Assistance for Children with Severe Disabilities - Ontario, Canada
I know I had posted about the SSIS for Americans over the week-end. I very quickly realized that even if someone was receiving the benefit, they would be very reluctant to come into this board and post it. Same goes for Canadians.
Is there any financial help out there for low-income families who have a PA child - to buy the name brands foods we are required to buy, the MedicAlert bracelets, the FAN and AAIA memberships, the posters, videos, and literature (mostly from FAN) to help educate our children's schools?
I recognize that my quest in finding answers and desseminating the information to others will have to basically be off-the-board as no one is going to straight out admit that they need help financially to the world world (on this board).
I do need an American that would be able to help me with this to help with Americans who have questions that I am unable to answer or provide further information about.
Based on my SSIS question, and the fact that I know my girlfriend receives money from the Canadian government because her daughter has clubfeet and therefore requires "good" shoes, etc., I have followed-up and tried to find some Canadian information.
This also originally comes from me, when I first came to this site, Chris at PA.com contacted me to welcome me (he's probably horrified now that he did) and he told me that a lot of media reads this board and gets information about PA from it (therefore, my questioning of everything all the time) and that he has a lot of single mothers posting on here. But, if you try and find them, by posts alone, of course, you can't. And that's the way it should be.
In Ontario, covered under the Ministry of Community & Social Services, there is a program entitled Assistance for Children with Severe Disabilities.
I called there this morning. When I spoke with the woman on the telephone, I explained the situation of the woman with the daughter with club feet and she said that you have a form and have to meet certain criteria, which this child must have met. I asked her to send me a copy of the form so I could dissect it. As soon as I get it, I'll be back in here posting! Well, you know I'll be back in here posting before I get the form, but I'll be back in posting in this actual thread re the form and whether it applies even remotely to PA.
To obtain my copy of this form, I called a Barrie #, which may be helpful for anyone else wanting to call, they could try the Barrie # and then get the proper # for the part of the province they are in. The Barrie # is (705) 737-1311.
I do have information about a couple of other things that require some financial outlay, which I will not name, to protect the places themselves, but, if anyone does need help in sorting things out financially with regard to PA and would like to contact me with a specific question, I can be reached at [email][email protected][/email]
I hope everyone understands where I'm coming from. I have always been able to budget Jesse's PA into my grocery shopping, it's something that simply comes naturally, but if you look at the increased prices of buying name brand for a month over store brand, what costs are we really talking about here? When it comes to ensuring the safety of our child's lives, the cost is NOTHING! But, when faced with a really tight budget, as I'm sure some people must be posting on this board, how do you figure it out.
Again, if anyone is interested in contacting me, please feel free to do so. Since it is off-the-board, of course, your e-mail would be held in the strictest confidence.
I actually know another PA Mom who is thinking of setting up a website for low-income families to be able to access the information, posters, etc. that some are not able to purchase as readily as they should be able to.
I hope I have not said anything whatsoever offensive in this post. It is just something that I started to work with with one other PA parent off-the-board recently here, but they're American and I don't think there are only a couple of people posting here that may be hard strapped financially. However, again, the whole board doesn't need to know it so that's why I've taken it off-the-board.
Best wishes! [img]http://uumor.pair.com/nutalle2/peanutallergy/smile.gif[/img]