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Financial Assistance for Low-Income People Dealing with PA

60 replies [Last post]
By on Wed, 03-28-01, 19:58

I did e-mail Chris to see if he thought this was a legitimate action, which he did.

I do need at least one person in the U.S. that would be willing to help me with this as I do not know the workings of the U.S. government.

First of all, I want to find out if there is any financial assistance available for people dealing with PA. I want to know, if there is money available, if it is State or Federal money in the U.S. or Provincial or Federal money in Canada.

Then, if we find out that there are NO monies available anywhere to assist low income people dealing with PA, I would then like to suggest to all of us on the board that we write to our own state, provincial and federal officials asking for financial assistance for low income individuals dealing with PA.

I do believe the whole board can take part in this action if it does come down to contacting government officials, regardless of your own personal income level. The reason I say this is based on my belief that other people could be like me. This week we addressed Kellogg's re their labeling practices, etc. Now, I, personally, do not have any problems with Kellogg's Canada and did have to ask why we were addressing them at all. I found out that in the U.S. Kellogg's is not labeling as well as they are here. Because I want PA people in the U.S. to feel as comfortable and safe with Kellogg's products as I do in Canada, I contacted Kellogg's, basically on behalf of U.S. PA sufferers.

So, even if you are in a high income bracket, hopefully you would still want to take some action in helping out people in lower income brackets to get some type of assistance re PA.

Now, if all of us look at this, we're probably thinking, what's the problem? I did receive an application from the Ontario government to apply for assistance. This is my "test" case. In going through the application, you do have to state how PA affects you financially. If you simply look at the additional costs incurred in buying name brand foods each week rather than no name, the dollars do actually add up. However, all of us manage to ensure that our children eat safely. That is not the point.
In Ontario, a parent of a child with club feet receives some additional funds per month to deal with this "disability". However, the costs incurred per month by this parent would be considerably less than they are with a PA parent.

If anyone feels uncomfortable posting in this thread, please feel free to contact me at my e-mail address.

This is just the beginning of what could be considered a large mission. I do need an American counterpart to help me out with this. If I could have a person from each and every State in the U.S. and each and every province in Canada, that would be great. It would save a LOT of work on behalf of both the Canadian representative and U.S. representative.

I hope everyone understands what I am trying to do.

Right now, I would simply appreciate any comments you have on this type of action.

Many thanks and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By jawar on Thu, 03-29-01, 19:36

Great idea!!

Everyone needs to get to thinking on this.

How wonderful it would be to get the states or the federal government to get something going with peanut allergies.

One person MIGHT make a difference, but it takes more than one to make a POSITIVE CHANGE.

I think it would be wonderful to get the govt. to support peanut allergies.

Anyone got anymore ideas?!

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By rebekahc on Fri, 03-30-01, 04:21

I would think that since PA falls under the ADA umbrella as far as education goes, it wouldn't be too big a leap to get "disability benefits" for it too. I do know that many people who already *should* qualify for disability get turned down leading to a booming business for disability lawyers if my TV and phone book are any kind of indicators.

Unfortunately, my opinion above is ALL my knowledge on the subject LOL!


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By momof4 on Fri, 03-30-01, 05:05

Just wanted to let you know the basics. If you are low income in the USA, you qualify for medical assistance, which would pay for all the epi-pens, doctors appointments, allergy testing, etc. The problem I am having is we are considered middle class, which there is no help for. The state of Florida has a health plan for kids without insurance, which we could qualify for. The problem is you can't have insurance and I am too scared to cancel mine to apply for that. It could take months to get it. Washington state has a Basic Health Plan, which middle class pays a minimal premium for and very small co-pays. I am going to call Social Security and see what it takes for disability for the food allergy to qualify for any benefits. I will let you know what I find out.

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By on Fri, 03-30-01, 05:18

I realized that I could at least post the information for any people who
would also like to see in the Province of Ontario if PA would be
considered a disability whereby we could receive some funds each month
if we met the low-income status. This is the "test" case application I
am doing.

To get an application you have to call your local Ministry of Community
and Social Services Office and ask for the forms pertaining to
Assistance for Children with Severe Disabilities. I know that that
sounds really strong and offputting, but it does include club feet as
one of the disabilities.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Mon, 08-06-01, 03:22

I recognize that this thread, in particular, may be slow moving because of the issue we're tackling and also because we're dealing with the government. However, at least it's still here.

I wanted to post that I did finally submit my application for Assistance for Severely Disabled Children form to the Ministry of Community and Social Services on behalf of Jesse with regard to his PA only.

