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Peanut Free and Nut Free
Other Food Allergies
DS\' and my dr. wants **ME** to try Xolair
I'm only posting this on the Main board because of DS really.
DS and I have the same allergist. He has evening hours one night a week and I went this week w/o DS. I've had some bad episodes recently with my asthma, and I had a very nasty case of thrush from my Advair 500--going down my throat and I think into my lungs (yes, I rinse after using it). He wants me to consider Xolair. Side note--I do have PA, too, just not a very high ige level at all.
Well, he just mentioned it in passing--probably not expecting me to be aware of it really, and I just started crying, and I think it really threw him for a loop (although he was very understanding). I said that it was DS who was supposed to get it (of course I've had concerns about the cancer) but for years before it was released, we had hoped DS would be able to take it.
How ironically unfair this is that I could take it, and my PA doesn't even warrant it. I mean, I can be near someone eating peanuts. I can eat Chick Fil A. I don't even really ask for great detail about my food when dining out w/o DS at a nice restaurant (I don't order obviously unsafe things). PA doesn't really alter my life. I'm flying Continental for a business trip next week (unfortunately--there was no other way), and I'll be fine, but DS can't. But I can take Xolair like that because my asthma is bad enough. And DS can't.
I still need to consider this thoroughly. According to him, there hasn't been the incidence of cancer (lymphoma) in adults that there was in the clinical trials for the children under 12. It was three kids. Now, I had thought it was adults, be he said it was children. Initially the trial was with 1,000 children, he said, but after those problems, the FDA said they had to get 10,000 children to participate.
He said that I wouldn't have to remain on it forever--something that I thought I had picked up from this board. He said he would want me on it a year or so, along with allergy shots, and then off Xolair--and then he thought I could probably get off my allergy shots, because he's seen systemic improvement in patients' allergies with Xolair. He had one patient--an older pediatric patient (16 or so) who was out of town or something and was inadvertently prescribed an antibiotic he was allergic to (previously ana to), and when he took the antibiotic, he was fine. No problem because he'd been on Xolair.
I can't believe I just started crying in the doctor's office, but the idea of taking something so easily that DS can't just got to me. I wonder if I actually could take Xolair--something that to us was our hope for DS. Even though I don't know that I would choose it for him now if I could--I'm not sure I can choose it for me, either.
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