Doctors can\'t figure out what\'s wrong with my child

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Mookie86's picture
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This board has been so wonderful for sharing ideas about medical mysteries. Hopefully someone can figure out what's going on with my child. He's two years old, and he's had chronic sinus infections since he was approx. 2 months old. The pediatrician and the ENT are out of ideas what might be causing them.

We did skin testing at 20 months, and he tested positive only to peanuts. At the beginning of December (23 months), he had his adenoid removed (dr. said that it was really massive) and coblation of the turbinates (they were too big and further limiting drainage and airflow). The surgery has allowed him to breathe through the nose (he couldn't previously) and he no longer snores, but it did not accomplish its main goal of stopping the chronic sinus infections. In 1-1/2 months since the surgery, he's had two sinus infections--- and that's with being on antibiotics for a week after the surgery. He's currently on his 20-day course of Omnicef.

Two weeks ago, we did an immunoglobulin panel to see if his immune system is working properly. His IgA was 31 (low, but normal), total IgE was <2 (indicating he's not constantly congested due to an environmental allergy or another allergy that's a frequent presence in his environment), IgG was 583 (middle of normal range), and IgM was 148 (upper end of normal is 146, but the dr. wasn't concerned it was slighly over since he had a sinus infection at the time of the blood test). For the CBC, the white blood cell count was slightly elevated, but again that's not surprising since he had a sinus infection. Some number was 1.2 when it should be >1.5. Dr. wasn't concerned since it has been normal in the past. I couldn't understand what she was saying, so I don't know what it is. It was part of the CBC.

If nothing improves over the next couple of months, the ped. wants him to be tested for cystic fibrosis. That seems like a huge stretch because the only symptom he has is chronic infections. The ENT said it's possible there's something structurally wrong with his sinuses. He didn't want to put DS through a CAT scan of them because he can't do sinus surgery until he's at least six years old. The ENT thought that, although he doesn't have an immune system deficiency, the IgA and IgM are so close to abnormal that maybe that's why he is so susceptible to infections. If that's true, why has he never had strep throat, has had only a few ear infections, etc.? I guess each person has a spot where infections are more likely to develop, but it seems that more is going on here.

Does anybody have any ideas of what else we should explore?

Edited to add: He takes 1 tsp of Zyrtec daily to try to help dry up the congestion. He also takes daily 1 spray in each nostril of Nasonex to try to help open him up and improve drainage.

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Mookie---Mom to Devin (PA, born 2004) and Brendan (PA, TNA, SA; born 1999)

[This message has been edited by Mookie86 (edited February 01, 2006).]

Lindajo's picture
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This sounds exactly like what my DH has. Just a thought, was he checked for nasal polyps? Or a deveated septum? I know its a far stretch from your DS, but my DH has both of these problems. He's always getting sinus infections and is always stuffed up. He's supposed to have surgery to remove them but they go up his sinuses under his eyes and the doctors always state the risk of going after them and possibly affecting his eyesight.

Mookie86's picture
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Lindajo, I'm sorry to hear your DH is going through the same thing. My DS does not have nasal polyps or a deviated septum. The ENT ruled out these things.

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Do you ever visit [url="http://www.kidswithfoodallergies.org?"]www.kidswithfoodallergies.org?[/url] You might want to post the same question there if you haven't already. Sorry, can't think of anything else...Meg

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Danielle's picture
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Cincinatti children's hospital is doing a lot now with kids and food allergies. You might just want to take a peak at their site and see if anything rings a bell with what you are going through.
Good luck

Momcat's picture
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I would bet that he has some kind of structural issue that he may grow out of. As a child I had chronic ear infections and was put on a maintainance dose of antibiotics. Eventually, my head grew enough that the structural problem with my ears was no longer an issue. It might be worth it to have a CAT scan just so you could rule out (or in) any structural problems. Even if it can't be treated at the moment, or may be outgrown at least you would know what you are dealing with.

Cathy

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Mom to 6 1/2 yr old PA/TNA daughter and 3 yr old son who is allergic to eggs.

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safetyfirst's picture
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Hello! I am sorry that you are going through this. We have been through this to. Our son has had constant sinus infections since he was two. Always on antibiotics.Our allergist sent us for a cat scan and it showed he had sinus disease. We tried treating him for four months with nasal meds.Etc.
Our ENT finally decided he needed surgery. He was five when he had it done. They went in and took his adenoids and did some major work in his sinus cavities. They made openings, removed tissue and syst.
He came through the surgery like a trooper. The only bad part was removing the padding from his nose.
A month later we had a sinus infection again!
The Doctor put him on a new medicine called Bromfenex PD 6-60 mg. It is taken twice daily and has made a huge difference to our DS. No sinus infections and no walking around with a constant runny nose.
It has been a Blessing to find a med that works for him. Good luck!
Lori

Lam
Lam's picture
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I'm sorry you're going through this.