I received the application back this week with a doctor's form to have completed indicating the type of special diet that he requires (why they couldn't have included this with the original application, I have no idea).

So, I am still slowly but surely working on this. What I would like to do, when my left arm has decided that it isn't numb and feels like typing better is type out the actual letter I received from them which outlines their requirements for application and the maximum amount of funds per month you can receive.

It would also appear, from the wording in it, that this is the type of application that you will submit and expect to have denied upon first application. The type that you appeal and appeal, as you do for similar other programs in this province nowadays such as the Ontario Disability Support Program. So, again, it will be a long drawn out thing, but I still believe that it is worth doing and it is worth posting here for anyone who does need the information and doesn't want to post that they need it.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By Rhonda RS on Mon, 08-06-01, 12:39

I know this is just a quick fix to the problem, but FAI recently donated $1,500 to Medic-Alert to purchase memberships for low-income families that have children with food allergy. The family should be able to get a bracelet through the school nurse. I just talked with Medic Alert and the free memberships are available through September 15, 2001. If you contact your State Commissioner of Education in your state, he or she can funnel the information down through the superintendents and then principals. Ask the Commissioner

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By on Mon, 08-06-01, 14:53

Rhonda RS, excellent information! I'm wondering if you should post it in a separate thread of it's own in case people aren't looking at this one, but would look at one about financial assistance re MedicAlert. Do you know what I mean?

A lot of people may not need assistance on a regular basis when it comes to PA, but when it comes to a one-off like MedicAlert, this could be something that more people are concerned about.

Excellent post!

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By Rhonda RS on Wed, 08-08-01, 13:50

Hi Cindy,
Do you mean start a new topic called "Free Medic Alert Bracelets"? In this forum

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By on Wed, 08-08-01, 20:37

Rhonda RS, I would basically copy EXACTLY what you posted above and start a separate thread with whichever title you choose. Because of the importance of the information you have, which I felt might get lost in this thread, I think (and this is only my opinion) that it should go under the Main Discussion Board.

A lot of people mostly check Main Discussion Board and then they wander to other places if they feel the need, such as Schools, Take Action, or a lot of things do go under Living with PA. But this type of information, I don't think it would be mis-placed under the Main Discussion part of the board.

Often times, if I have information that I don't want to get missed, I'll post it under what it may be most appropriate to (i.e., Schools) and then use the same title and direct people to the thread either under Main Discussion or whatever other heading seems good.

Again, it is excellent information and I do believe it warrants Main Discussion Board space. I know a lot of people aren't visiting Take Action right now, and certainly not this thread, so otherwise you've posted GREAT information that, in all likelihood, would get missed.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Sun, 01-06-02, 20:21

I haven't forgotten about this one since my last post. The last time I posted, I had received a form to be filled out by Jesse's doctor for the ACSD program in Ontario. As of the time I moved November 1st, I still had not heard anything back from them.

I have a change-of-address form in with the post office so if they had sent me anything, I would have received it. However, I still haven't heard anything. So, on Thursday, I placed a call and left a message. I haven't heard back yet.

Since I have moved to a totally different municipality and these things are handled municipally now, I understand that I will probably have to re-do the whole application where I now live. But I want an answer from where I originally started.

So, obviously, since they didn't call me back Thursday or Friday, it's on my list of telephone calls to make.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Sat, 02-02-02, 06:16

Still in the process of the ACSD application for Jesse. I called and told them that I had moved and they have now sent the application to the new municipality that I live in. This would be the Ministry of Community and Social Services in Ontario. So, we'll see what happens next and when, since the government actually seems to move slower than I do, which is pretty hard to do. [img]http://uumor.pair.com/nutalle2/peanutallergy/rolleyes.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By Connielynn on Sat, 03-23-02, 20:06

We just lost Kids Connection ( we live in NE.) because someone checked the saying that we don't have insurance. I will be fighting this. My DD is in the ER every 6-8 weeks due to reactions. The bill for the hospital and the ambulance is almost $800. We can not pay 20% of that.

On the flip side. SSI. My DS has heart problems and has never had SSI. The last letter of denial said " more than one year or could result in death". Now to me this should cover PA. We see the allergist on Monday, I will be talking to him.

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By on Sun, 03-24-02, 05:33

Connielynn, welcome! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img] Good luck with your endeavours with this one. Please keep us all posted because the work you're doing on behalf of your family helps countless others.

