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food allergy study at Children\'s Memorial in Chicago

13 replies [Last post]
By mistey on Fri, 10-14-05, 16:33

Anyone in this? Care to relate your experience?

We have an appointment in December.

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By EmilysMom on Fri, 10-14-05, 21:54

mistey,

Good luck. From reading melissa's posts with her experiences this type of research is a God send.

I replied to you in my topic regarding my daughter Emily. As you can see, we are in the beginning of our journey. If you ever need someone to chat with you can email me. My address is in my profile.

Wendi ---- Emily's Mom

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By starlight on Sat, 10-15-05, 02:07

Can you post more info about the study? What/how are they testing? I tried looking for info on the children's website but they only had an article and not what they're doing, and something about a cockroach allergy. Will they be using adults too? I know it's a weird question for a children's hospital but they were looking for adults for the cockroach one...

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By mistey on Thu, 10-20-05, 18:11

Thanks Wendi. I do read your story. I'm so glad that you post it.

And starlight- you are right. My husband and I are also in the study. From my understanding, they are looking at genetic components of children with FAs. My ds is allergic to gluten, dairy and of course peanuts. They will skin test my dh and I and do blood work looking at several different things.

It's a longitudinal study. They will contact us at least once a year every year for many, many years to come.

I so hope that if nothing else, they can make headway to see not only the causes or things that predispose children to allergies, but to find a cure for them. Of course, that is a prayer of all of us!

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By mistey on Wed, 12-07-05, 19:23

We had the study yesterday. The scratch test said that I was allergic to shellfish (which I have eaten all my life) and my husband came out positive to PEANUTS!! We're really not sure WHAT to think right now.

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By EmilysMom on Wed, 12-07-05, 21:21

Will they do RAST or more skin prick testing? What were the numbers? Do they plan on doing food challenges?

I wouldn't know what to think myself. What do the doctors say?

[This message has been edited by EmilysMom (edited December 07, 2005).]

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By DRobbins on Thu, 12-08-05, 00:21

Quote:Originally posted by mistey:
[b]We had the study yesterday. The scratch test said that I was allergic to shellfish (which I have eaten all my life) and my husband came out positive to PEANUTS!! We're really not sure WHAT to think right now.[/b]

Skin tests are notorious for false positives. (As blood tests are notorious for false negatives.) If it were me, I wouldn't do anything about it other than to be aware of the possibility of symptoms developing at some point, especially since you must carry an epipen for your child anyway, and you could use it on yourself in case of emergency. But that's me. Did the doctors give you any advice about how to handle the newfound info? Maybe they'd be a lot more cautious than I would! :-)

--Debbie

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By mistey on Thu, 12-08-05, 01:09

The researchers did not give numbers or classes. For the purposes of the study they only needed positive or negative skin test results (among other tests). When my husband looked like someone had punched him, the nurse said that he would probably want to see an allergist. I suppose that is what he will do.

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By CorinneM1 on Mon, 12-12-05, 19:13

Misty--

Can you tell me more about this? Are they still looking for research subjects? Is there a contact number? Did your dr. recommend you for the study?

We are in Chicago and I would like to find out more about what they are doing and their needs if any.

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By CorinneM1 on Sat, 02-18-06, 13:19

Quote:Originally posted by mistey:
[b]Anyone in this? Care to relate your experience?

We have an appointment in December.[/b]

Misty...Jen Castello called me yesterday. We will be doing this in Mid March. Thanks for posting the info here, otherwise I would have never heard about it.

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By mistey on Thu, 03-09-06, 19:58

Sorry I didn't get you the information- I didn't check back on my own post (BAD MISTEY!!) Anyway, I'm glad that you found the information and are going to participate!

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By CorinneM1 on Fri, 03-24-06, 19:55

Quote:Originally posted by mistey:
[b]Sorry I didn't get you the information- I didn't check back on my own post (BAD MISTEY!!) Anyway, I'm glad that you found the information and are going to participate![/b]

Not a problem whatsoever. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] We just did our testing today. It wasn't so bad. My son had a meltdown when he realized that he was getting blood work done, but quickly recovered when a goodie bag was presented to him.

I showed that I was not allergic to anything, my husband showed a slight allergy to mites and mold, and our son showed an allergy to peanuts only. We are actually looking forward to the next round as this was really a great experience and they were so professional and great.

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By CorinneM1 on Sat, 06-10-06, 00:08

Misty--

Did you see the article on this in Wed's Trib section? This is the study that your family and mine participated in:

[url="http://www.chicagotribune.com/features/health/chi-0606080218jun08,1,6462676.story"]http://www.chicagotribune.com/features/health/chi-0606080218jun08,1,6462676.story[/url]

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By mistey on Fri, 06-30-06, 03:02

No- I did not see it. Thanks for posting it!

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