breathing and how chronic asthma could put him at higher risk of ana.
5. it says there is no cure for food allergies etc.

At this point, I don't see that there will be time to meet with him and get the letter revised and approved by him. My meeting is Tues. am.

I am going to basically write the other stuff and sign my name and see if they will accept it..

mom135's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 08/24/2007

First, I'm going to address the part about your friend not understanding. When I was going through my toughest fight with my school system, I learned early on that no one outside of the PA community was going to fully understand my situation. So I kept everything to myself, unless they asked, then I would give them a brief summary and move on. I only spoke openly to other PA parents or used this website.

About doctors, I ran my school situation past two of them this summer, and while they are great at diagnosing allergies and giving us all of the info for the actual allergy, I feel like once I leave the office, I'm on my own. I haven't gone for a 504, but I can imagine that getting the allergist involved outside of the office may be a problem.

Isn't is interesting how we all have so many of the same problems, no matter where we live?

mommyofmatt's picture
User offline. Last seen 3 years 17 weeks ago. Offline
Joined: 03/12/2004

What if you asked him to write the letter just leaving out the 504 stuff, but all the other wording he should be comfortable with right? It's my understanding that if the allergist's description of medical history matches the qualifications for 504, then that should be good.

I think his letter would carry more weight than one from you even if he doesn't mention 504 but expands upon your ds' medical situation. If you call him first thing Monday, you should know whether you could have a revised letter by your meeting.

Hang in there...I can imagine your stress with eating pb&j in class. Meg

__________________

***[b] ALLERGY ELIMINATOR*** [/b]

Meg, mom to
Matt 3 yrs. PA,MA,EA
Sean 3 yrs. NKA

__________________

***[b] ALLERGY ELIMINATOR*** [/b]

Meg, mom to
Matt 3 yrs. PA,MA,EA
Sean 3 yrs. NKA

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