I do have other news regarding the ACSD application I filed on behalf of Jesse but I need the actual piece of paperwork beside me to copy the specific line that shows that, in effect, Jesse is not eligible. It does make sense when you read the one line.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Wed, 04-24-02, 19:19

As I mentioned in my earlier post, I had received a denial from The Ministry of Community and Social Services (Ontario), the Ontario Children with Severe Disabilities section for monies relating to Jesse's PA, even though when you do add up the costs, they can well, add up.

At any rate, here is part of their letter and it was fairly clear to me that I shouldn't pursue this by appealing or taking it to tribunal.

"In making this decision the committee recognized the need to ensure that Jesse does not have any foods containing peanuts or any peanut extract. However, the Regulations require the following criteria must be met:-

* The child must have a severe disability resulting in a significant functional loss of ability to perform daily activities.

It was the committee's decision that this criteria is not present in Jesse's situation."

That's completely true. However, where out there is there help for people of low-income with PA children? Food banks are rife with peanut butter and "may contain" products.

Well, I'll just keep plugging along somehow trying to get some further information and other avenue to try.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By Madison's Mom on Fri, 06-14-02, 03:29

I'm not sure what your situation is, but I'm thinking about looking into all of this. Since my child's PA is so severe, I am keeping her home from preschool with the thought of having to homeschool. Therefore, I am unable to hold a normal daytime job. If I were to hire someone to care for her everyday in our home, it would be extremely expensive, more so than a normal childcare setting. Maybe this kind of thing can be used in your situation. Since a child's daily functions and activities are revolved around going to school, learning, and playing, this would limit them. Does that not fit under that category? Maybe it would.

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By kajc on Thu, 06-27-02, 09:13

SSI benefits for children- Connielynn, I was wondering how many times your child was denied for SSI. After the 2nd denial you should get a lawyer and get a hearing with an administrative law judge. Also these lawyers don't get paid unless you win, so it's not expensive to do. Almost everyone is denied the first two times, no matter how sick you are. I applied for SSI for my daughter in Oct.2000 and she just now got approved. Food allergies were not the only thing that her disability was based on though, which is why she got approved. She also has ulcerative colitis, depression, ADHD, acid reflux, and asthma. So it was a combination of all of these things that produced a marked impairment in her ability to function as a normal child. If you or anyone else has questions about applying for SSI I'll be happy to answer them. -Kay

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By Leahtard on Fri, 06-28-02, 02:54

I am curious what is SSI???


Leah mom to Miah PA 2.5 with asthma, eczema

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By Madison's Mom on Sat, 06-29-02, 03:11

Kajc - How do you begin? What's involved in the process? where should we start first?

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By MattsMom on Sun, 06-30-02, 23:16

very interested in this thread!! I have two kids with multiple food allergies, as well as enviro allergies and asthma. Matt is (of course) life-threateningly allergic to some, and his enviros are severe enough to require a dose 4x the normal, of daily antihistamine. Like I said, they both also have asthma, and they are both very, very short. Matt has a delayed bone age and is being evaluated for growth hormone deficiency. His endo now wants to see Meagan, too.

I'm not interested in SSI for any 'retribution' or what have you for their pain and suffering or yadda yadda. Only interested in SSI for one (or both??) because of our rising expenses and our NON-rising income. All the lotions, creams, supplements, special foods, special accomodations, etc are costing us more than $900 a year (I'm not sure just how much more, as I have only figured up the basics...haven't included things like special ice creams and chocolate, items that I have to buy name brand instead of generic, and the like). These are costs directly related to the kids' underlying health problems, but NOT including our co-pays for dr visits and prescriptions. We were on a tight budget before...it really is now. Any help we can get, at this point, will be welcomed.

I'm very interested in just how kajc stated her daughter's case, and the whole process of (finally!) getting approved. I'm glad you did!! =) It gives me a bit of hope that we *might* stand a chance. I'd be interested in talking more with you, kajc, if you wouldn't mind. My email is [email][email protected][/email] =)

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By kajc on Tue, 07-02-02, 08:07

Hi everyone, I'm sorry it took me so long to reply, I couldn't figure out which forum this was under! Anyway, SSI stands for social security disability. You start the application process by going to your local social security office and getting the paperwork to fill out. The application process is very long with a lot of forms to fill out. Also this kind of income is not for pain and suffering, it's for helping you take care of a disabled child, and the extra expense that comes with that. There is also an income limit on this, so if you make too much money you will not qualify to be on it. You should probably find out what it is for your your size of family before you apply. I had the help of a state worker through most of the early paperwork and denials, which was nice. About stating her case - I left that up to the medical records in the early stages, then in the final appeal in front of the judge it was my lawyers turn to take over. The lawyer requested a letter from a doctor who examined my daughter's mental state and he said that she should qualify because of her depression alone. This helped the case greatly. I must repeat that it was a combination of all of her health problems that helped her to qualify, the food allergies alone wouldn't have been enough. Sorry to be such a bummer, I just don't want anyone to get thier hopes up too high on this. -Kay

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By Connielynn on Fri, 07-12-02, 02:56

I'm back! I had forgotten this thread.