I am really big on supplements - especially vitamin c. You can't get too much of it - your body just flushes the extra right through. The best way is to take some at several times throughout the day.

Vitamin c boosts the immune system. Ever since our area flooded 3 times in a row, my family's allergies have been horrible!!! Now whenever it rains, we end up with sore throats, swollen glands, stuffy/runny noses, on and on. We take vitamin c and feel much better after 20-30 minutes, and after several days, we're back to normal. I was on antibiotics three times in a row FOR A SINUS INFECTION before my friend (who happens to be a Dr. in Kansas) suggested the vitamin c. I took it, and was markedly better the next day.

I'm not one to go out and try every supplement there is. I know of no downside to vitamin c (someone somewhere probably does). All I know for sure is that it works miracles for us.

Good luck to you and your child. I hope something brings relief soon.

Corvallis Mom's picture
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If it was good enough for Linus Pauling, it's good enough for me, I always say...
I love Vitamin C, too...

Anyway, what I was going to ask is whether you've investigated possible DENTAL problems with your child.
How old is he?

The reason I ask is that my DH suffered HORRIBLY for years with sinus problems... to the point that they did a scope exam and everything looking for polyps, etc...now, some of it was certainly mold allergies, but eventually he had a root canal done on a back molar, and when they did an X-ray for the procedure, the dentist asked him "You don't happen to have a lot of sinus trouble, do you?" Well, the root of his tooth was invading the sinus cavity and causing bacterial infections one after another as the tooth went bad (a process of several years... I know, TMI)
Anyway, to make a long story short, this was oh... five years ago now, and he's had ONE major sinus infection since.

Just a possibility... maybe a head CAT would be helpful.

kkeene's picture
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I agree check out the dental & even try a Chiropractor. I was always sick when I had my Braces (which were really shifting my teeth) & my chiro has worked with the alingment of my nose & used a lazer pen to help breakup unseen blockage.

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jtolpin's picture
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I have no answers, unfortunately...

if I was in that situation, I don't know what I would do...

Childrens Hospital, I suppose, would be the best for us (BCH). ENT? Allergist? No answers...

If THEY can't give you one, Im sure I couldnt either.

Sorry...

Jason

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afr117's picture
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Has he had any radiological workups done (xray, CT, MRI)? My husband suffered this way for years until he finally had an ENT do an extensive workup of his nasal structures. It turned out that due to a minor injury when he was about 3 years old (his mother was changing the bulbs in one of those big kitchen light fixtures that the panels would slide out of - she told him not to stand there in case it got away from her but.... it landed on the bridge of his nose.) No one thought anything of it as it didn't even bleed much. Fast forward to his late 20s and we find out that the impact apparently broke off a tiny piece of bone which over time moved over the opening of the sinus above his eye. Anytime he would get "goo" in there, it would not be able to come back out. Antibiotics would seemingly kill off the buggies, but there was always a small pocket of them that would remain in the blocked sinus and eventually jump into action again. Just wanted to put that out there.

rebekahc's picture
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Have they cultured his mucous for fungus? I've heard chronic sinus infections may be fungal and not bacterial - the anibiotics could be making it worse.

Hopefully you'll find answers soon!
Rebekah

krasota's picture
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He's a little young for nasal irrigation. that's what I do--saline irrigation as often as I can (daily is ideal). I used to be on antibiotics most of the year and since I started irrigating regularly over a decade ago, I've only needed them once or twice.

I know allergies aren't thought to be a culprit, but have you tried encasing his pillows and mattress and replacing the furnace filter?

My chronic sinus problems are caused by mechanical issues (the actual sinuses/drainage passages) and allergies/irritation.

I know a number of people who've discovered that *dairy* was a culprit in frequent respiratory/sinus/ear infections.

ygg

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HaroldsMom's picture
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How much vitiman c do you give a 2 year old ? Does it really help ..My PA and egg allergy suddenly has one side of his nose that is either stuffy or running...I don't know what it going on...He takes clatitian everyday but it does not seem to help..He has just started snoring..He has severe asthma too.takes flovent...I really just don't know..I thought I was pretty smart but this really blows my mind...I am worried it just started out as FA now it is awful excema on his face, then asthma now the nose??? I am going to have to take him back to the doctors....Yesterday I gave him strawberry cream cheese and his whole lower face was one big welt?? I read the label..It is very scarey .Anywho...I just needed to talk..sorry for such a long entry..I just ?? I don't know...need to talk i guess...when I first learned my son was allergic to peanuts my mother said...Your not suppose to give one year olds peanutbutter..whats wrong with you...who knew..I have two other beautiful children and no FAs..I was brought up on PB..Thrived on it when pregnant...Who knew..Now I never take anything for granted...Thanks for listening

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[b]Mookie86[/b]
Several years ago my co-worker's toddler had constant ear and sinus infections. She was getting a very resistant [i]Strep pneumo.[/i] and it was not responding well to antiboitics. (The sinuses are very hard to treat b/c it's hard to get meds to the source of the problem.) She was criticised for putting her child in Daycare. She went to numerous allergists and ENTs...did the tonsil/adenoid surgery...did the ear tubes...no better. Finally took matters into her own hands and took her DD to a Pediatric Infectious Disease Doc. (They are used to dealing with strange and recurring infections.) They treated the child for about a month straight with antibiotics ([i]longer and stronger[/i] and were able to stop the problem once and for all! Sometimes you just have to find the right Doc for the right problem.

