Daughter has Level 4 allergy

5 replies [Last post]
By JandEMom on Mon, 10-03-05, 18:57

Hello - New to the board. A little background.... My son is 5 and has a level 3 PA. He has never had a reaction we know of, but has been blood tested as a result of severe excema.

My daughter is 15 months old and had a reaction to peanuts at her daycare. Had a blood test done (has excema also, so cant do a skin test) and she has a level 4 allergy. Have not had a follow-up w/ dr. since diagnosis. Does anyone know what this means? What I need to be doing? Please help!

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By Adele on Mon, 10-03-05, 19:16

Hi JandEmom, Sorry to hear about your children's PA. I searched the word 'level' and found some previous discussions on RAST test levels. I've raised the thread for you - it's titled 'RAST testing and IgE levels. I hope this information helps.

Try searching other words such as RAST.
Good luck!
cheers,
Adele

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By Chicago on Tue, 10-04-05, 01:00

It is the general thought (in the medical community) that RAST levels cannot guarentee the severity of a reaction. All peanut allergies should be treated seriously, as reactions can change very quickly.

If your doctor did not give you an Epi Pen perscription, please call back and get one or see another doctor/allergist asap.

There is tons of info on these boards, but I would also advise checking out [url="http://www.foodallergy.org"]www.foodallergy.org[/url] and learning about FAAN (Food Allergy and Anaphylaxis Network) and their resources.

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By JandEMom on Tue, 10-04-05, 04:09

Thank you! Was not sure what the numbers meant... but yes, we do have an epi-pen. Actually had one already for our son. So interesting reading all about PA and how to handle in everyday life.

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By JandEMom on Tue, 10-04-05, 04:18

I do have a question though, and will obviously will talk w/ my daughters doctor as well. But if the scores dont mean anything, why do they send results w/ the score highlighted?

Does this mean that since she has a known allergy (reaction to date has been hives) that I have to take the extreme measures that I know kids w/ more severe responses take (peanut free school, etc)?

I will do ANYTHING necessary to keep my kids safe. But also dont want to go too far and alienate people unnecessarily. I know alienate seems harsh, but I have read alot about what people go through keeping schools, play zones, etc. totally peanut free, and wondering when you know thats necessary. Like I said, reaction to date has been hives, but know it can get more serious.

Sorry for the rambling... but trying to figure this all out.

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By Nutternomore on Tue, 10-04-05, 04:46

Quote:Originally posted by JandEMom:
[b]I do have a question though, and will obviously will talk w/ my daughters doctor as well. But if the scores dont mean anything, why do they send results w/ the score highlighted?

[/b]

Hi JandEMom from another Californian,

The RAST scores give some general sense as to the [i]probability[/i] of the allergy, but as mentioned above, in no way does it indicate the severity of reaction.

So, it's possible that someone who tests at Class 2 could react more violently than someone who tests a Class 4 (with an actual exposure). Chicago's advice is right on the mark; you really have to treat this allergy seriously. As you read, you'll also note that previous reaction history is not an indicator as to future reactions. A child could have hives one time, and full blown anaphylactic episode down the road...

The struggle between your child's safety vs. 'social normalcy' is a familiar one to those of us who have been around here awhile.

If you search on "comfort zone" either in the Schools thread, Main Discussion, or Living with threads, I'm sure you'll find some good discussions about different approaches to the comfort zone questions. Many folks do start with tighter comfort zones, and then gradually relax them a little as the children become older and more communicative.

Also, a good book that discusses this issue is Caring for your Child with Severe Food Allergies by Lisa Cipriano Collins...

[This message has been edited by Nutternomore (edited October 04, 2005).]

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