I picked up forms today for respite care, thru The Nebraska Respite Network. I can not take dd to a grocery store. Right now I can not get her to leave the house. I have the forms for respite care and for a grant to pay for the care.

I have not done anything with the SSI forms. We were on Medicare for a long time so I didn't get any bills from the doctors. I guess I need to dig out the insurance papers to see who paid for what. I will be needing to fill out SSI for all three of our kids. I found out last Friday that our youngest has a heart murmur. Our oldest has very serious heart problems. First heart surgery was at seven days. Our kids have been checked and checked, where this murmur came from who knows. But it is there I heard it. I may not be a doctor but I do know what a murmur sounds like.

When our oldest was in Omaha for a testing last month I grabbed a pamplet at Childrens about getting help to fill out paperwork. I will be following up on this next week when we get back from Kearney.


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By on Fri, 07-12-02, 03:26

Madison's Mom, since my *real* UserName blipped out, I haven't been being notified when someone responds in a thread that I've started so that's why it's taken me so long to respond to your post.

It is excellent! Although Jesse is able to function *normally*, there are many precautions that do have to be put into place to keep him that way at school and certainly in other places as well. I could use your post directly almost to challenge our denial.

I have passed the date of when I could ask for a review of their decision. What I think I'll do now though is simply start the process all over again. I don't mind. I just want an answer as to what can be done.

Many many thanks, and best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By kajc on Fri, 07-12-02, 07:28

Connie - It definately sounds like your kids should qualify for SSI. Both me and my daughter are on Medicare also because we are low income and have lots of medical problems. That doesn't count against you at all. The only thing that could hurt you is if you make too much money to qualify. Good luck! -Kay

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By Connielynn on Sun, 07-21-02, 22:21

I amstarting on the paperwork this week. We don't make too much money so that is not a problem.

Our youngest does have a heat murmur. I was hoping we just heard the murmur once and it would disapear! He should outgrow it by the time he is 12. But that still means 2 out of 3 kids of ours have heart problems. I think I deserve a break!


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By on Mon, 07-21-03, 06:19

Connielynn, came in to re-raise this for you, based on your thread under Living with PA, only to find that you have been quite active in this thread. Sorry.

What I'm wondering is if I placed this on the wrong part of the discussion board to start with. Perhaps I should have placed it under Main Discussion where it would have gotten more attention?

I still have not re-applied in my new district for the ACSD for Jesse, simply because I have other stuff going on in my life right now that seems more crucial (finding a home by the end of August would be the main thing [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img] ). I do know that I will eventually though.

And in Deb O's thread re the Disability Tax Credit, I did post information received this week with the Child Tax Benefit here in Canada that might be helpful to Canadian members.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Sat, 08-02-03, 19:29

Didn't need re-raising, but simply putting it on the Daily Topics for Jody2boys. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

The Take Action part of the board kinda did a big fizzle, didn't it? [img]http://uumor.pair.com/nutalle2/peanutallergy/frown.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Mon, 12-08-03, 21:43

Province of Ontario specific. If you are on Ontario Works', Ontario Disability Support Program, or a Senior Citizen that receives a monthly drug card, are covered under the Trillium Drug Benefits Plan (Ministry of Health run plan for people without drug benefits through their workplace) or simply not covered period, and anyone having a current Ontario Health Card:-

When you go to get an Epi-pen prescription you have to go to the pharmacy first and ask for a Special Authorization (Allergen) (SAA) form. The pharmacist will fill it out saying that you want an Epi-pen and for which patient and includes their Ontario Health Card number on the form.

You then take this form into the prescribing doctor, have him fill it out and also provide a prescription (this is a form in addition to the prescription) and then take it back to the pharmacy and your Epi-pen is covered under this form.