[b]rebekahc[/b]
Good thought on the fungal infections. Many bacterial infections of the sinuses are actually secondary. The fungal infections never get treated and the bacteria just keep joining the party! Need a good Doc to diagnose, though. Usually can't be done from a nasal swab...needs an actual sinus culture.

[b]Mookie86[/b]Did they culture when they did his initial surgery? Have they cultured at all?

Hope this helps,
Daisy
[i]no medical advice, just good, common sense[/i]

[b]HaroldsMom[/b]
Try some environmental controls...mattress encasings, air filters, etc...can't hurt...good for any asthmatic child to be free from dust mites, anyway. And strawberries are high in histamine. Some people get rashes just from that, not from an allergy. Additional testing can never hurt if you're concerned. [b]And don't beat yourself up about the peanut butter![/b] Until the public is more aware of these things, such as though [i]responsible media[/i], patient education from Docs, etc... how where you supposed to know? I've had allergies for years, and I'm still finding so much info on this website that I'd never heard of...great site...great support!

KayMarks's picture
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Hi! I'll throw in my experience. I had chronic sinus infections for 5 years- had surgery to remove polyps and still no luck. Irrigation no luck etc. Turns out I had acid reflux at night when I slept and it would go up into my nose. I knew once in awhile it would wake me up coming into my mouth but didn't consider it going into my nose until one night it did. Mentioned it to my doctor and he said it does happen and since I'm sleeping, I wouldn't know. I didn't have acid reflux during the day. All I did was put 2 bricks under my headboard and I haven't had a sinus infection in over a year. It also stopped my husband's snoring. I've had alot of people try it and it's worked. And I didn't have to take any medicine. Good luck and I hope you figure all this out!

Lam
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Harolds Mom -
I give my kids one Ester C chewable every day with breakfast, but if they're showing signs of illness (sore throat, sniffles, stuffiness, etc...) I will give them more throughout the day. (My boys are 7 and 9.) I was told that you cannot have too much vitamin C - that your body will just flush out what can't be used. Remember, it's best to give multiple doses THROUGHOUT the day, not all at once. The most I've given my kids is three doses throughout the day - one at each meal. It's best to take vitamins with food. You can research vitamin C on the web - LOTS of info. Good luck. I'd also look into the allergen bed covers and such - can't hurt to try. [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

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Has he been tested for dairy allergy? Dairy causes mucus which can make sinus problems worse. Debi

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HaroldsMom's picture
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Thank you so much for all your suggestions.. Everyone is so thoughtful..And helpful..I will give him the vitiman c...
He was sleeping fine now he won't sleep in his bed and has been sleeping on the living room floor on top of two comfortors.we sleep with him out there.(he won't sleep in our bed.as our daughter did who had cronic asthma when younger.she is 4 now and ok.)And ever since his last battle with the asthma being out of control and going to the hospital twice in two weeks.and having to be awoke often to do the nebulizer..actually he woke up we did not wake him..he just screams and comes in the living room so we just let him sleep there..can't have him screaming or to upset.I don't want to irritate his asthma.
We are working towards getting him back in his bed..maybe i will put the matress cover under him. I have air cleaners in every room..we have two golden retrievers and they are hairy...They sleep in an area of their own in the kitchen..I can't have them laying with him..so I put the filters on to help..I vacuum and febreeze allergen..He has been tested for the dogs..And yes he was tested for dairy and it came back to low the doctor said to consider..but know what he had excema on his face when he was about three months old and we asked the doctor and he said just dry skin...When he first had an reaction to food we took him off milk, peanut and egg his excema went away.then when he got tested they told us the milk was ok...hmmmm

[This message has been edited by HaroldsMom (edited February 20, 2006).]

Lam
Lam's picture
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Just wanted to pop back in here to say that my DH has tried vitamin C and gets TOO dried out if he takes more than one dose. Nothing horrible, but drier than he was comfortable with. He sticks to one dose a day, now.

Good luck.
Lam [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]

mistey's picture
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Sorry your family is going through this. We had a recent scare with our son as well, and we still don't have any answers. This week we are going to a geneticist. One thought for you: how much Flovent is he on? And has he had any oral steriods lately? My ds is on a high dose of Flovent (220 twice daily) and I wonder if this is making his immune system less equipped to fight infection. We did all the IGA, IGE, etc. testing and ds came out in the normal range as well. It can be so frustrating not having any idea what is causing illness. I hope we both find answers soon!

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