Friend is dealing with soy allergy - any advice?

3 replies [Last post]
robyn's picture
User offline. Last seen 35 weeks 4 days ago. Offline
Joined: 07/15/2008

Anyone out there dealing with soy? My friend's son was just diagnosed and I'm trying to help her find some safe products for her son to eat, as well as places to shop. Any advice? Thanks!

__________________

-Robyn
Mom to 6 yr PA/TNA son
www.peanutallergykid.com

__________________

-Robyn
Mom to 6 yr PA/TNA son
www.peanutallergykid.com

Heidi52974's picture
User offline. Last seen 3 years 16 weeks ago. Offline
Joined: 06/02/2008

Soy is really hard. You just have to get used to making things from scratch really. I did finally find a bread I can buy for him - Arnold Dutch Country 100% whole wheat. It says on the allergen statement that it has a trivial amount of soy flour, so I tried it and he had no reaction. He's been eating it for about 6 months now with no problems. He also has no problem with Goldfish crackers even though they say canola and/or soybean oil on the label. Since soy isn't a life-threatening allergy, it's easier to try things like that and figure out what he can get away with.

jbillinois's picture
User offline. Last seen 3 years 6 weeks ago. Offline
Joined: 02/26/2006

I disagree with the Heidi's comment that soy isn't life threatening. I wish that were true, but I can tell you from experience (and multiple trips to the ER with anaphylaxis) that it IS a life threatening allergy. I developed my allergy in my early 20's. My first reactions were what I considered to be mild, hives on various parts of my body. As long as I could cover them up, it really didn't seem to be that big of a deal, and they eventually went away. That lasted until my first run-in with anaphylaxis, after eating a bagel. I was driving to work when it happened, and I had absolutely no idea what to do. That's when I finally went to a specialist and got tested.

It has been a definite learning experience. I have learned to read every label every time (and can someone explain why soy protein would be in fruit juice or ice cream?), and I have a printed card that I give to the wait staff every time we go out to eat (which is not often). It is hard to go to a restaurant and find out that the only thing I can safely eat is a bowl of lettuce with salt & pepper, while everyone else is having steak. And I can't remember the last time I ate dessert at a restaurant. But, it has been over 3 years since my last trip to the ER, which makes it worth it.

HookwormIsHope's picture
User offline. Last seen 27 weeks 5 days ago. Offline
Joined: 10/13/2010

Actually it depends whether it's life-threatening. There are many different people with different levels of severity and different levels of how much an allergy will be outgrown over time. I'm allergic to soy, but, however, every time I'm exposed it gets less threatening and will eventually fade away completely. I'm also allergic to peanuts; however, with each exposure, (thus reaction) it becomes more deadly and more quick to suffocate me. It continually gets more severe. With soy, most people will eventually grow out of it, but that does not mean you don't have to be cautious. For the first few years, it was difficult for me to eat anything new, cause everything had soy in it. I'm not sure how much help I can be of now, since I've partially outgrown it, I can't really give efficient and safe advice. I think it's just something that's different for everyone and needs to be figured out individually...Sorry! =(

__________________

Samm
Peanuts, Soy, Peas, asthma allergies

__________________

Samm
Peanuts, Soy, Peas, asthma allergies

Peanut Free and Nut Free Directory

Peanut-Free/Nut-Free Directory

Our directory is intended as a resource for people with peanut and nut allergies. It contains foods, helpful products, and much more.

Sponsored Links

Support Groups

SupportGroups.com

For individuals, friends and families who want to connect during life's challenging times. Share personal experiences, evaluate information and get support during times of need, illness, treatment or recovery.

disclaimer

The information provided on PeanutAllergy.com is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her health professional. This information is solely for informational and educational purposes and we encourage all visitors to see a licensed physician if they believe that they have a peanut allergy. The publication of this information does not constitute the practice of medicine, and this information does not replace the advice of your physician or other health care provider. Neither the owners or employees of PeanutAllergy.com nor the author(s) of site content take responsibility for any possible consequences from any treatment, procedure, exercise, dietary modification, action or application of medication which results from reading this site. Always speak with your primary health care provider before engaging in any form of self treatment. Please see our Legal Statement for further information.

What Other People Are Saying

 

Subscribe to Our Newsletter

Join the Cause on Facebook

PeanutAllergy.com Social

Online Support Groups

visit SupportGroups.com

SupportGroups.com provides a support network for those facing problems with food allergies and many other life challenges. Click on the following links to get the support in a confidential, caring environment.

Online Support Groups

 
peanutti