You can get ONE Epi-pen a month using an SAA.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Mon, 12-29-03, 05:30

Simply re-raising for JRMitchell (see Social Security Income Supplement thread under Legislation). For everyone that posted in this thread and myself included, we must all make her SICK as well. [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By solarflare on Tue, 01-20-04, 18:10

If you live in the US and have insurance through the workplace, but epi-pens are not covered under your perscription plan, call the insurance and check and see if they're covered as a self-injectible, like insulin. When we were on health net, it was covered as a self-injectible rather than under the RX plan, and as such, had no copay.

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By on Sat, 03-27-04, 03:38

This is something that I have been thinking about and not specifically PA related. It is antihistamine related. A lot of our children do take a daily antihistamine. Some even take it to reduce contact reactions because of PA. However, in all of the research I have done to-date, posted in this thread in particular, I have yet to find where a daily antihistamine is covered. Under my current drug plan, Trillium, antihistamines are not covered. The only time I can remember my antihistamines being covered was when I had coverage with Canada Post Corporation through my first husband (remembering that it is a Crown Corporation and has great dental and medical coverage).

The drug card that is issued to recipients of both Ontario Works (welfare) or the Ontario Disability Support Program also does not cover antihistamines. Antihistamines are simply not a drug that are covered by basic drug coverage.


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By MommaBear on Sun, 04-11-04, 13:25

reraising to compliment a thread (followup) in Main Discussion.

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By on Thu, 05-06-04, 03:58

Originally posted in ajinnj's thread running Off Topic about the Canadian health care system, but I felt appropriate for this thread because as parents of PA children we may need an ambulance and there may be some people posting or reading that this information could help:-

I just found out something new about our health care system in Ontario to-day. In January month I felt I had to call an ambulance for my daughter who I thought was having a FA reaction (turns out both children had Scarlet Fever).
I received the bill for $45.00 and it's been sitting here waiting for me to deal with it.
To-day, I received a notice about it, which is fine.

We don't have any coverage until the end of May month for anything except prescription drugs (through Trillium). In the notice though, it did say that if you were on Ontario Works (welfare) or Ontario Disability Support Program, you didn't have to pay the bill but simply call the accounting department of the hospital and give them your information. This was something I didn't know.

I'll also post this in the thread I have running under TAKE ACTION. No one here is going to come out and say if they are on welfare, but should someone happen to be, or should someone be reading, they'll at least have this information, because we all know that an ambulance is something that our PA child may need.

Me, I made arrangements to finally get that cheque written.

Best wishes!



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By Mama on Sun, 05-23-04, 02:30

We too are on the Trillium Drug Plan. When I sighned up for it, I thought epi pen was covered, and to my dismay I found out it's not. Also went to pick up Asthma meds. for my DS they were covered, but not the Singular pills. $65 for 30 Days worth. I almost passed out. Up until now we were always getting samples from our Allergist, I always thought they were cheap that's why she gave me so much always.
Now I have called the ped. to see if he could do a section 8 for Singular and Epi Pen. Does any one know if it will be covered in this way.
I have also tried to locate the Allergen form , someone mentioned before that entitles you to a epi-pen a month. No one seems to know about it or where to get one. I have asked at many drug stores and even the DR. HELP.

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By on Sun, 05-23-04, 03:40

Mama, you're in Ontario? And you're covered by the Trillium Drug Plan?

Okay, if so, we both have the same coverage.

Originally, you used to have to get a Section 8 filled out for an Epi-pen (actually, if you are on Ontario Works in this province and using an Ontario Drug Card, you may very well have to get a Section 8 because although Trillium and the Ontario Drug Card are both government run programs, they are different).

Now, what you have to ask for, Mama, is an SAA - Special Allergen something or other. Sorry. It should be in this thread somewhere.

Now, when I have actually asked the doctors at the walk-in clinic, they never know what the he** I'm talking about. Wait, yes, you can still do a Section 8, but it has to be with your family doctor (or another doctor that knows you well).

When asking about a Section 8, I was told that the doctors at the walk-in clinic (the only ones we get in this town) could not do a Section 8 because we weren't really their patients - it's something a family doctor would do for one of their regular patients. So, yes, the Section 8 still does exist.

When asking doctors about the form to get filled out, they didn't seem to know.

So, I simply spoke with the ONE pharmacy I deal with here in my town and asked them what form it was that I needed to get the Epi-pen for Jesse. They give me the form and I take it into the doctor.

Then, I have to explain to the doctor that he has to fill out the SAA form and (Special Authorization - Allergen) and ALSO write a prescription for the Epi-pen. They most all seem to be confused by this, thinking that the SAA form is the prescription. You need both.

You then take both of these back into the pharmacy.

Under the Trillium Drug Plan and I believe it is the same with the Ontario Drug Card (which covers not only people on Ontario Works but also people on the Ontario Disability Support Program), you get the SAA and you are able to have one Epi-pen filled per month.

To-day, I had to get some Advair for my son to try for his asthma and under Trillium, I needed a special form for that as well. It is called "limited use". I did discuss this in another thread here to-day and Singulair is NOT covered (as you know).

I went into the pharmacy and asked them for the limited use form and they did have them but they said that in this case, the limited use, rather than the SAA, the doctor would have his own copy of the form. It also counted as the prescription as well.

So, this paperwork bureaucracy can be confusing. But I know, for a fact, that under Trillium your Epi-pens are covered with the SAA form.

I would simply call a large drug store chain in your area, like Shopper's and ask them if they have any SAA forms.

If push comes to shove though, and really no one knows what you're talking about (which I do think won't happen), please feel free to contact me and I'll give you the phone number of my pharmacy.

Your Epi-pens are covered.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By Mama on Mon, 05-31-04, 03:16

Thank you so much for your reply Alternative to Mainstream. I have checked Shoppers, Pharma Plus. And still no luck. My Ped. says he has never heard of SAA. My DS has an appointment for Allergy test this week so maybe the allergist will have a clue what I am talking about.

If I get no where maybe I will take you up on your offer and call your pharmacy.

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By Mama on Mon, 06-07-04, 01:16

hi Mainstream
I finally managed to get somewhere with the epi-pen assisstance.
My DS had an allergy test, so I mentioned it to the Dr. She did not have any forms, but she called the drug store in the hospital and they gave me one, until the Dr. gets the forms in. She also give me a limited use form for singular 4mg. singular 5mg. has to be a section 8.
So after months and months I finally got everything.
Thanks for your help and advise, it was much appreciated.

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By on Mon, 06-07-04, 01:41

Mama, I am so pleased that everything worked out well for you. As I believe I mentioned, I got my son's Advair on a "limited use" form.

The thing that really bothers me about this is look at all of the running around and calling around you had to do. Also, when you spoke with SAA forms, Section 8's, and limited use, I also suspect you were looked at like an alien with two heads (that look that I don't care to get [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img] ).

The only reason I even learned about a Section 8 was when my son had his first PA reaction and we were covered under Trillium (even way back then, my husband wasn't a student but he didn't have drug coverage where he worked), we got a 'script for an Epi-pen from the ER doctor. Fortunately, either the doctor or the pharmacist told me that I required a Section 8.

I understand that even if you are on the Ontario Works program (welfare) or Ontario Disability Support Program here in Ontario, you're using the same forms as people that are covered under Trillium (there was some discussion about Trillium in ajinn's thread re medical care in Off Topic). Trillium is not just for people of "low income" but for people that do not have prescription drug coverage through their place of employment (or in my case the past two years because my husband is/was a student) and it is based on your annual income.

I highly doubt that there is someone earning $100,000.00 a year in Canada without a drug plan in place at their work, but if there is, they would be eligible to apply for Trillium.

What I'm trying to say is that it is perhaps difficult enough to be on government programs (welfare and ODSP) (IMHO) without these mysterious forms that you need to get essential medications for your child.

I'll have to look at the paperwork that you get with Trillium. I don't know if it says anywhere in there (although I think you only get a piece of paper saying that you have been accepted and this amount is your quarterly deductible) about medications that are not covered under the plan and how you may require special forms - a Section 8, a "limited use", an SAA.

The other thing that troubles me is that senior citizens not covered by their own prescription drug coverage that they've carried over from their place of work also are issued some type of drug card (I'd have to check with my Mom to see if it's issued once a year or what, I know my MIL has work coverage extended).

Why make it more difficult for people that may already be having a difficult time? That's what I'm trying to say.

Why someone in a Shopper's Drug Mart wouldn't know what ANY of these forms are, I have no idea.

With the SAA form, the SAA form has to be completed by the doctor AND a separate prescription written.

With a "limited use", the "limited use" form is considered the prescription.

So, bloody he**, pharmacies should know. And so should every doctor.

Sorry, didn't mean to go on a rant. I did miss your first post (two back) seeing that you were still having difficulty (my apologies [img]http://uumor.pair.com/nutalle2/peanutallergy/redface.gif[/img] ).

Of course, we could simply chalk it up to government red tape/bureaucracy/paperwork because Trillium is a Ministry of Health run program so.

It just bothers me. What if you hadn't been able to come here and read the information that I have posted and that other members have posted?

It was also through other members posting here when my son had a recent asthma attack about Advair and Singulair that I figured out that I had to ask what form I needed to get him the Advair.

Interestingly enough, oh, and perhaps that's why you mentioned the dosage, I was told that Singulair was not covered under any form at all.

Okay, let's balance off a rant with perhaps a funny story. About three years ago, my family doctor was trying to figure out pain meds for me for my migraines. In order for me to eventually have the one he wanted to me to take covered under Trillium, I had to use/take a much stronger (and I do mean MUCH) medication under "limited use" for a month to say that yes, I had tried this, and it was now okay for me to try the other one.
It was a very interesting trial period shall we say.

Anyway, I'm glad that things worked out well for you and that you finally bloody got the information you needed from people who I personally feel should already have the information.

It is my pharmacy that gives me the SAA form. When I asked about a limited use form for the Advair, they had simply run out of forms but because it is also the prescription, the doctor did have them.

Glad it worked out. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Sorry for the rant. I guess you can see why I started this thread so long ago to begin with! [img]http://uumor.pair.com/nutalle2/peanutallergy/wink.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]


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By on Sat, 07-17-04, 14:22

(edited to upgrade link address)

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By on Sat, 07-17-04, 18:52

(edited to upgrade link to new discussion board software)


Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By kkeene on Sun, 07-18-04, 14:48

I just wanted to share a little finc. info. for both the US & CANADA

In the USA
-if your state has a Early On program offered through your family services you should contact them.

My son was accepted for Early On a program to basically help connect us to different agancies & programs that may benifit your child. My son was in the program because of his asthma & food allergies. This is where my son got his first IFSP.

They were wonderful. We were able to attend their free play groups (age 0-3yrs) & were connected with speech theropy programs. They also receive funds that they can distribute to the family (around $300 a year I think)

We were able to get cookbooks, medicine bag, lable reading cards & ID badge.

Recently I contacted our local child care council about services, as they also rec. funds for families (I believe upto age 6)
They were kind enough to help get my son & I into a education/support program & help towards my purchase of FAAN materials (Preschool kit)

I just wanted to share this info in hopes that it can help others families.


Contact your local Health Unit
-they have lots of different program to help family obtain the resources they need.
This goes for Cribs to Allergies Info.

These programs of there for the wellbeing of the children & they want & need to know what types of things we as families need.

Hope someone finds this helpful...

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By smartalyk on Sun, 08-08-04, 16:46

I am in Saskatchewan, Canada and our family is on the Sask. Employment Supplement. Part of this supplement is Family Health Benefits, which covers 100% of most of the medical needs of my children. We have had ambulance costs, inhalers, epi-pens, nasonex, aerochambers all covered 100%. I actually dread making too much money and losing our supplement because those things cost sooooo much. It has definitely been a blessing to us.

I think that most provinces in Canada have similar supplements/ programs?! Maybe not. I know that Sask Health covers more than Alberta as we have also lived there. Alberta doesn't cover the cost of out-patient medication but Sask does.

Obviously I am kldding about not wanting to lose the supplement. I would much rather have money to spare, LOL!

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By on Tue, 08-17-04, 04:38

Mama, I now understand why you had such difficulty! [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]

I recently moved and was speaking with a pharmacist in Toronto about obtaining an SAA form for an Epi-pen. He told me that there was no such thing (wrong [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img] ) and that to get an Epi-pen I would have to get a Section 8 filled out.

Now, I have certainly had Section 8's completed to get an Epi-pen prescription filled in Ontario. However, I also now know that there is the SAA form, which I believe is an extension of the Section 8 pertaining specifically to Epi-pens.

I can well see myself having to contact my pharmacist in Belleville to get it sorted when I go for my son's next Epi-pen. I am not pleased.

How frustrating it must have been for you (although I believe I felt empathy at the time, but still).

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By Mama on Thu, 08-26-04, 23:05

I finally can help on this subject. I have been away for the past 2 months, and had a pleasant surprise when I returned. In my huge pile of mail were 6 SAA forms from our Pediatrian. He signed each one but did not date them so I may use them as I need them. I called to thank them and the secretary told me it was the hardest thing she has ever had to locate. She had such a run around she was about to give up.
This is the phone # it says to call to get a form. But you must be on ODB to be eligable for the form. 1888-310-9008
I hope this helps.
Good luck.

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By on Fri, 08-27-04, 22:06

Mama, thank-you. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

I was very fortunate in that I did get a family doctor here in Toronto (apparently they're even hard to come by here nowadays), and even though he's an older gentleman and I may not have him for long, at least he's going to deal with the kids and I.

That way, if need be, I can get him to Section 8 an Epi-pen. I do know I need another one for my DH and have to check the expiry dates on the three I do have.

Great information you posted though! It might help quite a few health practitioners.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By on Wed, 09-08-04, 00:22

Simply re-raising for b and c. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By on Sat, 09-25-04, 16:10

I saw the family physician with both children on Thursday this week (September 23, 2004) for them to have physicals, which they haven't officially had since we went to Belleville (3 years ago). They've certainly been checked by doctors every time they have a problem (and last winter they seemed to have quite a few) but they haven't had an official physical (not that there's much to it).

Anyway. Another reason I had to take Jesse in was because we need another Epi-pen for his Father so that we're not doing a switch depending on who is going out with Jesse. Jess has the one in his Epi-belt, there is another one at school, and I have one in my purse. And his Father usually has one in his knapsack. So, I had to get a 'script for that on Thursday.

Now, as posted here previously, it's supposed to be on an SAA form and when I asked the first pharmacy I went into in Toronto in August month, they didn't know what the heck I was talking about. I came in and posted that I understood why Mama was having such a hard time getting the form because the first pharmacy I went into, they didn't know what I meant.

Anyway. Spoke with the doctor, tell him I need an Epi-pen and he calls the pharmacy downstairs from his office (a different one than the one I had spoken with before). The pharmacy tells him that he has to write out a Section 8.

Now, I have gotten Epi-pens on Section 8's for years, but then, all of a sudden, in Belleville, it was changed at some point to the SAA form.

So now I'm confused [img]http://uumor.pair.com/nutalle2/peanutallergy/confused.gif[/img] The SAA was a provincial wide form but apparently it's not used in Toronto. This would be for people that are using the Ontario run drug plan - Trillium (which anyone can be covered under if they do not have a drug plan through work), people on Ontario Works (welfare) and people on the Ontario Disability Support Program.

The doctor put in a request via Section 8, which is submitted to the government and then he gets the form back which I then have to pick up and take into the pharmacy.

So, in this situation, if anyone needs to use this information, make sure you book your appointment with your family doctor well in advance of Epi-pens expiring. I'm not clear how long it will take for the Section 8 paperwork to get back to the doctor and then to me. I'll post when I get it so people know what the time-frame involved is.

I really feel like calling my pharmacist in Belleville and asking why they used an SAA there (perhaps because it was a walk-in clinic and not the same doctor every time?) and not a Section 8 and clarifying what the difference is.

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By on Wed, 10-27-04, 15:55

Well, I had to see my family doctor on Monday and I checked to see if Jesse's Section 8 for the Epi-pen had come in yet. It's been a month. No, it hasn't. Apparently, there is some number I can call to check on it.

What ticks me off is that in Belleville (same province), I simply walked into the pharmacy and asked for the SAA form and took that into the doctor and he filled it out, along with a prescription for an Epi-pen and I got my Epi-pen the same day.

Why are things different in Toronto?

Obviously, I have to go two months before expiry to get any replacements and again, just don't understand because it's the same province, the same Ministry of Health. [img]http://uumor.pair.com/nutalle2/peanutallergy/mad.gif[/img]

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By jtolpin on Wed, 10-27-04, 18:53

I don't think anyone on the Red-Sox fall into Low Income, so I won't mention them here.


[b]* ENRICHED * [/b]

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By on Tue, 11-30-04, 20:14

Still bloody waiting for the Section 8 to come through for Jesse's Epi-pen. The doctor had mentioned to me that I could call The Ministry of Health myself and check on the status. I called to-day and of course, I got their answering machine and left a message.

So, I decide to call my pharmacist in Belleville. I went through with them how easy it was for me to get the SAA form from them, take it into the doctor, have him fill it out, and take it back into the pharmacy and get the Epi-pen.

Well, I got the fiesty pharmacy tech on the phone and she says bloody he** Cindy, they don't know what they're doing in the big city! She said that when I was planning to go to the doctor, to have my pharmacy (I do use one exclusively here) call HER and she'll tell them to get a grip!

I couldn't understand how every pharmacy I've spoken with here hasn't known about the SAA and yet in Belleville (a small city), they knew.

Can you imagine?

Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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By nutfreak on Tue, 11-30-04, 20:32

I'd say the only assistance poor people need are to give them free peanut butter. You figure the rest out.

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